research-article

Social Technology Appropriation in Dementia: Investigating the Role of Caregivers in Engaging People with Dementia with a Videogame-based Training System

Authors:

David Unbehaun,

Konstantin Aal,

Daryoush Daniel Vaziri,

Peter David Tolmie,

Rainer Wieching,

Volker WulfAuthors Info & Claims

CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

Pages 1 - 15

https://doi.org/10.1145/3313831.3376648

Published: 23 April 2020 Publication History

Abstract

There has been increasing interest in designing for dementia in recent years. Empirical investigation is now needed of the long-term role of caregivers in appropriating ICTs into the complex daily life of people with dementia (PwD). We present here the outcomes of a 4-month evaluation of the individual, social and institutional impact of a videogame-based training system. The everyday behavior and interactions of 52 PwD and 25 caregivers was studied qualitatively, focusing on the role played by caregivers in integrating the system into daily routines. Our results indicate that the successful appropriation of ICT for PwD depends partly on the physical, cognitive and social benefits for PwD, but especially on the added value perceived by their social care-network. We discuss the need for design in dementia to develop more socially embedded innovations that can address the social actors involved and thus contribute to practical solutions for professional and private care.

Supplementary Material

MP4 File (paper519pv.mp4)

Preview video

Download
13.88 MB

References

[1]

Georg Adler. 2009. Demenzerkrankungen: erkennen, behandeln und versorgen?; mit 50 Tabellen und 4 Screeningtests. Deutscher-rzteverlag.

[2]

Peter Alheit, Kate Page, and Rineke Smilde. 2015. Musik und Demenz: das Modellprojekt» Music for Life «als innovativer Ansatz der Arbeit mit Demenzkranken. (2015).

[3]

Cay Anderson-Hanley, Paul J. Arciero, Adam M. Brickman, Joseph P. Nimon, Naoko Okuma, Sarah C. Westen, Molly E. Merz, Brandt D. Pence, Jeffrey A. Woods, Arthur F. Kramer, and Earl A. Zimmerman. 2012. Exergaming and Older Adult Cognition. Am. J. Prev. Med. 42, 2 (February 2012), 109--119.

[4]

Cathrine Arntzen, Torhild Holthe, and Rita Jentoft. 2016. Tracing the successful incorporation of assistive technology into everyday life for younger people with dementia and family carers. Dementia 15, 4 (July 2016), 646--662.

[5]

Juergen P. Bansler and Erling Havn. 2006. Sensemaking in Technology-Use Mediation: Adapting Groupware Technology in Organizations. Comput. Support. Coop. Work CSCW 15, 1 (February 2006), 55--91.

[6]

S. Benveniste, P. Jouvelot, B. Pin, and R. Péquignot. 2012. The MINWii project: Renarcissization of patients suffering from Alzheimer's disease through video game-based music therapy. Entertain. Comput. 3, 4 (December 2012), 111--120.

[7]

B. Bouchard, F. Imbeault, A. Bouzouane, and B.-A. J. Menelas. 2012. Developing Serious Games Specifically Adapted to People Suffering from Alzheimer. In Serious Games Development and Applications, D. Hutchison, T. Kanade, J. Kittler, J. M. Kleinberg, F. Mattern, J. C. Mitchell, M. Naor, O. Nierstrasz, C. Pandu Rangan, B. Steffen, M. Sudan, D. Terzopoulos, D. Tygar, M. Y. Vardi, G. Weikum, M. Ma, M. F. Oliveira, J. B. Hauge, H. Duin and K.-D. Thoben (eds.). Springer, Berlin, Heidelberg, 243--254.

[8]

Rens Brankaert. 2016. Design for dementia?: a designdriven living lab approach to involve people with dementia and their context Eindhoven. Technische Universiteit Eindhoven (2016).

[9]

Rens Brankaert, Gail Kenning, Daniel Welsh, Sarah Foley, James Hodge, and David Unbehaun. 2019. Intersections in HCI, Design and Dementia: Inclusivity in Participatory Approaches. In Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion DIS '19 Companion, ACM Press, San Diego, CA, USA, 357--360.

