research-article

Leveraging Participation: Supporting Skills Development of Young Adults with Intellectual Disability Using Social Media

Authors:

Andrew A. Bayor,

Laurianne Sitbon,

Bernd Ploderer,

Filip Bircanin,

Stewart Koplick,

Margot BreretonAuthors Info & Claims

ASSETS '19: Proceedings of the 21st International ACM SIGACCESS Conference on Computers and Accessibility

Pages 143 - 155

https://doi.org/10.1145/3308561.3353793

Published: 24 October 2019 Publication History

Abstract

Young adults with intellectual disability are keen users of social media. However, there is little understanding about how their skills and participation in social media might be leveraged to support further skills development. Employing a participatory approach through workshops with eleven participants and interviews with eight parents, we investigated what skills young adults desire and how they might be able to leverage their participation in YouTube and Facebook to develop these skills. We found that young adults want to develop social skills of such as playing sports or learning languages, but that leveraging social media participation to do this goes beyond their typical use, and requires both collaborative support and accessible design. Based on these findings, we propose and discuss a collaboration-in-the-loop framework that integrates support through personal networks and an accessible user interface design. We conclude with a reflection on designing to leverage participation, interests and competencies to support people with intellectual disability.

References

[1]

Amado, A.N., Stancliffe, R.J., McCarron, M. and McCallion, P. 2013. Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities. Intellectual and Developmental Disabilities. 51, 5 (Oct. 2013), 360--375.

[2]

Van Asselt-Goverts, A.E., Embregts, P.J.C.M. and Hendriks, A.H.C. 2015. Social networks of people with mild intellectual disabilities: characteristics, satisfaction, wishes and quality of life. Journal of Intellectual Disability Research. 59, 5 (May 2015), 450--461.

[3]

Bayor, A., Bircanin, F., Sitbon, L., Ploderer, B., Koplick, S. and Brereton, M. 2018. Characterizing Participation Across Social Media Sites Amongst Young Adults with Intellectual Disability. Proceedings of the 30th Australian Conference on Computer-Human Interaction (New York, NY, USA, 2018), 113--122.

Digital Library

[4]

Bayor, A.A., Sitbon, L., Ploderer, B., Bircanin, F. and Brereton, M. 2019. "TechShops" Engaging Young Adults with Intellectual Disability in Exploratory Design Research. Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems - CHI EA '19 (Glasgow, Scotland Uk, 2019), 1--8.

[5]

Bigby, C. 2008. Known well by no-one: Trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. Journal of Intellectual and Developmental Disability. 33, 2 (Jan. 2008), 148--157.

[6]

Bigby, C. 2012. Social inclusion and people with intellectual disability and challenging behaviour: A systematic review. Journal of Intellectual & Developmental Disability. 37, 4 (Dec. 2012), 360--374.

[7]

Blanchard, M., Metcalf, A., Degney, J., Herman, H., Burns, J. and others 2008. Rethinking the digital divide: findings from a study of marginalised young people's Information Communication Technology (ICT) use. Youth Studies Australia. 27, 4 (2008), 35.

[8]

Bonet-Codina, N., von Barnekow, A. and Tost, D. 2015. IntegraGame: a real-life inspired serious game for social and professional training of people with intellectual disability. Proceedings of the 3rd 2015 Workshop on ICTs for Improving Patients Rehabilitation Research Techniques (New York, NY, USA, 2015), 10--13.

Digital Library

[9]

Boulos, M.N.K. and Wheeler, S. The emerging Web 2.0 social software: an enabling suite of sociable technologies in health and health care education1. Health Information & Libraries Journal. 24, 1, 2--23.

[10]

Buschmann, L., Morales, L. and Kurniawan, S. 2014. Online Learning System for Teaching Basic Skills to People with Developmental Disabilities. Proceedings of the 16th International ACM SIGACCESS Conference on Computers & Accessibility (New York, NY, USA, 2014), 271--272.

Digital Library

[11]

Caton, S. and Chapman, M. 2016. The use of social media and people with intellectual disability: A systematic review and thematic analysis. Journal of Intellectual & Developmental Disability. 41, 2 (Apr. 2016), 125--139.

[12]

Chadwick, D., Wesson, C. and Fullwood, C. 2013. Internet Access by People with Intellectual Disabilities: Inequalities and Opportunities. Future Internet. 5, 3 (Jul. 2013), 376--397.

[13]

Chadwick, D.D. and Fullwood, C. 2017. An Online Life Like Any Other: Identity, Self-Determination, and Social Networking Among Adults with Intellectual Disabilities. Cyberpsychology, Behavior, and Social Networking. (Aug. 2017).

