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Connecting Those That Care: Designing for Transitioning, Talking, Belonging and Escaping

Published: 02 May 2017 Publication History

Abstract

Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping.

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    cover image ACM Conferences
    CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
    May 2017
    7138 pages
    ISBN:9781450346559
    DOI:10.1145/3025453
    This work is licensed under a Creative Commons Attribution International 4.0 License.

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    Published: 02 May 2017

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    1. carers
    2. co-design
    3. informal care
    4. qualitative study

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    Cited By

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    • (2024)Manipulative Design and Older Adults: Co-Creating Magic Machines to Understand Experiences of Online ManipulationProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3661513(668-684)Online publication date: 1-Jul-2024
    • (2024)Creating Resources for Designing with and for Care Ecologies in HCIProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3660709(3161-3178)Online publication date: 1-Jul-2024
    • (2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
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    • (2023)Designing for Peer-Led Critical Pedagogies in Computer-Mediated Support Groups for Home Care WorkersProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580881(1-18)Online publication date: 19-Apr-2023
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