Digital Library

[10]

Virginia Braun and Victoria Clarke. 2006. Using thematic analysis in psychology. Qual. Res. Psychol. 3, 2 (January 2006), 77--101.

[11]

Henry Brodaty and Marika Donkin. 2009. Family caregivers of people with dementia. Dialogues Clin. Neurosci. 11, 2 (2009), 217--228.

[12]

Yunan Chen, Victor Ngo, and Sun Young Park. 2013. Caring for caregivers: designing for integrality. In Proceedings of the 2013 conference on Computer supported cooperative work - CSCW '13, ACM Press, San Antonio, Texas, USA, 91.

Digital Library

[13]

Stanley Colcombe and Arthur F. Kramer. 2003. Fitness effects on the cognitive function of older adults: A meta-analytic study. Psychol. Sci. 14, 2 (2003), 125-- 130.

[14]

M. Colombo, E. Marelli, R. Vaccaro, E. Valle, S. Colombaril, S. Garolfi, S. Fossi, E. Guaita, and E. Polesel. 2012. Virtual reality for persons with dementia: An exergaming experience. Gerontechnology 11, (2012), 402.

[15]

David W. Coon and Bronwynne Evans. 2009. Empirically based treatments for family caregiver distress: what works and where do we go from here? Geriatr. Nurs. N. Y. N 30, 6 (December 2009), 426-- 436.

[16]

E. L. Cunningham, B. McGuinness, B. Herron, and A. P. Passmore. 2015. Dementia. Ulster Med. J. 84, 2 (May 2015), 79--87.

[17]

Sara J. Czaja and Mark P. Rubert. 2002. Telecommunications Technology as an Aid to Family Caregivers of Persons With Dementia: Psychosom. Med. 64, 3 (May 2002), 469--476.

[18]

Fred D. Davis. 1989. Perceived Usefulness, Perceived Ease of Use, and User Acceptance of Information Technology. MIS Q. 13, 3 (September 1989), 319.

Digital Library

[19]

Gerardine DeSanctis and Marshall Scott Poole. 1994. Capturing the Complexity in Advanced Technology Use: Adaptive Structuration Theory. Organ. Sci. 5, 2 (May 1994), 121--147.

Digital Library

[20]

Grazia D'Onofrio, Daniele Sancarlo, Francesco Ricciardi, Francesco Panza, Davide Seripa, Filippo Cavallo, Francesco Giuliani, and Antonio Greco. 2017. Information and Communication Technologies for the Activities of Daily Living in Older Patients with Dementia: A Systematic Review. J. Alzheimers Dis. 57, 3 (April 2017), 927--935.

[21]

Erica Dove and Arlene J Astell. 2017. The Use of Motion-Based Technology for People Living With Dementia or Mild Cognitive Impairment: A Literature Review. J. Med. Internet Res. 19, 1 (January 2017), e3.

[22]

R.M. Dröes, R. Chattat, A. Diaz, D. Gove, M. Graff, K. Murphy, H. Verbeek, M. Vernooij-Dassen, L. Clare, A. Johannessen, M. Roes, F. Verhey, K. Charras, and the INTERDEM sOcial Health Taskforce. 2017. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging Ment. Health 21, 1 (January 2017), 4--17.

[23]

Sarah Foley, Nadia Pantidi, and John McCarthy. 2019. Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI '19, ACM Press, Glasgow, Scotland Uk, 1--15.

Digital Library

[24]

Jaime A. Garcia, Karla Felix Navarro, Daniel Schoene, Stuart T. Smith, and YusufPisan. 2012. Exergames for the elderly: towards an embedded Kinect-based clinical test of falls risk. Stud. Health Technol. Inform. 178, (2012), 51--57.

[25]

Grant Gibson, Claire Dickinson, Katie Brittain, and Louise Robinson. 2015. The everyday use of assistive technology by people with dementia and their family carers: a qualitative study. BMC Geriatr. 15, 1 (December 2015).

[26]

Stefan Göbel, Sandro Hardy, Viktor Wendel, Florian Mehm, and Ralf Steinmetz. 2010. Serious games for health: personalized exergames. In Proceedings of the international conference on Multimedia - MM '10, ACM Press, Firenze, Italy, 1663.

