Nothing Special   »   [go: up one dir, main page]

skip to main content
10.1145/3078072.3079727acmconferencesArticle/Chapter ViewAbstractPublication PagesidcConference Proceedingsconference-collections
research-article

Blending Methods: Developing Participatory Design Sessions for Autistic Children

Published: 27 June 2017 Publication History

Abstract

Over the past two years, we have engaged autistic children in a participatory design (PD) process to create their own, individual smart object. In this paper, we reflect on our methodological choices and how these came about. Describing the design process with one of our participants as a case, we show how we developed participatory activities by combining, blending, re-interpreting and adapting techniques and tools from a pool of methods on the basis of the characteristics of the child, our own skills as designers and the history and context of our collaboration. Reflecting on this practice retrospectively, we seek to make two contributions: firstly, we distill a repertoire of methodological building blocks which draw on our experience of co-designing with autistic children. Secondly, we present a visual tool that captures the process by which we combined, blended and interpreted these building blocks into coherent design activities with a view to provide systematic guidance for future work. While the work presented here is set within the context of designing with autistic children, we argue that the underlying approach can be applicable and useful in a wider co-design context.

References

[1]
Simon Baron-Cohen, Fiona J. Scott, Carrie Allison, Joanna Williams, Patrick Bolton, Fiona E. Matthews, and Carol Brayne. 2009. Prevalence of Autism-Spectrum Conditions: UK School-Based Population Study. The British Journal of Psychiatry 194 (2009), 500--509.
[2]
Laura Benton and Hilary Johnson. 2014. Structured approaches to participatory design for children: can targeting the needs of children with autism provide benefits for a broader child population? Instructional Science 42, 1 (Jan. 2014), 47--65.
[3]
Laura Benton and Hilary Johnson. 2015. Widening participation in technology design: A review of the involvement of children with special educational needs and disabilities. International Journal of Child-Computer Interaction 3, 4 (2015), 23--40.
[4]
Laura Benton, Asimina Vasalou, Rilla Khaled, Hilary Johnson, and Daniel Gooch. 2014. Diversity for Design: A Framework for Involving Neurodiverse Children in the Technology Design Process. In Proceedings of the 32Nd Annual ACM Conference on Human Factors in Computing Systems (CHI '14). ACM, NY, NY, USA, 3747--3756.
[5]
Sven Bölte, Ofer Golan, Matthew S. Goodwin, and Lonnie Zwaigenbaum. 2010. What can innovative technologies do for Autism Spectrum Disorders? Autism 14, 3 (May 2010), 155--159.
[6]
E. Brandt and C. Grunnet. 2000. Evoking the future: Drama and props in user centered design. In Proceedings of the 6th Biennial Participatory Design Conference. ACM, NY, NY, USA, 11--20.
[7]
Christian Dindler and Ole Sejer Iversen. 2007. Fictional Inquiry - design collaboration in a shared narrative space. CoDesign 3, 4 (Dec. 2007), 213--234.
[8]
Allison Druin. 1999. Cooperative Inquiry: Developing New Technologies for Children with Children. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '99). ACM, NY, NY, USA, 592--599.
[9]
Allison Druin. 2002. The Role of Children in the Design of New Technology. Behaviour and Information Technology 21, 1 (2002), 1--25. http://hcil.cs.umd.edu/trs/99--23/99--23.html
[10]
Pelle Ehn. 1989. Work-oriented design of computer artifacts. Ph.D. Dissertation. Arbetslivscentrum.
[11]
Christopher Frauenberger, Judith Good, Alyssa Alcorn, and Helen Pain. 2013. Conversing through and about technologies: Design critique as an opportunity to engage children with autism and broaden research(er) perspectives. International Journal of Child-Computer Interaction 1, 2 (May 2013), 38--49.
[12]
Christopher Frauenberger, Julia Makhaeva, and Katta Spiel. 2016. Designing Smart Objects with Autistic Children: Four Design Exposès. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). ACM, NY, NY, USA, 130--139.
[13]
