Visual Impairments in Young Children: Fundamentals of and Strategies For Enhancing Development
Visual Impairments in Young Children: Fundamentals of and Strategies For Enhancing Development
Visual Impairments in Young Children: Fundamentals of and Strategies For Enhancing Development
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research-article2016
YECXXX10.1177/1096250616659121Young Exceptional ChildrenVisual Impairments in Young Children / Thompson and Merino
A
lthough it has proven to be a Information is available to help
“
rough journey, Julia wouldn’t understand a vision diagnosis
trade her two beautiful (Anthony, 2014); however, there is
children, Chelsea and Matthew, for little about practical techniques to
...VIs are ranked as the the world. When Julia served in the stimulate vision and therefore
military, she was prescribed a drug enhance the child’s overall
she believed may have caused serious development.
fourth most common complications during her pregnancy. According to information from
While she would later find she had the World Health Organization, the
been wrong about the drug itself worldwide rate of children with a VI
disability in the United causing complications, she had been is higher than that of the United
right about their presence. After her States, at nearly 19 million diagnosed
States and are viewed first child, Chelsea, was born, Julia
noticed a gray cloudiness in her
(American Optometric Association
[AOA], 2010). Moreover, 5% of
daughter’s eyes. Julia’s doctor children under the age of 4 years in
as the most common suggested Chelsea undergo a red the United States have a visual
reflex screening. The doctor soon disability (Erickson, Lee, & von
diagnosed the infant with congenital Schrader, 2015). With this seemingly
restricting condition during cataracts. When Julia gave birth to low percentage, it is interesting to
her second child, Matthew, she note that VIs are ranked as the
noticed the same gray muddiness in fourth most common disability in the
childhood his eyes. It wasn’t long before United States and are viewed as the
Matthew was also diagnosed with most common restricting condition
“
Children with a VI will
Causes and Risks
According to Gogate, Gilbert,
400 feet. A newborn’s vision is
limited to the distance between his
eyes and the face of the person
holding him (8-10 inches; Fantz,
1963). However, infants are born
and Zin (2011), VIs in infants
not experience the develop at 2 distinct times, either
with the ability to accommodate.
They can adjust their eyes to focus
during the prenatal or postnatal
on objects. As the eyes adjust, they
periods, and different causes of a VI
developmental trajectory are based on these periods of
demonstrate fixation, which is the
ability to retain a gaze on a light
development. Refer to Table 1 for
source or object. Visual searching is
more information regarding factors
of the eyes discussed which place an infant at high risk for
developed in combination with the
development of an infant’s fine
the development of a VI (AOA, 2010;
motor abilities over time. At 1 year, a
above, demonstrating Chong & Dai, 2014; Gogate et al.,
2011; Siatkowski, Good, Summers,
child’s visual acuity is typically
around 20/50 and will develop
Quinn, & Tung, 2013).
further with continual exercise and
very important differences engagement.
Children with a VI will not
Typical Visual
of which one should be experience the developmental
Development trajectory of the eyes discussed above,
demonstrating very important
cognizant At birth, the infant’s eye is the differences of which one should be
”
most fully developed organ in the cognizant (see Table 2; Elisa et al.,
body and will continue to mature 2002; Fazzi, 2002; Haibach, Wagner,
after birth through a complex & Lieberman, 2014; Hatton, Bailey,
Table 1
Risks Associated With Development of a VI in Infancy
Association Risk VI anomalies
“
when vision loss occurs in
Burchinal, & Ferrel, 1997; Heyl &
Hintermair, 2015). It is critical for
parents and professionals to view
each individual child’s needs as
to vision loss, they must be
consistently involved with the
environment and the people within it.