Digital Library

[27]

E. Gräßel. 1998. Häusliche Pflege dementiell und nicht dementiell ErkrankterTeil II: Gesundheit und Belastung der Pflegenden. Z. Für Gerontol. Geriatr. 31, 1 (February 1998), 57--62.

[28]

Klaus Hauer, Michael Schwenk, Tanja Zieschang, Marco Essig, Clemens Becker, and Peter Oster. 2012. Physical training improves motor performance in people with dementia: a randomized controlled trial. J. Am. Geriatr. Soc. 60, 1 (2012), 8--15.

[29]

Niels Hendriks, Liesbeth Huybrechts, Andrea Wilkinson, and Karin Slegers. 2014. Challenges in doing participatory design with people with dementia. ACM Press, 33--36.

Digital Library

[30]

Patricia Heyn, Beatriz C. Abreu, and Kenneth J. Ottenbacher. 2004. The effects of exercise training on elderly persons with cognitive impairment and dementia: A meta-analysis. Arch. Phys. Med. Rehabil. 85, 10 (October 2004), 1694--1704.

[31]

James Hodge, Madeline Balaam, Sandra Hastings, and Kellie Morrissey. 2018. Exploring the Design of Tailored Virtual Reality Experiences for People with Dementia. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems - CHI '18, ACM Press, Montreal QC, Canada, 1--13.

Digital Library

[32]

James Hodge, Kyle Montague, Sandra Hastings, and Kellie Morrissey. 2019. Exploring Media Capture of Meaningful Experiences to Support Families Living with Dementia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI '19, ACM Press, Glasgow, Scotland Uk, 1--14.

Digital Library

[33]

Torhild Holthe, Rita Jentoft, Cathrine Arntzen, and Kirsten Thorsen. 2018. Benefits and burdens: family caregivers' experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD). Disabil. Rehabil. Assist. Technol. 13, 8 (November 2018), 754--762.

[34]

Maarten Houben, Rens Brankaert, Saskia Bakker, Gail Kenning, Inge Bongers, and Berry Eggen. 2019. Foregrounding Everyday Sounds in Dementia. In Proceedings of the 2019 on Designing Interactive Systems Conference - DIS '19, ACM Press, San Diego, CA, USA, 71--83.

Digital Library

[35]

Paul-Ariel Kenigsberg, Jean-Pierre Aquino, Alain Bérard, François Brémond, Kevin Charras, Tom Dening, Rose-Marie Droës, Fabrice Gzil, Ben Hicks, Anthea Innes, Sao-Mai Nguyen, Louise Nygård, Maribel Pino, Guillaume Sacco, Eric Salmon, Henriëtte van der Roest, Hervé Villet, Marion Villez, Philippe Robert, and Valeria Manera. 2019. Assistive Technologies to Address Capabilities of People with Dementia: From Research to Practice. Dementia 18, 4 (May 2019), 1568--1595.

[36]

Gail Kenning. 2018. Reciprocal design: inclusive design approaches for people with late stage dementia. Des. Health 2, 1 (January 2018), 142--162.

[37]

Karsten Kiewitt. 2014. Emotionales Musikerleben bei Demenz: eine Studiezur Wirkung des Musikhörens auf das emotionale Erleben Demenzbetroffener (1. Auflage ed.). sierke Verlag, Göttingen.

[38]

T. M. Kitwood. 1997. Dementia reconsidered: the person comes first. Open University Press, Buckingham [England]?; Philadelphia.

[39]

Tom M Kitwood. 2013. Demenz: der person-zentrierte Ansatz im Umgang mit verwirrten Menschen. Huber.

[40]

Armin Koeppe, Nicole Maly-Lukas, Dorothee Mausberg, Monika Reichert, and Diözesan Caritasverband für das Erzbistum Köln (Eds.). 2003. Zur Lebenslage pflegender Angehöriger psychisch kranker alter Menschen: eine empirische Untersuchung. LIT-Verl, Münster.