Katie Gaudion, Ashley Hall, Jeremy Myerson, and Liz Pellicano. 2015. A designer's approach how can autistic adults with learning disabilities be involved in the design process? CoDesign 0, 0 (2015), 1--21.
[14]
Eija Kärnä, Jussi Nuutinen, Kaisa Pihlainen-Bednarik, and Virpi Vellonen. 2010. Designing Technologies with Children with Special Needs: Children in the Centre (CiC) Framework. In Proceedings of the 9th International Conference on Interaction Design and Children (IDC '10). ACM, NY, NY, USA, 218--221.
[15]
Wendy E. Keay-Bright. 2007. The Reactive Colours Project: Demonstrating Participatory and Collaborative Design Methods for the Creation of Software for Autistic Children. Digital Creativity 1, 2 (June 2007), 7--16. http://ijg.cgpublisher.com/product/pub.154/prod.17
[16]
Lorcan Kenny, Caroline Hattersley, Bonnie Molins, Carole Buckley, Carol Povey, and Elizabeth Pellicano. 2015. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism 20, 4 (2015), 1362361315588200.
[17]
Julie A. Kientz, Matthew S. Goodwin, Gillian R. Hayes, and Gregory D. Abowd. 2013. Interactive Technologies for Autism. Synthesis Lectures on Assistive, Rehabilitative, and Health-Preserving Technologies 2, 2 (2013), 1--177.
[18]
Morten Kyng. 2010. Bridging the Gap Between Politics and Techniques: On the next practices of participatory design. Scandinavian Journal of Information Systems 22, 1 (2010), 49--68.
[19]
Julia Makhaeva, Christopher Frauenberger, and Katta Spiel. 2016. Creating Creative Spaces for Co-designing with Autistic Children: The Concept of a "Handlungsspielraum". In Proceedings of the 14th Participatory Design Conference: Full Papers - Volume 1 (PDC '16). ACM, NY, NY, USA, 51--60.
[20]
Gary B. Mesibov, Victoria Shea, and Eric Schopler. 2005. The TEACCH Approach to Autism Spectrum Disorders. Springer Science & Business Media, Heidelberg.
[21]
Sarah Parsons, Nicola Yuill, Mark Brosnan, and Judith Good. 2015. Innovative technologies for autism: critical reflections on digital bubbles. Journal of Assistive Technologies 9, 2 (April 2015), 116--121.
[22]
Sathiyaprakash Ramdoss, Wendy Machalicek, Mandy Rispoli, Austin Mulloy, Russell Lang, and Mark O'Reilly. 2012. Computer-based interventions to improve social and emotional skills in individuals with autism spectrum disorders: A systematic review. Developmental Neurorehabilitation 15, 2 (2012), 119--135.
[23]
Elizabeth B.-N. Sanders, Eva Brandt, and Thomas Binder. 2010. A Framework for Organizing the Tools and Techniques of Participatory Design. In Proceedings of the 11th Biennial Participatory Design Conference (PDC '10). ACM, NY, NY, USA, 195--198.
[24]
Katta Spiel, Christopher Frauenberger, and Geraldine Fitzpatrick. 2017a. Experiences of autistic children with technologies. International Journal of Child-Computer Interaction 11 (Jan. 2017), 50--61.
[25]
Katta Spiel, Christopher Frauenberger, Eva Hornecker, and Geraldine Fitzpatrick. 2017b. When Empathy Is Not Enough: Assessing the Experiences of Autistic Children with Technologies. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, NY, NY, USA. Honorable Mention (best 4% of submissions).
[26]
Katta Spiel, Julia Makhaeva, and Christopher Frauenberger. 2016. Embodied Companion Technologies for Autistic Children. In Proceedings of the TEI '16: Tenth International Conference on Tangible, Embedded, and Embodied Interaction (TEI '16). ACM, NY, NY, USA, 245--252.
[27]
Katta Spiel, Laura Malinverni, Judith Good, and Christopher Frauenberger. 2017. Participatory Evaluation with Autistic Children. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, NY, NY, USA. Honorable Mention (best 4% of submissions).
[28]
H. van Rijn, F. Sleeswijk Visser, and P.J. Stappers. 2009. Connecting through interacting: Toys that help designers learn from children with autism by playing with them. In International Association of Societies of Design Research 2009: Rigor and Relevance in Design. Korean Society of Design Science, Seoul, South Korea, 2055--2064.
[29]
Helma van Rijn and Pieter Jan Stappers. 2008. Expressions of Ownership: Motivating Users in a Co-design Process. In Proceedings of the Tenth Anniversary Conference on Participatory Design 2008 (PDC '08). Indiana University, Indianapolis, IN, USA, 178--181. http://dl.acm.org/citation.cfm?id=1795234.1795266

