research-article

Knowing How Long a Storm Might Last Makes it Easier to Weather: Exploring Needs and Attitudes Toward a Data-driven and Preemptive Intervention System for Bipolar Disorder

Authors:

Dahlia Mukherjee,

Erika F. H. Saunders,

Saeed AbdullahAuthors Info & Claims

CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

Article No.: 496, Pages 1 - 12

https://doi.org/10.1145/3544548.3581563

Published: 19 April 2023 Publication History

Abstract

Bipolar disorder (BD) is a serious mental illness that requires life-long management. Manic and depressive mood episodes in BD are characterized by idiosyncratic behavioral changes. Identifying these early-warning signs is critical for effective illness management. However, there are unique design constraints for technologies focusing on preemptive assessment and intervention in BD given the need for data-intensive monitoring and balancing user agency. In this paper, we aim to establish acceptance, needs, and concerns regarding a preemptive assessment and intervention system to support longitudinal BD management. We interviewed 10 individuals living with BD. To ground the findings in lived experiences, we used a hypothetical assessment and intervention system focusing on online behaviors. Based on the data, we have identified requirements for effective behavioral monitoring across illness episodes. We have also established design recommendations to support dynamic, longitudinal interventions that can address the evolving user needs for life-long BD management.

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Cited By

Khoo YKang RReynolds TMentis H(2024)“That’s Kind of Sus(picious)”: The Comprehensiveness of Mental Health Application Users’ Privacy and Security ConcernsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642705(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642705
Brozena JBlair JRichardson TMatthews MMukherjee DSaunders EAbdullah S(2024)Supportive Fintech for Individuals with Bipolar Disorder: Financial Data Sharing Preferences for Longitudinal Care ManagementProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642645(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642645
Corti LOltmans RJung JBalayn AWijsenbeek MYang J(2024)``It Is a Moving Process": Understanding the Evolution of Explainability Needs of Clinicians in Pulmonary MedicineProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642551(1-21)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642551

Index Terms

Knowing How Long a Storm Might Last Makes it Easier to Weather: Exploring Needs and Attitudes Toward a Data-driven and Preemptive Intervention System for Bipolar Disorder
1. Human-centered computing
  1. Ubiquitous and mobile computing
    1. Ubiquitous and mobile computing systems and tools

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cover image ACM Conferences

CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

April 2023

14911 pages

ISBN:9781450394215

DOI:10.1145/3544548

Editors:
Albrecht Schmidt
LMU Munich, Germany60028717
,
Kaisa Väänänen
Tampere University, Finland60011170
,
Tesh Goyal
Google Research, USA60006191
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Per Ola Kristensson
University of Cambridge, UK60031101
,
Anicia Peters
University of Namibia, Namibia60072704
,
Stefanie Mueller
Massachusetts Institute of Technology, USA60022195
,
Julie R. Williamson
University of Glasgow, UK60001490
,
Max L. Wilson
University of Nottingham, UK60015138

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Published: 19 April 2023

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Cited By

Khoo YKang RReynolds TMentis H(2024)“That’s Kind of Sus(picious)”: The Comprehensiveness of Mental Health Application Users’ Privacy and Security ConcernsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642705(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642705
Brozena JBlair JRichardson TMatthews MMukherjee DSaunders EAbdullah S(2024)Supportive Fintech for Individuals with Bipolar Disorder: Financial Data Sharing Preferences for Longitudinal Care ManagementProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642645(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642645
Corti LOltmans RJung JBalayn AWijsenbeek MYang J(2024)``It Is a Moving Process": Understanding the Evolution of Explainability Needs of Clinicians in Pulmonary MedicineProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642551(1-21)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642551

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