[41]

Ann Kolanowski, Richard H. Fortinsky, Margaret Calkins, Davangere P. Devanand, Elizabeth Gould, Tamar Heller, Nancy A. Hodgson, Helen C. Kales, Jeffrey Kaye, Constantine Lyketsos, Barbara Resnick, Melanie Schicker, and Sheryl Zimmerman. 2018. Advancing Research on Care Needs and Supportive Approaches for Persons With Dementia: Recommendations and Rationale. J. Am. Med. Dir. Assoc. 19, 12 (December 2018), 1047--1053.

[42]

Steve Lauriks, Annika Reinersmann, Henriëtte Geralde Van der Roest, F.J.M. Meiland, Richard J. Davies, Ferial Moelaert, Maurice D. Mulvenna, Chris D. Nugent, and Rose-Marie Dröes. 2007. Review ofICTbased services for identified unmet needs in people with dementia. Ageing Res. Rev. 6, 3 (October 2007), 223--246.

[43]

Amanda Lazar, Caroline Edasis, and Anne Marie Piper. 2017. A Critical Lens on Dementia and Design in HCI. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems - CHI '17, ACM Press, Denver, Colorado, USA, 2175--2188.

Digital Library

[44]

Stephen Lindsay, Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy, participatory design and people with dementia. ACM Press, 521.

Digital Library

[45]

Klara Lorenz, Paul P Freddolino, Adelina ComasHerrera, Martin Knapp, and Jacqueline Damant. 2019. Technology-based tools and services for people with dementia and carers: Mapping technology onto the dementia care pathway. Dementia 18, 2 (February 2019), 725--741.

[46]

Meryl Reis Louis. 1980. Surprise and Sense Making: What Newcomers Experience in Entering Unfamiliar Organizational Settings. Adm. Sci. Q. 25, 2 (June 1980), 226.

[47]

Claudia I Martínez-Alcalá, Patricia Pliego-Pastrana, Alejandra Rosales-Lagarde, Js Lopez-Noguerola, and Eva M Molina-Trinidad. 2016. Information and Communication Technologies in the Care of the Elderly: Systematic Review of Applications Aimed at Patients With Dementia and Caregivers. JMIR Rehabil. Assist. Technol. 3, 1 (May 2016), e6.

[48]

Julia M. Mayer and Jelena Zach. 2013. Lessons learned from participatory design with and for people with dementia. ACM Press, 540.

Digital Library

[49]

Franka Meiland, Anthea Innes, Gail Mountain, Louise Robinson, Henriëtte van der Roest, J Antonio GarcíaCasal, Dianne Gove, Jochen René Thyrian, Shirley Evans, Rose-Marie Dröes, Fiona Kelly, Alexander Kurz, Dympna Casey, Dorota Szczeniak, Tom Dening, Michael P Craven, Marijke Span, Heike Felzmann, Magda Tsolaki, and Manuel FrancoMartin. 2017. Technologies to Support CommunityDwelling Persons With Dementia: A Position Paperon Issues Regarding Development, Usability, Effectiveness and Cost-Effectiveness, Deployment, and Ethics. JMIR Rehabil. Assist. Technol. 4, 1 (January 2017), e1.

[50]

Johanna Meurer, Claudia Müller, Carla Simone, Ina Wagner, and Volker Wulf. 2018. Designing for Sustainability: Key Issues of ICT Projects for Ageing at Home. Comput. Support. Coop. Work CSCW 27, 3-- 6 (December 2018), 495--537.

[51]

Mounir Mokhtari, Romain Endelin, Hamdi Aloulou, and Thibaut Tiberghien. 2015. Measuring the Impact of ICTs on the Quality of Life of Ageing People with Mild Dementia. In Smart Homes and Health Telematics, Cathy Bodine, Sumi Helal, Tao Gu and Mounir Mokhtari (eds.). Springer International Publishing, Cham, 103--109.

[52]

Kellie Morrissey and John McCarthy. 2015. Creative and Opportunistic Use of Everyday Music Technologies in a Dementia Care Unit. In Proceedings of the 2015 ACM SIGCHI Conference on Creativity and Cognition - C&C '15, ACM Press, Glasgow, United Kingdom, 295--298.

Digital Library

[53]

Kellie Morrissey, John McCarthy, and Nadia Pantidi. 2017. The Value of Experience-Centred Design Approaches in Dementia Research Contexts. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems - CHI '17, ACM Press, Denver, Colorado, USA, 1326--1338.

