6592coding Sheet
6592coding Sheet
6592coding Sheet
National Awareness and Early Diagnosis Initiative: Cancer Awareness Measures, Humber and Yorkshire Coast Cancer Network, 2010:
Special Licence Access
Cancer Research UK
Cancer Awareness
Measure (CAM)
Coding sheet
(for use with SPSS or EXCEL)
This survey instrument (CAM) was developed by Cancer Research UK, University College
London, Kings College London, and University of Oxford in 2007-2008.
Below is a format for recording the data of the CAM so that it is suitable
for depositing in the data archive. We are currently making
arrangements to deposit the data at the UK Data Archive and will
provide instructions on how to do this at a later date.
You can see that as well as numbers for coding the data, we are also
providing a set of correct ‘variable names’ (e.g. LumpC). Please use
these ‘variable names’ when recording your data.
For every question it is possible to code data as ‘refused’. Use this code
when the participant actively chooses not to respond. Where appropriate
there is a code for ‘don’t know’, please see relevant questions below.
For all other missing data just leave a blank.
Please store the data in either EXCEL or SPSS for transfer to the
archive. There is a template EXCEL and SPSS data file available, if you
require it.
We have not provided guidance about how the CAM should be scored,
but we are happy to give advice and can provide syntax files for coding
in SPSS.
• To code a variable that is not on the list code as ‘Other’ (code 17) and write the variable verbatim
in: SymptomO17 or SymptomO18. This can be done for 2 ‘other’ variables.
Lump/swelling 1
Pain 2
Bleeding 3
Cough/hoarseness 4
Change in bowel/bladder habits 5
Difficulty swallowing 6
Change in appearance of a mole 7
Sore that does not heal 8
Weight loss 9
Tiredness/fatigue 10
Nausea/sickness 11
Generally unwell 12
Bruising 13
Loss of appetite 14
Blurred vision 15
Feeling weak 16
Other 17
Nothing 18
Refusal 98
Don’t know 99
The following may or may not be warning signs for cancer. We are interested in your opinion:
Question followed by corresponding Scoring
SPSS/Excel Variable Name
Yes No Don’t know
If you noticed an unexplained lump or swelling how soon would you contact your doctor to make an appointment
to discuss it? Variable name: LumpTime
1 2 3 4 5 6 7 8 9 10
If you had unexplained pain how soon would you contact your doctor to make an appointment to discuss it?
Variable name: PainTime
1 2 3 4 5 6 7 8 9 10
If you had unexplained bleeding how soon would you contact your doctor to make an appointment to discuss it?
Variable name: BleedingTime
1 2 3 4 5 6 7 8 9 10
If you had a cough or hoarseness how soon would you contact your doctor to make an appointment to discuss
it? Variable name: CoughTime
1 2 3 4 5 6 7 8 9 10
If you noticed a change in bowel or bladder habits how soon would you contact your doctor to make an
appointment to discuss it? Variable name: BowelTime
1 2 3 4 5 6 7 8 9 10
If you had difficulty swallowing how soon would you contact your doctor to make an appointment to discuss it?
Variable name: SwallowingTime
1 2 3 4 5 6 7 8 9 10
If you noticed a change in the appearance of a mole how soon would you contact your doctor to make an
appointment to discuss it? Variable name: MoleTime
1 2 3 4 5 6 7 8 9 10
If you had a sore that did not heal how soon would you contact your doctor to make an appointment to discuss
it? Variable name: SoreTime
1 2 3 4 5 6 7 8 9 10
If you had unexplained weight loss how soon would you contact your doctor to make an appointment to discuss
it? Variable name: WeightTime
1 2 3 4 5 6 7 8 9 10
If you had a symptom that you thought might be a sign of cancer how soon would you contact your doctor to
make an appointment to discuss it? Variable name: CancerSignTime
1 2 3 4 5 6 7 8 9 10
Sometimes people put off going to see the doctor, even when they have a symptom that they think
might be serious. These are some of the reasons people give for delaying. Could you say if any of
these might put you off going to the doctor?
