research-article

"It's good to know you're not a stranger every time": Communication about Values Between Patients with Multiple Chronic Conditions and Healthcare Providers

Authors:

Andrew BL Berry,

Catherine Y. Lim,

Andrea L. Hartzler,

Edward H. Wagner,

James D. RalstonAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 1, Issue CSCW

Article No.: 23, Pages 1 - 20

https://doi.org/10.1145/3134658

Published: 06 December 2017 Publication History

Abstract

When patients' decisions about health care priorities conflict with those of their health care providers, patients' health outcomes suffer. Patients' values for health and well-being influence their healthcare priorities, but recent work suggests that the values discussed in clinical settings do not reflect the full breadth of patients' values. To address an evidence gap regarding how discussions about values occur in clinical settings, we conducted a field study with patients with multiple chronic conditions and their health care providers, including clinical observations, interviews, and home visits. We report on the extent to which certain categories of patients' values identified in prior research were discussed in clinic visits. We then discuss how patients and providers coordinated their perspectives to establish connections among patients' values and health concerns. These findings have implications for the design of systems to support patient-provider communication to incorporate patients' values and promote concordant priorities for health care.

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Index Terms

"It's good to know you're not a stranger every time": Communication about Values Between Patients with Multiple Chronic Conditions and Healthcare Providers
1. Applied computing
  1. Life and medical sciences
    1. Consumer health
    2. Health care information systems
2. Human-centered computing
  1. Collaborative and social computing
    1. Collaborative and social computing theory, concepts and paradigms
      1. Computer supported cooperative work
    2. Empirical studies in collaborative and social computing

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 1, Issue CSCW

November 2017

2095 pages

EISSN:2573-0142

DOI:10.1145/3171581

Editors:
Clifford Lampe
University of Michigan
,
Jeff Nichols
Google
,
Karrie Karahalios
University of Illinois Urbana-Champaign
,
Geraldine Fitzpatrick
Vienna University of Technology
,
Uichin Lee
KAIST
,
Andres Monroy-Hernandez
Snap Inc.
,
Wolfgang Stuerzlinger
Simon Fraser University

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Copyright © 2017 ACM.

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Publication History

Published: 06 December 2017

Published in PACMHCI Volume 1, Issue CSCW

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https://dl.acm.org/doi/10.1145/3687055
Jo EZehrung RGenuario KPapoutsaki AEpstein D(2024)Exploring Patient-Generated Annotations to Digital Clinical Symptom Measures for Patient-Centered CommunicationProceedings of the ACM on Human-Computer Interaction10.1145/36869978:CSCW2(1-26)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3686997
Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
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https://doi.org/10.3390/healthcare11162362
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