Digital Library

[54]

Kellie Morrissey, Gavin Wood, David Green, Nadia Pantidi, and John McCarthy. 2016. "I'm a rambler, I'm a gambler, I'm a long way from home": The Place of Props, Music, and Design in Dementia Care. ACM Press, 1008--1020.

Digital Library

[55]

Corinna Ogonowski, Konstantin Aal, Daryoush Vaziri, Thomas Von Rekowski, Dave Randall, Dirk Schreiber, Rainer Wieching, and Volker Wulf. 2016. ICT-Based Fall Prevention System for Older Adults: Qualitative Results from a Long-Term Field Study. ACM Trans. Comput.-Hum. Interact. 23, 5 (October 2016), 1--33.

Digital Library

[56]

Ángel C. Pinto-Bruno, J. Antonio García-Casal, Emese Csipke, Cristina Jenaro-Río, and Manuel FrancoMartín. 2017. ICT-based applications to improve social health and social participation in older adults with dementia. A systematic literature review. Aging Ment. Health 21, 1 (January 2017), 58--65.

[57]

Volkmar Pipek. 2005. From tailoring to appropriation support: negotiating groupware usage. Oulun Yliopisto, Oulu.

[58]

Philippe H. Robert, Alexandra Konig, Helene Amieva, Sandrine Andrieu, Francois Bremond, Roger Bullock, Mathieu Ceccaldi, Bruno Dubois, Serge Gauthier, Paul-Ariel Kenigsberg, Stephane Nave, Jean M. Orgogozo, Julie Piano, Michel Benoit, Jacques Touchon, Bruno Vellas, Jerome Yesavage, and Valeria Manera. 2014. Recommendations for the use of Serious Games in people with Alzheimer's Disease, related disorders and frailty. Front. Aging Neurosci. 6, (2014), 54.

[59]

Qingwei Ruan, Zhuowei Yu, Ma Chen, Zhijun Bao, Jin Li, and Wei He. 2015. Cognitive frailty, a novel target for the prevention of elderly dependency. Ageing Res. Rev. 20, (March 2015), 1--10.

[60]

Ts Sathyanarayana Rao, Ks Jacob, Ks Shaji, M. S. V. K Raju, AjitV Bhide, GPrasad Rao, Gautam Saha, and Mukesh Jagiwala. 2017. Dementia and the international classification of diseases-11 (beta version). Indian J. Psychiatry 59, 1 (2017), 1.

[61]

Marén Schorch, Lin Wan, David William Randall, and Volker Wulf. 2016. Designing for Those who are Overlooked - Insider Perspectives on Care Practices and Cooperative Work of Elderly Informal Caregivers. ACM Press, 785--797.

Digital Library

[62]

Richard Schulz and Lynn M. Martire. 2004. Family caregiving of persons with dementia: prevalence, health effects, and support strategies. Am. J. Geriatr. Psychiatry Off. J. Am. Assoc. Geriatr. Psychiatry 12, 3 (June 2004), 240--249.

[63]

Panote Siriaraya and Chee Siang Ang. 2014. CHI 2014, one of a CHInd: conference proceedings: Toronto, Canada, April 26 - May 1, 2014?; the 32nd Annual ACM Conference on Human Factors in Computing Systems. Assoc. for Computing Machinery, New York, NY.

[64]

Karin Slegers, Andrea Wilkinson, and Niels Hendriks. 2013. Active collaboration in healthcare design: participatory design to develop a dementia care app. ACM Press, 475.

Digital Library

[65]

Silvia Sörensen and Yeates Conwell. 2011. Issues in Dementia Caregiving: Effects on Mental and Physical Health, Intervention Strategies, and Research Needs. Am. J. Geriatr. Psychiatry 19, 6 (June 2011), 491--496.

[66]

Gunnar Stevens, Volkmar Pipek, and Volker Wulf. 2010. Appropriation Infrastructure: Mediating Appropriation and Production Work. J. Organ. End User Comput. 22, 2 (April 2010), 58--81.