Julia fought to know which steps
infancy, the development unique and to be aware of periods in
overall development. The key sense
to take after the diagnosis of her
children’s VIs. Her doctor insisted
for learning and primary source for that Chelsea undergo surgery in an
of cognitive, motor, and sensory input is vision. The majority attempt to remove the cataracts
of a child’s learning is gained through when she was just 6 weeks old. While
the senses. Therefore, severely LV will the surgery improved Chelsea’s
social skills are altered, have a powerful effect on an eyesight to some extent, it could not
individual’s development (Alimović completely fix it. However, the slight
et al., 2013). When vision loss occurs change sparked hope in her mother.
often diminished in infancy, the development of Julia began to notice Chelsea’s
”
cognitive, motor, and social skills are increasing sensitivity to light.
altered, often diminished. To Eventually, the cloudiness in her eyes
compensate and make sure children started dissolving, revealing the
with VIs do not miss out or lag on beautiful blue tint Julia often
important developmental stages due received compliments for herself. The
Table 2
Developmental Differences in Infants and Young Children With a Visual
Impairment
Domain Differences
doctor warned that future surgeries Matthew as they were for his older
may be required to help develop sister, this was something Julia could
Chelsea’s eyesight even more. But at do to help him in the meantime.
that moment, Julia was thankful for
the success so far, even if Chelsea’s
vision had only improved from Corrective Measures
20/200 to 20/100.
Throughout Julia’s pregnancy It is important to provide infants
with Matthew, she knew he might and young children with a VI, a
face similar complications to his strong foundation for an efficient
sister’s. Matthew, being born with visual system by exploring options
cerebral palsy and having also been for corrective measures, which can be
diagnosed with congenital cataracts, done to improve vision. Possible
similarly underwent surgery at 7½ corrective measures include glasses,
weeks old. His surgery was not quite eye patches, medicine, and/or
as successful as Chelsea’s because he surgeries to correct or improve vision
still had a vision of 20/200 after the (Center for Parent Information and
procedure to remove the cataracts. Resources [CPIR], 2015). An
Yet, there was still good news; example of a surgical measure is the
Matthew’s right eye showed a removal of cataracts for a child who
slightly stronger visibility than his is born with congenital cataracts, as
left, and the family’s doctor suggested with Chelsea and Matthew.
covering Matthew’s right eye so the Corrective surgeries are suggested
left would develop strength. While within the first 2 months of life to
future surgeries were possible for help the brain process visual input
“
For a child with a VI,
and improved recovery of
impairment (Alimović et al., 2013).
A clear visual axis, the imaginary
line passing from the object seen
singing at night.
”
As months passed, Chelsea and disabilities (Adams & Tapia, 2013).
Matthew received regular visual tests The purpose of EI is to provide the
and attended therapy twice a week. necessary supports for both the child
The children’s doctor told Julia that and family to lessen the effects of the
when the children were slightly older, delay or impairment (Anthony, 2014).
she could look into glasses and With effective intervention, the overall
corrective lenses for them. Although long-term resources an individual with
Julia was troubled to recognize there a disability might need from the
was no definitive chance of a community are likely to be greatly
breakthrough for her children, she reduced.
felt hope when her doctor referred A key finding is that caregiver
Julia to a pediatric vision specialist. involvement and support is a
Julia found her vision specialist, significant factor in EI effectiveness
Mona, to be of great help as she (Hatton et al., 2013). The goal of EI
recommended engaging in EI with is for parents and professionals to
the children. Mona encouraged her work together to identify, develop,
to support the development of her and provide learning experiences,
children’s vision through continuous which promote the infant’s
stimulating activities, such as Julia development. EI can guide parents on
verbally telling Chelsea and Matthew how to effectively interact with young
what she was about to do before children to encourage sustained
making physical contact, always engagement with the environment.
providing plenty of light, and When an infant or toddler learns to
teaching them to touch many actively take part in his surroundings,
different textures. The children were growth and development are likely to
also exposed to many different noises flourish. The authors have
and sounds, the most frequent being collaborated and assembled a list of
Table 3
Preparing to Interact With Young Children With Visual Impairments
What Why How
The environment Encouraging visual stimulation in the environment is Increase or decrease lighting in the room.
vital. Preparing the child’s surroundings will ensure Use task lighting or highlight materials with a flashlight or
stimulation while interacting with objects and headlamp.
people. Be sure to avoid glare on windows, boards, and so on.
Provide contrasting backgrounds (i.e., dark sheet under a
toy, striped wallpaper)
The child Scheduling routines for caretaking tasks will increase Make sure child’s position laying, sitting, or standing
likelihood of a successful interaction. Choose a provides stability.
time when child is well rested, fed, and able to Switch child’s position often.
stay alert and responsive. Ensure position offers comfort and many different views
and perspectives.