[14]

Chang, Y.-J., Kang, Y.-S., Chang, Y.-S. and Liu, H.-H. 2015. ARCoach 2.0: Optimizing a Vocational Prompting System Based on Augmented Reality for People with Cognitive Impairments. Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility - ASSETS '15 (Lisbon, Portugal, 2015), 313--314.

Digital Library

[15]

Charmaz, K. 2014. Constructing Grounded Theory. SAGE.

[16]

Convention on the Rights of Persons with Disabilities - Articles | United Nations Enable: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html. Accessed: 2019-03--10.

[17]

Davies, D.K., Stock, S.E., King, L.R., Brown, R.B., Wehmeyer, M.L. and Shogren, K.A. 2015. An Interface to Support Independent Use of Facebook by People With Intellectual Disability. Intellectual and Developmental Disabilities; Washington. 53, 1 (Feb. 2015), 30--41,86,88.

[18]

Didden, R., Scholte, R.H.J., Korzilius, H., de Moor, J.M.H., Vermeulen, A., O'Reilly, M., Lang, R. and Lancioni, G.E. 2009. Cyberbullying among students with intellectual and developmental disability in special education settings. Developmental Neurorehabilitation. 12, 3 (Jan. 2009), 146--151.

[19]

Duffy, P. 2008. Engaging the YouTube Google-Eyed Generation: Strategies for Using Web 2.0 in Teaching and Learning. Electronic Journal of e-Learning. 6, 2 (2008), 119--130.

[20]

Frauenberger, C., Makhaeva, J. and Spiel, K. 2017. Blending Methods: Developing Participatory Design Sessions for Autistic Children. Proceedings of the 2017 Conference on Interaction Design and Children (New York, NY, USA, 2017), 39--49.

Digital Library

[21]

Friedman, M.G. and Bryen, D.N. 2007. Web accessibility design recommendations for people with cognitive disabilities. Technology and Disability. 19, 4 (Jan. 2007), 205--212.

[22]

Holmes, K.M. and O'Loughlin, N. 2014. The experiences of people with learning disabilities on social networking sites. British Journal of Learning Disabilities. 42, 1 (Mar. 2014), 1--5.

[23]

Hong, H., Kim, J.G., Abowd, G.D. and Arriaga, R.I. 2012. Designing a social network to support the independence of young adults with autism. Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work - CSCW '12 (Seattle, Washington, USA, 2012), 627.

[24]

Intellectual Disability Definition: http://aaidd.org/intellectual-disability/definition. Accessed: 2019-03--25.

[25]

Kerr, S.J., Neale, H.R. and Cobb, S.V.G. 2002. Virtual Environments for Social Skills Training: The importance of scaffolding in practice. Proceedings of the Fifth International ACM Conference on Assistive Technologies (New York, NY, USA, 2002), 104--110.ACM SIGACCESS

[26]

Kow, Y.M. and Young, T. 2013. Media technologies and learning in the starcraft Esport community. Proceedings of the 2013 Conference on Computer Supported Cooperative Work (New York, NY, USA, 2013), 387--398.

Digital Library

[27]

Laiola Guimarães, R. and Britto Mattos, A. 2015. Exploring the Use of Massive Open Online Courses for Teaching Students with Intellectual Disability. Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility (New York, NY, USA, 2015), 343--344.

Digital Library

[28]

Lazar, A., Cornejo, R., Edasis, C. and Piper, A.M. 2016. Designing for the Third Hand: Empowering Older Adults with Cognitive Impairment through Creating and Sharing. Proceedings of the 2016 ACM Conference on Designing Interactive Systems - DIS '16 (Brisbane, QLD, Australia, 2016), 1047--1058.

Digital Library

[29]

Lazar, J., Kumin, L. and Feng, J.H. 2011. Understanding the computer skills of adult expert users with down syndrome: an exploratory study. The proceedings of the 13th international ACM SIGACCESS conference on Computers and accessibility (2011), 51--58.

Digital Library

[30]

Li-Tsang, C., Yeung, S., Chan, C. and Hui-Chan, C. 2005. Factors affecting people with intellectual disabilities in learning to use computer technology.

[31]

Lussier-Desrochers, D., Normand, C.L., Romero-Torres, A., Lachapelle, Y., Godin-Tremblay, V., Dupont, M.-È., Roux, J., Pépin-Beauchesne, L. and Bilodeau, P. 2017. Bridging the digital divide for people with intellectual disability. Cyberpsychology: Journal of Psychosocial Research on Cyberspace. 11, 1 (May 2017).