Cited By

View all
  • (2025)Participatory design of augmented reality games for word learning in autistic children: the parental perspectiveEntertainment Computing10.1016/j.entcom.2024.10075652(100756)Online publication date: Jan-2025
  • (2024)Participatory and Inclusive Design Models from the Perspective of Universal Design for Children with Autism: A Systematic ReviewEducation Sciences10.3390/educsci1406061314:6(613)Online publication date: 6-Jun-2024
  • (2024)Participatory design that matters – with activism education of childrenProceedings of the Participatory Design Conference 2024: Full Papers - Volume 110.1145/3666094.3666108(221-233)Online publication date: 11-Aug-2024
  • Show More Cited By

Index Terms

  1. Blending Methods: Developing Participatory Design Sessions for Autistic Children

    Recommendations

    Comments

    Please enable JavaScript to view thecomments powered by Disqus.

    Information & Contributors

    Information

    Published In

    cover image ACM Conferences
    IDC '17: Proceedings of the 2017 Conference on Interaction Design and Children
    June 2017
    808 pages
    ISBN:9781450349215
    DOI:10.1145/3078072
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

    Sponsors

    Publisher

    Association for Computing Machinery

    New York, NY, United States

    Publication History

    Published: 27 June 2017

    Permissions

    Request permissions for this article.

    Check for updates

    Author Tags

    1. autism
    2. children
    3. participatory design

    Qualifiers

    • Research-article

    Funding Sources

    • Austrian Science Fund (FWF)

    Conference

    IDC '17
    Sponsor:
    IDC '17: Interaction Design and Children
    June 27 - 30, 2017
    California, Stanford, USA

    Acceptance Rates

    IDC '17 Paper Acceptance Rate 25 of 118 submissions, 21%;
    Overall Acceptance Rate 172 of 578 submissions, 30%

    Contributors

    Other Metrics

    Bibliometrics & Citations

    Bibliometrics

    Article Metrics

    • Downloads (Last 12 months)157
    • Downloads (Last 6 weeks)16
    Reflects downloads up to 21 Nov 2024

    Other Metrics

    Citations

    Cited By

    View all
    • (2025)Participatory design of augmented reality games for word learning in autistic children: the parental perspectiveEntertainment Computing10.1016/j.entcom.2024.10075652(100756)Online publication date: Jan-2025
    • (2024)Participatory and Inclusive Design Models from the Perspective of Universal Design for Children with Autism: A Systematic ReviewEducation Sciences10.3390/educsci1406061314:6(613)Online publication date: 6-Jun-2024
    • (2024)Participatory design that matters – with activism education of childrenProceedings of the Participatory Design Conference 2024: Full Papers - Volume 110.1145/3666094.3666108(221-233)Online publication date: 11-Aug-2024
    • (2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
    • (2024)"We are in this together": Supporting Neurodiverse Children in Participatory Design through Design PartneringProceedings of the 23rd Annual ACM Interaction Design and Children Conference10.1145/3628516.3659385(732-737)Online publication date: 17-Jun-2024
    • (2024)Technologies Supporting Social Play in Neurodiverse Groups of ChildrenProceedings of the 23rd Annual ACM Interaction Design and Children Conference10.1145/3628516.3655791(218-231)Online publication date: 17-Jun-2024
    • (2024)Lights, Camera, Access: A Closeup on Audiovisual Media Accessibility and AphasiaProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641893(1-17)Online publication date: 11-May-2024
    • (2024)A rapid-prototyping toolkit for people with intellectual disabilitiesInternational Journal of Human-Computer Studies10.1016/j.ijhcs.2024.103347192:COnline publication date: 1-Dec-2024
    • (2024)A First Step Towards an Ecosystem Meta-model for Human-Centered Design in Case of Disabled UsersEngineering Interactive Computer Systems. EICS 2023 International Workshops and Doctoral Consortium10.1007/978-3-031-59235-5_2(11-19)Online publication date: 8-Aug-2024
    • (2023)Engineering Car for Autistic ChildrenHighlights in Science, Engineering and Technology10.54097/hset.v37i.607537(202-207)Online publication date: 18-Mar-2023
    • Show More Cited By

    View Options

    Login options

    View options

    PDF

    View or Download as a PDF file.

    PDF

    eReader

    View online with eReader.

    eReader

    Media

    Figures

    Other

    Tables

    Share

    Share

    Share this Publication link

    Share on social media