Continually move to keep the child motivated.
The caregiver Similar to the environment, people within the Dress in bright and contrasting colors to attract the child.
environment can be a very crucial visual simulation Wear bright colored lipstick to draw attention to
tools. movement of the mouth.
Use very engaging and exciting facial expressions and
tone of voice.
The materials Evaluating size and type of materials to fit the child’s Consider which angle is best for objects and materials.
needs will help him or her stay focused and Choose different angles from which to display objects or
attentive to cues within the environment. position child to offer diversity.
Carefully choose colors of objects/materials (consider
black, white, and red).
Allow plenty of time for child to explore and show
response to materials.
Change materials when child does not seem interested.
Consider materials child enjoys most (i.e., parent’s faces,
own hands and feet).
Table 4
Additional Strategies for Support and Encouragement of Visual Stimulation
What How
Give voice cues often Frequently call out child’s name. Help him or her become accustomed to many voices and
to become aware of sounds associated with different activities.
Determine preferences Determine color, size, and shape preferences. Using the child’s preference will increase the
chance of a successful interaction.
Give choices Present child with different tools to accomplish a task. Help him or her learn that there are
many different tools to assist in completing a task.
Teach prepositions Read books and play games to help child begin to learn words such as in, out, around,
under, and over. This will support the child in his or her more limited management of the
environment.
Make a path Use a rope to create a game out of finding ways around the child’s environment. Give
praise and use encouraging, guiding words along the way.
Let them help clean up Help the child learn where things go. Teach to continually familiarize self with materials and
objects within the environment.
Play “Where’s the . . .?” Help the child learn a new environment and build confidence by identifying where objects
are in the room frequently.
Play “What’s gone?” or “Hide and seek” Help the child learn how to rely on his or her memory and own ability to notice a missing
or hidden object.
Make predictions Give the child opportunities to predict where certain objects will be within the environment.
Play “How does it feel?” Let the child feel and familiarize self with materials before an activity, discussing how each
object feels.
“
the intensity
Integrating Multiple Senses •• Bring child’s hands and fingers
to your face for contact
All children must learn to When working with young
children with a VI, it is crucial to
•• Run various materials on
child’s hands, arms, legs, or
encourage development through feet like a spoon or soft
integrate sensation, but stimulation of multiple senses. All blanket
children must learn to integrate •• Describe what you are doing
sensation, but even more so children and items the child is touching
even more so children with a VI, because their sense of sight to help him better “see” them.
can limit the development of other
senses. Encouraging children with
with a VI, because their VIs to use other senses, such as the
olfactory, kinesthetic, and tactile
Reading Signals and
sense of sight can limit senses, will help them learn how to Cues
access and process their environment
through multiple means. For a young child with a VI, the
the development of other Contrary to vision, touch is one awareness and response to
of the most developed of the senses intervention are two components to
as an infant experiences a successful interaction. A key
senses. responsiveness to touch at a mere 8 reaction to look for, and by far the
week’s gestation (Hertenstein, 2002). most challenging to recognize, is the
”
Parents and professional caregivers child’s signal that he or she is not
have the opportunity to integrate seeing an item. Are the child’s eyes
many tactile strategies into daily open and looking around? Does the
child blink when he or she sees the young child holds a book or toy
item or in response to light? Does the unusually close to her face often, and
child become quiet when light or an excitement increases, which is
object is presented? Does the child observed in “jabbering” or giggling
increase or decrease a behavior at the more when the object is closer, the
presentation of an object or light? It child would likely benefit from
is important to watch for head tilting having books or toys held in closer
or righting, head turning, visual proximity (American Foundation for
reach, swiping at or grasping objects, the Blind, n.d.). A child with a VI
and any other movements toward may also seem unusually “clumsy”
light and/or objects. These are motor by unintentionally hitting items or
responses which are indicators of bumping into objects as she becomes
whether or not the child sees the mobile, often causing short cries that
object and should be closely reflect frustration; to help keep the
monitored. child safe and to encourage her
In addition, when working with mobility, make sure the most
a child with a VI, it is critical to learn frequented areas of the child are
to read signals during an activity. baby proof and comfortable for her
Watching for signs of frustration, (CPIR, 2015). Because of the
fatigue, excitement, or pleasure from frustration that comes with any task
the child are all key components to a that would involve typical visual
successful intervention. There are abilities, such as self- or spoon
signs and strategies which can help feeding, children with a VI may cry
with this task, such as knowing the (CPIR, 2015). Being aware but
visual acuity of the infant and patient with the child at meal time or
evaluating the size, distance, and during a typically visually demanding
location of the object. If any of these activity and helping her by being
three conditions are not right for the more vocal could encourage her to
child, one can assume he or she is not complete the task. Another behavior
seeing the item and the caregiver to watch for that demonstrates
should make adjustments in the frustration is whether a child
environment to help the child. Some consistently rubs her eyes (CPIR,
observations to help understand 2015).