[32]

Marlow, J. and Dabbish, L. 2014. From rookie to all-star: professional development in a graphic design social networking site. Proceedings of the 17th ACM Conference on Computer Supported Cooperative Work & Social Computing ( New York, NY, USA,2014), 922--933.

[33]

McKenzie, K. 2007. digital divides: the implications for social inclusion. Learning Disability Practice (through 2013); London. 10, 6 (Jul. 2007), 16--21.

[34]

Morales-Villaverde, L.M., Caro, K., Gotfrid, T. and Kurniawan, S. 2016. Online Learning System to Help People with Developmental Disabilities Reinforce Basic Skills. Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility - ASSETS '16 (Reno, Nevada, USA, 2016), 43--51.

Digital Library

[35]

Muller, M., Ehrlich, K., Matthews, T., Perer, A., Ronen, I. and Guy, I. 2012. Diversity among enterprise online communities: collaborating, teaming, and innovating through social media. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (New York, NY, USA, 2012), 2815--2824.

Digital Library

[36]

Salmon, G., Ross, B., Pechenkina, E. and Chase, A.-M. 2015. The space for social media in structured online learning. Research in Learning Technology. 23, (2015). https://doi.org/10.3402/rlt.v23.28507.

[37]

Saridaki, M. and Meimaris, M. 2018. Digital Storytelling for the Empowerment of People with Intellectual Disabilities. Proceedings of the 8th International Conference on Software Development and Technologies for Enhancing Accessibility and Fighting Info-exclusion (New York, NY, USA, 2018), 161--164.

Digital Library

[38]

Seale, J. 2014. The role of supporters in facilitating the use of technologies by adolescents and adults with learning disabilities: a place for positive risk-taking? European Journal of Special Needs Education. 29, 2 (Apr. 2014), 220--236.

[39]

SEVENS, L., O'FLAHERTY, J.J. and VLIEGHER, A.D. 2016. Towards integrating people with intellectual disabilities in the digital world. Intelligent Environments 2016: Workshop Proceedings of the 12th International Conference on Intelligent Environments (2016), 348.

[40]

Shakespeare, T. 2006. The social model of disability. The disability studies reader. 2, (2006), 197--204.

[41]

Sharma, S., Srivastava, S., Achary, K., Varkey, B., Heimonen, T., Hakulinen, J., Turunen, M. and Rajput, N. 2016. Gesture-based Interaction for Individuals with Developmental Disabilities in India. Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility (New York, NY, USA, 2016), 61--70.

Digital Library

[42]

Sharma, S., Srivastava, S., Achary, K., Varkey, B., Heimonen, T., Hakulinen, J., Turunen, M. and Rajput, N. 2016. Kirana: A Gesture-based Market App for Life Skills Learning for Individuals with Developmental Disabilities. Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility (New York, NY, USA, 2016), 291--292.

Digital Library

[43]

Shpigelman, C.-N. and Gill, C.J. 2014. Facebook Use by Persons with Disabilities. Journal of Computer-Mediated Communication. 19, 3 (Apr. 2014), 610--624.

Digital Library

[44]

Simplican, S.C., Leader, G., Kosciulek, J. and Leahy, M. 2015. Defining social inclusion of people with intellectual and developmental disabilities: An ecological model of social networks and community participation. Research in Developmental Disabilities. 38, (Mar. 2015), 18--29.

[45]

Takahashi, I., Oki, M., Bourreau, B. and Suzuki, K. 2018. Designing Interactive Visual Supports for Children with Special Needs in a School Setting. Proceedings of the 2018 on Designing Interactive Systems Conference 2018 - DIS '18 (Hong Kong, China, 2018), 265--275.

Digital Library

[46]

Toshniwal, S., Dey, P., Rajput, N. and Srivastava, S. 2015. VibRein: An Engaging and Assistive Mobile Learning Companion for Students with Intellectual Disabilities. Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction on - OzCHI '15 (Parkville, VIC, Australia, 2015), 20--28.

Digital Library

[47]

Tuset, P., Barberán, P., Janer, L., Buscà, E., Delgado, S. and Vilà, N. 2010. Messenger visual: a pictogram-based IM service to improve communications among disabled people. Proceedings of the 6th Nordic Conference on Human-Computer Interaction: Extending Boundaries (New York, NY, USA, 2010), 797--800.

Digital Library

[48]

W3C Accessibility Standards Overview: https://www.w3.org/WAI/standards-guidelines/. Accessed: 2019-03--22.