Digital Library

[67]

Elizabeth Stowell, Yixuan Zhang, Carmen CastanedaSceppa, Margie Lachman, and Andrea G. Parker. 2019. Caring for Alzheimer's Disease Caregivers: A Qualitative Study Investigating Opportunities for Exergame Innovation. ArXiv190809984 Cs (August 2019). Retrieved from http://arxiv.org/abs/1908.09984

[68]

Sabine Sütterlin, Iris Hossmann, Reiner Klingholz, and Berlin-Institut für Bevölkerung und Entwicklung. 2011. Demenz-Report: wie sich die Regionen in Deutschland, Österreich und der Schweiz auf die Alterung der Gesellschaft vorbereiten können. BerlinInstitut für Bevölkerung und Entwicklung, Berlin.

[69]

David Unbehaun, Konstantin Aal, Daryoush Daniel Vaziri, Rainer Wieching, Peter Tolmie, and Volker Wulf. 2018. Facilitating Collaboration and Social Experiences with Videogames in Dementia: Results and Implications from a Participatory Design Study. Proc. ACM Hum.-Comput. Interact. 2, CSCW (November 2018), 1--23.

Digital Library

[70]

David Unbehaun, Konstantin Aal, Daryoush Daniel Vaziri, Rainer Wieching, Peter Tolmie, and Volker Wulf. 2018. Facilitating Collaboration and Social Experiences with Videogames in Dementia: Results and Implications from a Participatory Design Study. Proc. ACM Hum.-Comput. Interact. 2, CSCW (November 2018), 1--23.

Digital Library

[71]

David Unbehaun, Daryoush Vaziri, Konstantin Aal, Qinyu Li, Rainer Wieching, and Volker Wulf. 2018. MobiAssist-ICT-based Training System for People with Dementia and Their Caregivers: Results from a Field Study. In Proceedings of the 2018 ACM Conference on Supporting Groupwork, ACM, 122-- 126.

Digital Library

[72]

David Unbehaun, Daryoush Vaziri, Konstantin Aal, Qinyu Li, Rainer Wieching, and Volker Wulf. 2018. Video-game based Exergames for People with Dementia and Their Caregivers. ACM Press, 401--405.

Digital Library

[73]

David Unbehaun, Daryoush Daniel Vaziri, Konstantin Aal, Rainer Wieching, Peter Tolmie, and Volker Wulf. 2018. Exploring the Potential of Exergames to affect the Social and Daily Life of People with Dementia and their Caregivers. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems - CHI '18, ACM Press, Montreal QC, Canada, 1--15.

Digital Library

[74]

Daryoush D. Vaziri, Konstantin Aal, Corinna Ogonowski, Thomas Von Rekowski, Michael Kroll, Hannah R. Marston, Rakel Poveda, Yves J. Gschwind, Kim Delbaere, Rainer Wieching, and Volker Wulf. 2016. Exploring user experience and technology acceptance for a fall prevention system: results from a randomized clinical trial and a living lab. Eur. Rev. Aging Phys. Act. 13, 1 (December 2016).

[75]

Marjolein de Vugt and Rose-Marie Dröes. 2017. Social health in dementia. Towards a positive dementia discourse. Aging Ment. Health 21, 1 (January 2017), 1--3.

[76]

Jayne Wallace, Anja Thieme, Gavin Wood, Guy Schofield, and Patrick Olivier. 2012. Enabling self, intimacy and a sense of home in dementia: an enquiry into design in a hospital setting. In Proceedings of the 2012 ACM annual conference on Human Factors in Computing Systems - CHI '12, ACM Press, Austin, Texas, USA, 2629.

Digital Library

[77]

Jayne Wallace, Peter C. Wright, John McCarthy, David Philip Green, James Thomas, and Patrick Olivier. 2013. A design-led inquiry into personhood in dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems - CHI '13, ACM Press, Paris, France, 2617.

Digital Library

[78]

Daniel Welsh, Kellie Morrissey, Sarah Foley, Roisin McNaney, Christos Salis, John McCarthy, and John Vines. 2018. Ticket to Talk: Supporting Conversation between Young People and People with Dementia through Digital Media. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems - CHI '18, ACM Press, Montreal QC, Canada, 1--14.