Scoring
Question followed by Yes often Yes No Don’t know
sometimes
SPSS/Excel variable name
Scoring
Question followed by Yes often Yes No Don’t know
sometimes
SPSS/Excel variable name
To code a variable that is not on the list code as ‘Other’ (code 25) and write the variable verbatim in:
RiskO25 or RiskO26. This can be done for 2 ‘other’ variables.
Risk Factor Code
Smoking 1
Exposure to another person’s 2
cigarette smoke (passive smoking)
Drinking alcohol 3
Not eating enough fruit and 4
vegetables
Eating red or processed meat 5
Being overweight 6
Getting sunburnt/exposure to the sun 7
Older age 8
Family history/having a close relative 9
with cancer/Hereditary
Infection with HPV (human 10
papillomavirus)
Not doing enough exercise/physical 11
activity
Diet (unspecified) 12
A high fat diet 13
A low fibre diet 14
Food additives 15
Being underweight 16
Genes/genetics 17
Infection with viruses 18
(Unspecified/Other)
Having many sexual partners 19
Taking HRT/the (contraceptive) pill 20
Living near power lines 21
Pollution 22
Risk Factor Code
Radiation 23
Stress 24
Other 25
Nothing 26
Refusal 98
Don’t know 99
Medical scientists suggest that these are some of the things that can increase the chance of getting
cancer. How much do you agree that each of these can increase the chance of getting cancer?
___ ___ ___ people out of 100 will develop cancer at some point in their life
Record the actual number (0-100) that the respondent gave as the answer in the
variable name: Incidence
Below are the variable names used in Q9, please turn to the next page for the
appropriate coding frame that accompanies these variable names.
Bladder 1
Bowel/colorectal/rectal 2
Brain 3
Breast 4
Cervical/cervix 5
Kidney 6
Leukaemia 7
Liver 8
Lung 9
Lymphoma 10
Melanoma 11
Mesothelioma (protective lining of the lung, stomach, heart) 12
Multiple myeloma 13
Non-Hodgkin’s lymphoma 14
Oesophagus/gullet/food pipe 15
Oral/mouth/oropharynx/lips/tongue 16
Ovarian 17
Pancreatic 18
Prostate 19
Skin 20
Stomach 21
Testicular 22
Throat 23
Uterus/endometrial/womb 24
Other 25
Refusal 98
Don’t know 99
Is there an NHS breast cancer screening programme?
Yes No Don’t know
Variable name: BreastScreening
3 2 1
If yes, at what age are women first invited for breast Age in
cancer screening? ________
years Refused Don’t know
For the age component of this question, please record
the actual age the respondent gave as the answer in
the variable name. 988 999
Variable name: BreastAge
Age in
If yes, at what age are women first invited for years Refused Don’t know
cervical cancer screening? _______
For the age component of this question, please
record the actual age the respondent gave as the
answer in the variable name 988 999
Variable name: CervicalAge
2. _____________________________
3. _____________________________
4. _____________________________
Data archive: Please use the following coding frame for transfer to the data archive –
1 2 3 4 5 6
6. Please tick the box which best describes your living arrangement:
Own Own Rent from Local Rent Squatting Other (e.g. living with
outright mortgage Authority/Housing privately family/friends)
Association
1 2 3 4 5 6
3 Unemployed 7 Student
1 2 3
10. Have you, your family or close friends had cancer? (please tick all that apply)
You Yes 1 No 2 Close Friend Yes 1 No 2
CancerYou CancerCloseFriend
Partner CancerPartner Yes 1 No 2 Other Friend Yes 1 No 2
CancerOtherFriend
Close family member Yes 1 No 2 Not sure 99
CancerCloseFamily CancerNotSure
Other family member Yes 1 No 2 Do not wish to answer 98
CancerOtherFamily CancerRefusal
11. How many years have you been living in the UK?
Variable name: YearsUK
1 English 5 Sylheti
2 Urdu 6 Cantonese
3 Punjabi 7 Other…………………..
4 Gujarati