[49]

Wenger, E. 2010. Communities of Practice and Social Learning Systems: the Career of a Concept. Social Learning Systems and Communities of Practice. Springer, London. 179--198.

[50]

Wilson, C., Brereton, M., Ploderer, B., Sitbon, L. and Saggers, B. 2017. Digital Strategies for Supporting Strengths- and Interests-based Learning with Children with Autism. Proceedings of the 19th International ACM SIGACCES Conference on Computers and Accessibility (New York, NY, USA, 2017), 52--61.

Digital Library

[51]

Wilson, N.J., Jaques, H., Johnson, A. and Brotherton, M.L. 2017. From Social Exclusion to Supported Inclusion: Adults with Intellectual Disability Discuss Their Lived Experiences of a Structured Social Group. Journal of Applied Research in Intellectual Disabilities. 30, 5 (Sep. 2017), 847--858.

[52]

Wobbrock, J.O., Gajos, K.Z., Kane, S.K. and Vanderheiden, G.C. 2018. Ability-based design. Communications of the ACM. 61, 6 (May 2018), 62--71.

Digital Library

[53]

Social Media App | Able to Include. http://able-to-include.com/accessible-services/application/social-network-app/. Accessed: 2019-03--22.

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Index Terms

Leveraging Participation: Supporting Skills Development of Young Adults with Intellectual Disability Using Social Media
1. Human-centered computing
  1. Human computer interaction (HCI)
    1. Empirical studies in HCI

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cover image ACM Conferences

ASSETS '19: Proceedings of the 21st International ACM SIGACCESS Conference on Computers and Accessibility

October 2019

730 pages

ISBN:9781450366762

DOI:10.1145/3308561

General Chair:
Jeffrey P. Bigham
Carnegie Mellon University., USA
,
Program Chairs:
Shiri Azenkot
Cornell Tech, USA
,
Shaun K. Kane
University of Colorado Boulder, USA

Copyright © 2019 ACM.

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Published: 24 October 2019

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ASSETS '19: The 21st International ACM SIGACCESS Conference on Computers and Accessibility

October 28 - 30, 2019

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ASSETS '19 Paper Acceptance Rate 41 of 158 submissions, 26%;

Overall Acceptance Rate 436 of 1,556 submissions, 28%

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Cited By

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https://dl.acm.org/doi/10.1145/3613904.3641930
Kantathanawat TTungkunanan P(2024)Addressing the Priority Needs of Educators in Delivering Sexuality Education to High School Students with Intellectual DisabilitiesAmerican Journal of Sexuality Education10.1080/15546128.2024.2386971(1-27)Online publication date: 3-Sep-2024
https://doi.org/10.1080/15546128.2024.2386971
Balasuriya SSitbon L(2023)Designing gardening applications to engage people with intellectual disability in gardening activitiesProceedings of the 35th Australian Computer-Human Interaction Conference10.1145/3638380.3638406(415-422)Online publication date: 2-Dec-2023
https://dl.acm.org/doi/10.1145/3638380.3638406
Koushik VKane S(2023)Ability + Motivation: Understanding Factors that Influence People with Cognitive Disabilities in Regularly Practicing Daily ActivitiesProceedings of the 20th International Web for All Conference10.1145/3587281.3587295(122-133)Online publication date: 30-Apr-2023
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Bayor ABrereton MSitbon LPloderer B(2023)ICT use and competencies of school children with intellectual disabilities in low-resource settings: the case of Ghana in sub-Saharan AfricaUniversal Access in the Information Society10.1007/s10209-023-01059-xOnline publication date: 28-Oct-2023
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Brunner MRietdijk RTogher L(2022)Training Resources Targeting Social Media Skills to Inform Rehabilitation for People Who Have an Acquired Brain Injury: Scoping ReviewJournal of Medical Internet Research10.2196/3559524:4(e35595)Online publication date: 28-Apr-2022
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Balasuriya SSitbon LBrereton M(2022)A Support Worker Perspective on Use of New Technologies by People with Intellectual DisabilitiesACM Transactions on Accessible Computing10.1145/352305815:3(1-21)Online publication date: 8-Jul-2022
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Colley MKränzle TRukzio E(2022)Accessibility-Related Publication Distribution in HCI Based on a Meta-AnalysisExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3519701(1-28)Online publication date: 27-Apr-2022
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Weber DBrereton MKanstrup A(2022)Developing visual tangible artefacts as an inclusive method for exploring digital activities with young people with learning disabilitiesBritish Journal of Learning Disabilities10.1111/bld.1250551:2(250-259)Online publication date: 9-Oct-2022
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