Digital Library

[79]

Volker Wulf, Claudia Müller, Volkmar Pipek, David Randall, Markus Rohde, and Gunnar Stevens. 2015. Practice-based computing: Empirically grounded conceptualizations derived from design case studies. In Designing Socially Embedded Technologies in the Real-World. Springer, 111--150.

[80]

Volker Wulf, Volkmar Pipek, Dave Randall, Markus Rohde, Kjeld Schmidt, and Gunnar Stevens (Eds.). 2018. Socio Informatics -- A Practice-based Perspective on the Design and Use of IT Artefacts. Oxford University Press, Oxford.

[81]

Volker Wulf, Markus Rohde, Volkmar Pipek, and Gunnar Stevens. 2011. Engaging with practices: design case studies as a research framework in CSCW. ACM Press, 505.

Digital Library

[82]

Naomi Yamashita, Hideaki Kuzuoka, Keiji Hirata, and Takashi Kudo. 2013. Understanding the conflicting demands of family caregivers caring for depressed family members. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems - CHI '13, ACM Press, Paris, France, 2637.

Digital Library

[83]

Naomi Yamashita, Hideaki Kuzuoka, Keiji Hirata, Takashi Kudo, Eiji Aramaki, and Kazuki Hattori. 2017. Changing Moods: How Manual Tracking by Family Caregivers Improves Caring and Family Communication. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems - CHI '17, ACM Press, Denver, Colorado, USA, 158-- 169.

Digital Library

[84]

Implementing-Assistive-Technology-in-DementiaCare.pdf. Retrieved July 23, 2019 from https://caregiversprommd-project.eu/wpcontent/uploads/Implementing-AssistiveTechnology-in-Dementia-Care.pdf

Cited By

Acuña Mendoza DTorres Brugés W(2024)ICT as a Dynamizing Axis in the Generation of Indicators for the Social Appropriation of Knowledge in the Research Groups of the University of La GuajiraSouthern perspective / Perspectiva austral10.56294/pa2024582(58)Online publication date: 28-Jul-2024
https://doi.org/10.56294/pa202458
Hundscheid MZhang LTummers-Heemels AIJsselsteijn W(2024)Mindful Waters: An Interactive Digital Aquarium for People with DementiaMultimodal Technologies and Interaction10.3390/mti80800658:8(65)Online publication date: 26-Jul-2024
https://doi.org/10.3390/mti8080065
Wasic CErzgräber RUnger-Büttner MDonath CBöhme HGraessel E(2024)What helps, what hinders?—Focus group findings on barriers and facilitators for mobile service robot use in a psychosocial group therapy for people with dementiaFrontiers in Robotics and AI10.3389/frobt.2024.125884711Online publication date: 21-Jun-2024
https://doi.org/10.3389/frobt.2024.1258847
Show More Cited By

Index Terms

Social Technology Appropriation in Dementia: Investigating the Role of Caregivers in Engaging People with Dementia with a Videogame-based Training System

Recommendations

Exploring the Potential of Exergames to affect the Social and Daily Life of People with Dementia and their Caregivers
CHI '18: Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

This paper presents the outcomes of an exploratory field study that examined the social impact of an ICT-based suite of exergames for people with dementia and their caregivers. Qualitative data was collected over a period of 8 months, during which time ...
Development of an ICT-based Training System for People with Dementia
DIS '19 Companion: Companion Publication of the 2019 on Designing Interactive Systems Conference 2019 Companion

Dementia affects societies and individuals in a variety of facets and challenges daily life interactions. A major goal of people conducting research in the fields of dementia is to reduce the daily challenges of people with dementia (PwD) and people who ...
MobiAssist - ICT-based Training System for People with Dementia and Their Caregivers: Results from a Field Study
GROUP '18: Proceedings of the 2018 ACM International Conference on Supporting Group Work

As a result of ageing societies, the prevalence of dementia, and accordingly the need of care is increasing rapidly. Here, the use of ICT-based technologies may facilitate and promote a self-sustaining life-style for people with dementia and their ...

