We present 14 themes we developed from our collected data, organized in this section under the research question they address. Table
3 maps subsection numbers to the corresponding theme. For brevity, the subsection titles used in the paper are shortened versions of the full themes found in the table.
4.1 Smart home technology in patient rooms has a positive effect on patient wellbeing
Our initial hypothesis, based on the literature from section
2.1, was that SHT in the patient rooms would contribute to a positive experience for the patient; however, patient responses were even more positive than we expected. Patients were excited to talk about how controlling their environment led to feelings of independence and autonomy. They also spoke about the significant quality of life improvement and how having control made the room feel more at home. Additionally, we discovered that their remaining abilities dictate the preferred method for controlling the room and what they view as the most important feature. They even provided us with additional technology ideas for the room. We developed five themes that help to answer RQ1, described in the subsections below.
4.1.1 Independence, autonomy, and control.
Participants, who have recently had an injury or disorder causing new motor impairment, confirmed the finding from prior work that they struggle with their lost independence, autonomy, and control over their surroundings. Three patients elaborated on their initial feelings of hopelessness post-injury; however, having the SPR gave them the ability to control some aspects of their environment, which yielded positive feelings of independence and autonomy.
P19: Because it’s not fun when you’re in a position where you’re completely paralyzed. And all you have is your voice. That’s not, that’s not fun. But then, when you have a sense of control over something, so yeah, it does make me feel better. Like I still have, I still have control. A lot of times when you are in a hospital, you feel like you don’t have control over anything.
P11: Especially in my condition. I can’t walk by myself. I can’t get off the bed by myself. But having that iPad, I mean, the iPad next to me, so I can control some things, makes me feel a little powerful.
These patients communicated a complex combination of grappling with a major life transition and a sense of loss related to their changed physical ability, but also how the control afforded by the SPR might help to prevent those feelings from taking over.
4.1.2 Quality of life and feelings of at-homeness.
Patients felt that their SPRs provided a homey environment and were glad that the hospital had this infrastructure.
P3: Its great independence with being able to do this, it’s great. It made me feel so much more at home here. With all the things that we’re controlling in the room. It is a great feeling of independence and pushing forward. Another step towards something you can do when you’re in this condition.
Part of the SHT is a smart TV, Apple TV, and soundbar, which can all be controlled by touch or voice commands within the SPR app. Being able to easily control this entertainment package contributes to patients’ positive feelings toward their hospital room.
P6: There’s a lot of hours, just sitting here doing nothing. Yeah. So the better the entertainment, and television, and all that stuff is, the better your overall experience.
P17: You don’t have to just sit here and think about your injury because it’s hard to think about stuff like that. You can just have a TV and where it’s easy to control. So you can just like, I don’t know, just get your mind off of things. It’s nice.
While many hospitals offer entertainment options, the SPR is more accessible. This means that patients with motor disabilities can use the entertainment and accessibility features of the SPR to take their minds off the stressful circumstances of their condition.
4.1.3 The most important smart room feature differs by ability.
We anticipated that there might be a consensus among patients for the most important feature, but one did not emerge; six said blinds, another six said thermostats, two said lights, and one said voice control. Five patients would not identify a single feature stating that multiple or all of the smart features were the most important. Instead, participant responses were tied to performing a function they felt they could not accomplish easily without assistance.
P17: The thermostat is super cool. It’s just nice to be able to do it in the bed. You know, I don’t have to get up. It’s really hard; it takes a long time for me to get up.
Participants picked the most important features based on what they could control without the SHT. For example, P15 had no leg function but limited arm movement and hand dexterity, so recognized he could still use physical switches for the lights.
P15: And the most like useful, probably that is just like common, is probably the blinds because that’s the only thing I’ve done that I might not be able to do on my own. Like the lights I could do if I wanted to take the time to do it, you know like go all the way around the room, so definitely the blinds.
He perceived that the only way he could control the blinds was through the SPR app; thus they were the most important feature.
