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Examining Self-Tracking by People with Migraine: Goals, Needs, and Opportunities in a Chronic Health Condition

Authors:

Jessica Schroeder,

Chia-Fang Chung,

Daniel A. Epstein,

Natalia Murinova,

Sean A. MunsonAuthors Info & Claims

DIS '18: Proceedings of the 2018 Designing Interactive Systems Conference

Pages 135 - 148

https://doi.org/10.1145/3196709.3196738

Published: 08 June 2018 Publication History

Abstract

Self-tracked health data can help people and their health providers understand and manage chronic conditions. This paper examines personal informatics practices and challenges in migraine, a condition characterized by unpredictable, intermittent, and poorly-understood symptoms. To investigate how people with migraine track and use data related to their condition, we surveyed 279 people with migraine and conducted semi-structured interviews with 13 survey respondents and 6 health providers. We find four distinct goals people bring to tracking and data: 1) answering questions about migraines, 2) predicting and preventing migraines, 3) monitoring and managing migraines over time, and 4) enabling motivation and social recognition. Each goal suggests different needs for the design of tools to support migraine tracking. We also find needs resulting from an individual's goals evolving over time, their varied personal experiences, and their communication and collaboration with providers. We discuss these goals and needs in terms of opportunities for personal informatics tools to facilitate learning to: 1) avoid common pitfalls; 2) support customization and flexibility; 3) account for burden, negativity, and lapsing; and 4) support management with uncertainty.

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https://dl.acm.org/doi/10.1145/3660339
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Lin GLessard PLe MLi BChevalier FTruong KMariakakis A(2024)Functional Design Requirements to Facilitate Menstrual Health Data ExplorationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642282(1-15)Online publication date: 11-May-2024
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Index Terms

Examining Self-Tracking by People with Migraine: Goals, Needs, and Opportunities in a Chronic Health Condition
1. Human-centered computing

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cover image ACM Conferences

DIS '18: Proceedings of the 2018 Designing Interactive Systems Conference

June 2018

1418 pages

ISBN:9781450351980

DOI:10.1145/3196709

General Chairs:
Ilpo Koskinen
University of Twente
,
Youn-kyung Lim
KAIST
,
Program Chairs:
Teresa Cerratto-Pargman
Stockholm University
,
Kenny Chow
The Hong Kong Polytechnic University
,
William Odom
Simon Fraser University

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Cited By

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https://dl.acm.org/doi/10.1145/3660339
Oewel BArean PAgapie E(2024)Approaches for tailoring between-session mental health therapy activitiesProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642856(1-19)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642856
Lin GLessard PLe MLi BChevalier FTruong KMariakakis A(2024)Functional Design Requirements to Facilitate Menstrual Health Data ExplorationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642282(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642282
Sefidgar YCastillo CChopra SJiang LJones TMittal ARyu HSchroeder JCole AMurinova NMunson SFogarty J(2024)MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health ConditionProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642075(1-19)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642075
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https://dl.acm.org/doi/10.1016/j.chb.2023.108036
Ndlovu BChipangura BSingh S(2024)Factors Influencing Quantified SelfTechnology Adoption in Monitoring DiabetesProceedings of Ninth International Congress on Information and Communication Technology10.1007/978-981-97-3562-4_37(469-479)Online publication date: 27-Jul-2024
https://doi.org/10.1007/978-981-97-3562-4_37
Kabir KWiese J(2023)A Meta-Synthesis of the Barriers and Facilitators for Personal Informatics SystemsProceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies10.1145/36108937:3(1-35)Online publication date: 27-Sep-2023
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Karnatak NLoughrin BKuo TMateu-Silvernail OMedhi Thies IThies WJain M(2023) “Is it Even Giving the Correct Reading or Not?”: How Trust and Relationships Mediate Blood Pressure Management in IndiaACM Transactions on Computer-Human Interaction10.1145/360932730:6(1-27)Online publication date: 25-Sep-2023
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Rapp ABoldi A(2023)Exploring the Lived Experience of Behavior Change Technologies: Towards an Existential Model of Behavior Change for HCIACM Transactions on Computer-Human Interaction10.1145/360349730:6(1-50)Online publication date: 25-Sep-2023
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