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Conferences

CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

April 2020

10688 pages

ISBN:9781450367080

DOI:10.1145/3313831

General Chairs:
Regina Bernhaupt
Eindhoven University of Technology, Netherlands
,
Florian 'Floyd' Mueller
Monash University, Australia
,
David Verweij
Newcastle University, UK
,
Josh Andres
RMIT, Australia
,
Program Chairs:
Joanna McGrenere
University of British Columbia, Canada
,
Andy Cockburn
University of Canterbury, New Zealand
,
Ignacio Avellino
University of Maryland Baltimore County, USA
,
Alix Goguey
Grenoble Alpes University, France
,
Pernille Bjørn
University of Copenhagen, Denmark
,
Shengdong (Shen) Zhao
National University of Singapore, Singapore
,
Briane Paul Samson
Future University Hakodate, Japan & De La Salle University, Philippines
,
Rafal Kocielnik
University of Washington, USA

Copyright © 2020 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Sponsors

SIGCHI: ACM Special Interest Group on Computer-Human Interaction

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 23 April 2020

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Author Tags

Qualifiers

Research-article

Funding Sources

German Ministry of Education and Research

Conference

CHI '20

Sponsor:

SIGCHI

CHI '20: CHI Conference on Human Factors in Computing Systems

April 25 - 30, 2020

HI, Honolulu, USA

Acceptance Rates

Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

Upcoming Conference

CHI '25

Sponsor:
sigchi

CHI Conference on Human Factors in Computing Systems

April 26 - May 1, 2025

Yokohama , Japan

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

34
Total Citations
View Citations
871
Total Downloads

Downloads (Last 12 months)180
Downloads (Last 6 weeks)18

Reflects downloads up to 18 Nov 2024

Other Metrics

View Author Metrics

Citations

Cited By

Acuña Mendoza DTorres Brugés W(2024)ICT as a Dynamizing Axis in the Generation of Indicators for the Social Appropriation of Knowledge in the Research Groups of the University of La GuajiraSouthern perspective / Perspectiva austral10.56294/pa2024582(58)Online publication date: 28-Jul-2024
https://doi.org/10.56294/pa202458
Hundscheid MZhang LTummers-Heemels AIJsselsteijn W(2024)Mindful Waters: An Interactive Digital Aquarium for People with DementiaMultimodal Technologies and Interaction10.3390/mti80800658:8(65)Online publication date: 26-Jul-2024
https://doi.org/10.3390/mti8080065
Wasic CErzgräber RUnger-Büttner MDonath CBöhme HGraessel E(2024)What helps, what hinders?—Focus group findings on barriers and facilitators for mobile service robot use in a psychosocial group therapy for people with dementiaFrontiers in Robotics and AI10.3389/frobt.2024.125884711Online publication date: 21-Jun-2024
https://doi.org/10.3389/frobt.2024.1258847
Wilson MDoyle JTurner JNugent CO’Sullivan D(2024)Designing technology to support greater participation of people living with dementia in daily and meaningful activitiesDIGITAL HEALTH10.1177/2055207623122242710Online publication date: 15-Jan-2024
https://doi.org/10.1177/20552076231222427
Nevsky ABircanin FCruice MWilson SSimperl ENeate T(2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675598
Kim TKim HRoberts AJacobs MKay M(2024)Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal AgitationProceedings of the ACM on Human-Computer Interaction10.1145/36373818:CSCW1(1-26)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637381
Smriti DWang LHuh-Yoo J(2024)Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With DementiaProceedings of the ACM on Human-Computer Interaction10.1145/36373258:CSCW1(1-34)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637325
Cherian JRay SMernar TTaele PMach HKoh JYe PHammond T(2024)A Step Toward Better Care: Understanding What Caregivers and Residents in Assisted Living Facilities Value in Health Monitoring SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36372908:CSCW1(1-29)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637290
Wang LSmriti DYuan HHuh-Yoo J(2024)Artificial Intelligence Systems for Supporting Informal Caregivers of People Living with Alzheimer's Disease or Related Dementias: A Systematic ReviewExtended Abstracts of the CHI Conference on Human Factors in Computing Systems10.1145/3613905.3650846(1-11)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3650846
Houben MBrankaert RGosen Mvan Overloop VIJsselsteijn W(2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642556
Show More Cited By

View Options

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

HTML Format

View this article in HTML Format.

Media

Figures

Other

Tables

View Table of Contents