Using Online Discussions to Understand Challenges and Design Opportunities in Dementia Care
Pages 211 - 220
Abstract
A growing number of HCI researchers investigate how technologies can be designed to support people with dementia. In this article, we are particularly interested in technologies that might enhance relationships between a person living with dementia and their carer. Based on a thematic analysis of posts from an online community, we investigate the challenges of familial caregiving and the carer's perspective on their relationship with their relative with dementia. The findings highlight aspects of caregiving - coping with identity transformation, companionship, technology support, emotional connection and support, and health and everyday life care. Each theme highlights unmet relational needs and tensions between carers and their relatives with dementia. From these findings, we envisage design opportunities for fostering interdependence and friendship, supporting emotional care, shared capabilities, and recognition of interests in everyday care.
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December 2023
733 pages
ISBN:9798400717079
DOI:10.1145/3638380
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Published: 10 May 2024
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