4.1.4 Abilities dictate the preferred method of control.
Such a wide range of injuries or disorders cause reduced motor function at many levels; the SPR needs to accommodate all of these patients. Patients highlighted issues with the current implementation and some even developed methods for making the technology more accessible for their needs.
Interviewer: Okay, so I noticed you’re using the app on your phone. That’s just your personal phone, right? That you use it on?
P15: I don’t like the iPad because it’s too big for me to like, hold.
Although P15 had full use of his arms, his limited hand and finger strength meant the hospital iPad was too big for him to hold. Luckily, he installed the SPR app on his phone — which he specifically bought sized for his abilities — and controlled the SPR from his device.
P2 also had limited dexterity in his hands and fingers. Despite this limitation, he demonstrated how the capacitive iPad touch screen enabled him to use the SHT. He was grateful, considering he could not use the traditional physical hospital buttons.
P2: I use a little bit of touchpad where I can, if I can touch it with my knuckle. [...] To move 40 channels, I can kind of scroll a little bit with my knuckle and try to get me close to the channel I want. And then, you know, voice command up or down to get me to the exact channel I want. But I just don’t have the dexterity to hit the buttons exactly. I usually hit the wrong button and go someplace I don’t want to go.
For P2 to control what he wanted in the room, he learned to use voice commands in combination with his knuckle. P6 also found a solution that allowed him to control the SPR app using the touch screen despite his limited hand function and finger dexterity.
P6: I have arm mobility. And the system that my daughter and I developed, she stuck that stylus in this piece of foam. [...] Most people, maybe they don’t need them; but I can’t operate this thing without something like that.
Simply pressing an iPad stylus into a stress ball was an accessible solution for P6; this solution could have helped P2 and others.
4.1.5 Ideas for additional technology.
Patients also proposed ideas for additional technology for controlling or sensing in their rooms. Eight patients noted they could only control the bed by the physical switches located in an awkward spot by their head, and that impaired arm or hand mobility limited access to them. They wanted bed control incorporated into the app.
P2: It [the smart room app] doesn’t control the bed at all, I’d like to be able to let my bed up and down. Which is really all I would do with it is just lift the bed up and down. But it doesn’t control a bed in the slightest. So that would be kind of nice to lay myself down and pick myself up a little bit more if I wanted to.
Other participants proposed adding additional smart features to the SPR including doors, fridges, faucets, and even a wireless smart pulse oximeter, and their enthusiasm was notable.
4.2 Technical support, training, software, and hardware issues are new challenges
For SPRs, the new technology brings new challenges. The introduction of SHT brings reliability concerns [
14]. Networked technologies do not have the same reliability as traditional controls, such as physical light switches. Beyond technical issues, there are problems with inadvertently placing the iPad out of reach of the patient. Additionally, SPRs require staff support for the SHT — training patients to use the technology. We developed four themes relating to SPR challenges, technical support, and onboarding.
4.2.1 Losing iPad access is a serious problem.
Maintaining access to the iPad was a critical issue. All but one patient (P8) we interviewed relied on the iPad to control their room’s SHT. P8 preferred not to use the iPad and instead used the physical remote or nurse call to control her environment. Patients described several scenarios where they had lost physical access to the iPad, usually because the hospital staff inadvertently placed the iPad out of their reach when helping transition the patient into or out of bed. If it stays out of reach when they return to their bed, the patient has lost the ability to control the room.
P20: They’re pretty good about making sure I have access to it. It’s been out of reach a couple of times, and the next time they come around or something. I don’t bother them to come and get it, I don’t make them make a special trip. But I’ll ask them to bring it over to me when they’re in here. And they can leave it close by.
Interviewer: If it’s not in reach does that kind of affect your mood at all? As far as not being able to control aspects of the room?
P20: Well, sure. Then I’ve lost my power.
The iPad and room infrastructure also suffer from common technological problems. It can become inoperative from an operating system or software malfunction or simply a dead battery.
