Article

“This is the story of me”: Designing audiovisual narratives to support reflection on cancer journeys

Authors:

Oda Elise Nordberg,

Tine Nordgreen,

Ragnhild Johanne Tveit SekseAuthors Info & Claims

DIS '21: Proceedings of the 2021 ACM Designing Interactive Systems Conference

Pages 1031 - 1045

https://doi.org/10.1145/3461778.3462005

Published: 28 June 2021 Publication History

Abstract

Recovering from serious illness involves a bodily and psychosocial reorientation in everyday life. Survivors of gynecological cancer often experience bodily changes, fear of cancer recurrence, and changes in sexual health. This paper explores how we can use audiovisual narratives based on experiences of gynecological cancer survival in the design of an online intervention. From a typology of cancer survival, we designed three audiovisual narratives in an experience-centered design process involving gynecological cancer survivors. The narratives were evaluated by 10 participants formerly treated for gynecological cancer. In a thematic analysis, we explore how these narratives set the stage for identification and reflection by being experienced as relatable, provoking, and realistic. Finally, we discuss how the survivors’ experience of the narratives can be construed as meaningful, and how accounts of experiences can be included in a design process to create narrative content for online interventions.

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cover image ACM Conferences

DIS '21: Proceedings of the 2021 ACM Designing Interactive Systems Conference

June 2021

2082 pages

ISBN:9781450384766

DOI:10.1145/3461778

Editors:
Wendy Ju
Jacobs Technion-Cornell Institute at Cornell Tech
,
Lora Oehlberg
University of Calgary
,
Sean Follmer
Stanford University
,
Sarah Fox
Carnegie Mellon University
,
Stacey Kuznetsov
Arizona State University

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Chopra SOrii LJuarez KTieanklin NFogarty JMunson S(2024)Menopause Legacies: Designing to Record and Share Experiences of Menopause Across GenerationsProceedings of the ACM on Human-Computer Interaction10.1145/36869758:CSCW2(1-37)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686975
Höppchen IKulnik SMeschtscherjakov ANiebauer JPfannerstill FSmeddinck JStrumegger EYoung FWurhofer D(2024)“Be with me and stay with me”: Insights from Co-Designing a Digital Companion to Support Patients Transitioning from Hospital to Cardiac RehabilitationProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3661633(890-904)Online publication date: 1-Jul-2024
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Bala PNisi VNunes N(2024)Stories as Boundary Objects: Digital Storytelling with Migrant Communities for Heritage DiscoursesProceedings of the ACM on Human-Computer Interaction10.1145/36410168:CSCW1(1-32)Online publication date: 26-Apr-2024
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Strömel KHenry SJohansson TNiess JWoźniak P(2024)Narrating Fitness: Leveraging Large Language Models for Reflective Fitness Tracker Data InterpretationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642032(1-16)Online publication date: 11-May-2024
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Karaturhan POrhan İKuşcu KYantaç A(2024)Informing the design of question-asking conversational agents for reflectionPersonal and Ubiquitous Computing10.1007/s00779-024-01831-7Online publication date: 24-Aug-2024
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Nisi VBala PCesário VJames SDel Bue ANunes N(2023)"Connected to the people": Social Inclusion & Cohesion in Action through a Cultural Heritage Digital ToolProceedings of the ACM on Human-Computer Interaction10.1145/36101687:CSCW2(1-37)Online publication date: 4-Oct-2023
https://dl.acm.org/doi/10.1145/3610168
Lamo YMukhiya SRabbi FAminifar ALillehaug STørresen JH Pham MCôtè-Allard UNoori FGuribye FInal YFlobakk EWake JMyklebost SLundervold AHammar ANordby EKahlon SKenter RSekse RGriffin KJakobsen PØdegaard KSkar YNordgreen T(2022)Towards adaptive technology in routine mental health careDIGITAL HEALTH10.1177/205520762211286788(205520762211286)Online publication date: 10-Nov-2022
https://doi.org/10.1177/20552076221128678

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