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Toward Becoming a Better Self: Understanding Self-Tracking Experiences of Adolescents with Autism Spectrum Disorder Using Custom Trackers

Published: 20 May 2019 Publication History

Abstract

Adolescence is a challenging period, particularly for individuals with autism spectrum disorder (ASD), due to having little knowledge about themselves. Self-management is a strategy to enhance self-understanding through continuous self-monitoring, which can support adaptive transitions to adulthood. Meanwhile, the advent of digital self-tracking tools enables users to collect and reflect on data about themselves. In this work, we investigated how adolescents with ASD kept track of their everyday lives to better understand themselves using a custom self-tracking platform, OmniTrack, over a two-week period. Our findings indicate that personalized self-tracking experiences enable adolescents to monitor the detailed contexts, causes, and consequences of problematic situations; regulate negative emotion and anxiety while interacting with the tracker; and communicate through data with their caregivers, teachers, and therapists. Building on these findings, we suggest the design of a new form of flexible, scaffolded self-tracking technique that can inform both researchers for designing pervasive health technologies for adolescents with ASD and clinicians for guiding adolescents with ASD toward better self-management using such technologies.

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  • (2024)A Review and Comparative Study of Works that Care is Monitoring Detection and Therapy of Children with Autism Spectrum DisorderWSEAS TRANSACTIONS ON COMPUTER RESEARCH10.37394/232018.2024.12.2412(244-263)Online publication date: 7-Mar-2024
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    PervasiveHealth'19: Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare
    May 2019
    475 pages
    ISBN:9781450361262
    DOI:10.1145/3329189
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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    Published: 20 May 2019

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    Author Tags

    1. Autism
    2. adolescents
    3. participatory design workshop
    4. self-tracking

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    Cited By

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    • (2024)A Review and Comparative Study of Works that Care is Monitoring Detection and Therapy of Children with Autism Spectrum DisorderWSEAS TRANSACTIONS ON COMPUTER RESEARCH10.37394/232018.2024.12.2412(244-263)Online publication date: 7-Mar-2024
    • (2024)Citizen involvement in research on technological innovations for health, care or well-being: a scoping reviewHealth Research Policy and Systems10.1186/s12961-024-01152-422:1Online publication date: 2-Sep-2024
    • (2024)Transitioning Together: Collaborative Work in Adolescent Chronic Illness ManagementProceedings of the ACM on Human-Computer Interaction10.1145/36869568:CSCW2(1-24)Online publication date: 8-Nov-2024
    • (2024)Accessibility through Awareness of Noise Sensitivity Management and Regulation PracticesProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675630(1-12)Online publication date: 27-Oct-2024
    • (2024)Narrating Routines through Game Dynamics: Impact of a Gamified Routine Management App for Autistic IndividualsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642357(1-15)Online publication date: 11-May-2024
    • (2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
    • (2024)Factors Influencing Quantified SelfTechnology Adoption in Monitoring DiabetesProceedings of Ninth International Congress on Information and Communication Technology10.1007/978-981-97-3562-4_37(469-479)Online publication date: 27-Jul-2024
    • (2023)Discussing Social Media During Psychotherapy Consultations: Patient Narratives and Privacy ImplicationsProceedings of the ACM on Human-Computer Interaction10.1145/35794797:CSCW1(1-24)Online publication date: 16-Apr-2023
    • (2023)Love on the Spectrum: Toward Inclusive Online Dating Experience of Autistic IndividualsProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581341(1-15)Online publication date: 19-Apr-2023
    • (2023)RoutineAid: Externalizing Key Design Elements to Support Daily Routines of Individuals with AutismProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581048(1-18)Online publication date: 19-Apr-2023
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