P16: Last Saturday, our nurse had to check the bed plugins and all that. Well, she ended up unplugging something and plugged something else into that wall over there, into that bottom one [...] and it blew all the outlets. And it blew, and it took out the iPad, right. [...] So we were out the iPad from Saturday to Monday. Because there wasn’t anybody here to reset the iPad.
Patients who have become accustomed to controlling their space can lose that ability until staff fixes the issue.
4.2.2 The technology primarily works, but bugs and undesired behaviors still appear.
Every patient we interviewed praised having the ability to control their environment. Without the SHT, many would have relied on a caregiver or staff to do it for them. Nevertheless, any technology has the potential for bugs and undesired behavior. Participants provided valuable feedback on issues they identified while using the SHT. Four participants found a UI issue with the thermostat controls on the SPR app.
P15: The app works fine. The only problem with it is the temperature. [...] It was really frustrating that I couldn’t get it to work at all with the air.
The thermostat control bug is a minor annoyance but highlights that bugs exist. More alarming is when the undesired behavior undermines their ability to control the room; for example, the early voice control system needed much improvement. P2 solely used voice control due to his limited abilities; he described to us some of the issues he encountered using voice control:
P2: It doesn’t necessarily register my commands like, sometimes I say channel up. And it thinks I said “Chandler.” I don’t know why it thinks I said “Chandler.” And, it does nothing when it thinks I said “Chandler.”
P2: There is a function on it that’s frustrating to me: If I want to go to a certain channel, like channel 46, and I’m on channel 29, I have to go channel up, channel up, channel up, channel up. It won’t go directly to channel 46 for me, for whatever reason. And it takes the command, like it writes the command on the screen. So it takes it, I can clearly see that it’s taking the command, but it doesn’t do anything it just sits there.
Here P2’s only way to control his room is through a voice control plagued with bugs. These issues with voice control made controlling the room extremely burdensome. Worse is when the technology does not meet the user’s expectations, like when P2 realized the UI does not allow him to tune directly to a TV channel. Despite these challenges, the frustration was never so much that he stopped using it — the benefits to his independence, autonomy, and well-being outweighed the frustration. The voice control has since been upgraded, and our later interviews confirmed that the voice control system was much improved.
4.2.3 Onboarding process.
During the interviews, participants described that they learned how to use the SPR through an onboarding process. The onboarding process is generally good; patients could use the room in part because onboarding worked. However, we learned that:
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The timing of the onboarding is not always consistent.
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Caregivers do not always get the same training as patients.
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The information delivered is not always the same.
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Retention of the information by the patient is limited.
These observations demonstrate how the hospital staff can directly impact the patient’s comfort level with the technology in the room based on how they initially onboard and train the patient. For example, it is possible that P8 — who was highly reluctant to use the hospital iPad — did not understand the importance and capabilities of the iPad because she was not properly introduced to it and trained on it when she entered her room.
Interviewer: So, did anyone ever show you what’s on the iPad though? Or?
P8: No
Interviewer: No? Okay.
P8: Nobody showed me what was on this thing either [pointing to the hard-wired remote].
It appears that P8 was not properly onboarded to the SPR, or perhaps she was simply uninterested when the hospital staff wanted to introduce it; she was extremely hesitant to use any of the SPR features. Even when patients were introduced to the SPR features, they sometimes forgot how to control certain features and needed to be retrained or needed support because of a malfunction.
P4: Well, we have a problem because my iPad didn’t work. And um, they said that tech person couldn’t look at it until Monday. And then the tech person looked at it, and then I guess they got it going. [...] And I couldn’t hook my phone up to the hospital WiFi, because you need the iPad to do that and it wasn’t working. So, I just finally got WiFi yesterday afternoon. So, I’ve been having to use the old-school remote.
Furthermore, when hospital IT fixed the iPad, she was not trained on it, likely because the iPad was not ready when she was first admitted. This lack of training created even more confusion.