what the child may or may not be
seeing are described. For example,
find a toy that the infant often
Guidance for
studies to watch for tracking of the Practitioners
toy; if the child follows the toy, she is
likely seeing the object. However, if It is equally crucial for
the child no longer follows the toy or professionals working with children
becomes irritable by crying or with VIs to be aware of strategies to
moving her head, she may be having help support overall development.
trouble seeing it. For younger infants, Practitioners must be knowledgeable
following a human face may work in regard to the disability and be
better than following a toy (Rappo ready to modify the environment,
et al., 1996). Another way to assess materials, and everyday routines to
whether the infant is visualizing the best meet the needs of the child
activity is to watch her reaction with (Anthony, 2014). As the child grows
a book or toy she enjoys. If the and enters out-of-home care, he is
faced with many new obstacles. Julia has had to learn how to
Being aware of the support strategies improve her home for both children.
and activities used in the child’s With the advice from her vision
home setting and implementing them specialist, Julia has made changes
in the out-of-home-care setting can such as adding more lighting to the
have extremely positive effects. It is places in the house that the children
critical for parents and professionals frequent the most, as well as giving
to collaborate to support the child in both Chelsea and Matthew bracelets
every way possible. The that consist of small jingle bells. This
aforementioned considerations and has helped keep Julia aware of where
approaches to successful sensory both children are during playtime. To
stimulating activities should also be keep improving Chelsea’s and
used in the child care setting. Matthew’s sight, Julia continues to
More than anything, it is buy toys that offer sensory
important to meet children with VIs stimulation, such as a toy pig that
where they are developmentally, will play a song and vibrate if its
implement appropriate practices, set snout is pressed. Toys like the pig
them up for success, focus on the have caused Chelsea and Matthew to
positive, and continually monitor use their stronger senses (feeling the
and report progress to families. This vibration of the toy and hearing the
strong and collaborative effort music) to engage their sight. One of
between families and practitioners Julia’s favorite ways of spending time
will be what ultimately helps the with Chelsea and Matthew is in front
child with a VI to achieve optimal of her bathroom mirror, where the
development (Kesiktas, 2009). children delightfully squeal as they
Even though the children’s vision can move themselves as close as
has improved somewhat, Julia still needed to better examine details of
finds herself constantly trying to their own faces. To both Julia’s and
invent ways in which she can create their vision specialist’s joy, Julia has
an environment that will offer the noted that the distance of her
best help to her now 24-month old children’s face seems to move farther
and her 14-month old. Both Chelsea away from the mirror each day as
and Matthew are now walking, and their vision continues to improve.
Authors’ Note
You may reach Stacy D. Thompson by e-mail at stacyt@siu.edu.
References
Adams, R. C., & Tapia, C. (2013). Early intervention, IDEA Part C services,
and the medical home: Collaboration for best practices and best outcomes.
American Academy of Pediatrics, 132, e1073-e1088.
Alimović, S., Katušić, A., & Mejaški-Bošnjak, V. (2013). Visual stimulations’
critical period in infants with perinatal brain damage. NeuroRehabilitation,
33, 251-255.
American Foundation for the Blind. (n.d.). Promoting your baby’s growth and
development. Retrieved from http://www.familyconnect.org/parentsite.asp?
SectionID=75&TopicID=350&DocumentID=3900