P4: They didn’t tell me which icon to hit so it took a while to find the right icon. [...] I tried about five or six before I went, oh, maybe it’s the U.
P6 expressed the need for additional training.
P6: At one point they sent up a guy from the physical therapy department who sat here and messed with it and got it working with the voice control, but I’ve long since forgotten how to do that.
For people less familiar with technology, a single training session may not be enough. It was useful when other hospital employees were familiar with the SPR. P3 was grateful that his nurse was able to help him with the iPad.
P3: But one thing that would be better with [the iPad] is with the brightness of the screen. It took me forever to find that, how to adjust the screen brightness. It was so dim. I couldn’t hardly read what was under everything. So I couldn’t find settings on it. And I’m not an Apple person. So, I didn’t know where to find settings on it. Luckily, last night, I finally had one of the nurses show me how to make it brighter.
Unsurprisingly, an increase in the amount and complexity of technology employed in a hospital environment increases the need for initial and ongoing training and support to maximize the value of the new technology. This new technology necessitates additional requirements and training for the hospital staff to help onboard, educate, and troubleshoot issues that arise with the technology for the patients.
4.2.4 People have broader expectations for onboarding and technical support than just how to use the app.
In addition to supporting the technology in the SPR, this additional technology appears to have also increased patient expectations for technical support by hospital staff beyond just troubleshooting the SHT of the room. For example, P6 had issues with the AirPlay feature on his cell phone connecting to the Apple TV. His PT helped to get it working on his device, but shortly after that, his device stopped working with AirPlay. P6 expects that there should be dedicated technical support to help troubleshoot these types of issues, even though the problem was with his personal device and not necessarily with the SPR.
P6: Anyway, somehow mirroring was important, and he had it working. And by the time he got out to the elevator, it wasn’t working. There was some thought that he might come back, but he hasn’t. And I don’t really want him to. It’d just be; I don’t want to take the time of somebody who’s a dedicated physical therapist, who just happens to know how this works, as opposed to having a more or less formal introduction to everything and support from...a computer geek.
This example demonstrates the expectation that technical support extends to any technology adding to the patient experience at the hospital, including personal devices. This new requirement creates an increased demand and a new staff role that hospital administrators must account for; they will have to set guidelines and policies for handling these technical support issues.
4.3 The hospital context presents unique problems for smart home technology
SHTs, by name and function, are designed primarily for the home. A home is a private and controllable space. Usually, the SHT in a home is selected, installed, and managed by a resident. When an organization scales up the SHT to an enterprise-level setting, such as a hospital, it creates new challenges. Here, residents only temporarily occupy the space; they are merely users of the technology with little control over its administration. Five themes — related to how SPR technology fits in a hospital setting — help answer RQ3.
4.3.1 The hospital is a hospital, not private or permanent like home.
Although having the ability to control elements of the environment does provide feelings of at-homeness, for two patients specifically, the hospital did not feel like home. P15 expressed positive feelings despite not feeling at home when he said, “Not necessarily like home, no. It’s more like a better feeling, I guess. Being able to not like stress about being able to turn off the lights and stuff like that.” P14 shared a similar perspective, “I mean, it’s a hospital no matter how you look at it.” Hospital designers intended the patient room to feel like a personal space, but that does not mean it truly is. It was apparent through the interviews that several patients felt the hospital iPad was not theirs, making them hesitant to use it.
Interviewer: How have you been controlling the elements of your room? Have you been using the iPad or mostly the remote?
P8: Remote
Interviewer: Remote, OK. Did they bring an iPad into your room? I guess the iPad is right here.
P8: Yeah, but that belongs to somebody else.
Interestingly, P8 uses the TV and the hard-wired bed remote — that is also hospital property; however, she will not use the hospital iPad because she feels it does not belong to her.
4.3.2 SPRs cause patients to question all aspects of the room.
Although we were trying to explore SHT specifically, the presence of the SHT seemed to prompt our participants to question whether any room feature was smart or not. All room elements — like the architectural design, bathroom fixtures, medical equipment, etc. — become part of the SPR. For example, four patients discussed the placement of the digital clock in the room:
P4: My biggest complaint is the placement of the clock that’s just really stupid. [...] I can’t see the hour, you know, and I see the minutes and the seconds, and I’m thinking you know. I woke up last night at 3:45 and I had no idea what “45” it was.
Another patient highlighted an architectural problem with the blinds in the room. The window is partitioned into four sections — separated by structural columns — with motorized smart blinds for each section; however, this creates a problem.
P15: Another thing about the blinds though is, I’ll be laying in bed and you see all those gaps. The sun will be like just exactly like in my eye. Like even with the blackout blinds all the way down there’s still a gap.
P15c: I had that problem yesterday. I was lying right here and the sun was coming through this little gap right here. I just had to scoot down a little bit, but it wasn’t that big of a deal.
This example highlights that there is no delineation between SHT and the traditional equipment in a hospital room. When hospital designers implement this technology into the patient room, the entire room becomes a smart space in the eyes of the inhabitants.
4.3.3 The smart room technology is an integration of several commercial OTS products, creating visible seams.
The SPR enables control over many aspects of the room through the iPad SPR app; however, there are still many features that patients want to be integrated into the app. As mentioned in
4.1.5, control of the hospital bed is one such feature. The underlying problem is that the bed manufacturer keeps their interface with the bed proprietary and will not allow the app development team to control the bed from the app. Edwards et al. mention this challenge of impromptu interoperability [
14]; many of the COTS SHTs and medical devices are incompatible and operate as isolated islands of functionality, creating visible seams and holes to the user.
Another issue with seamless integration is incorporating voice control into the SPR app. Since the iPad is an Apple device, the command to open the SPR app is, “Siri, open the smart room app.” Then once the app is open, it captures all further commands and processes them directly, bypassing Siri. The voice commands for the SPR app all begin with the hot word “Mac” or “Sam.” These hot words were a design choice made by the development team with input from the STs, who identified “Mac” and “Sam” as the most accessible names for individuals to say that have common speech impairments due to an SCI. However, this creates confusion about which hot word to use in what situation.
P2: And this is actually a little bit frustrating. You have to open Siri, and then tell Siri to open smart room. I don’t know why you can’t just open smart room. I mean, I don’t know why you have to go to Siri, then open smart room. But I’m sure it’s just the way the iPad works. And then the command of your smart room is “Mac” instead of “Siri.” So, you open with “Siri” and then you have to change channels with “Mac.” Which, I don’t even know why I have to call it a name. I don’t know why I can’t just go “volume up,” “volume down,” rather than “Mac, volume up, volume down.” But that’s what you do.
Seamless system integration is a recurring theme brought out through our interviews. The SPR is a conglomeration of many systems. Many of them work well together, like the lights, blinds, and TV; however, other technologies create challenges to integration, like the hospital bed and Apple’s Siri.
4.3.4 The technology in the room is not just limited to patients. Some visitors and hospital staff use it.
Introducing SHT into a shared space makes it a shared resource; any stakeholder entering the SPR becomes a potential user. Caregivers, staff, and other visitors all use the SPR app to control the room along with the patient. Furthermore, several examples emerged where the hospital staff used SHT for other tasks — namely patient education and rehabilitation. P1 and P7 spoke to us about how the patient educators would pull up iPad content to help them visually convey material during education sessions. P3 talked explicitly about how his OT was working with him and the SPR app as tools for his rehabilitation. With his neurological condition, he struggled with arm mobility and finger dexterity early on in his stay at the NRH; however, the desire to want to control aspects of his room led him to learn an adaptation of using his knuckle to control the iPad.
P3: Because it [hospital iPad] teaches me what fingers have held, what fingers I tried to use, and what I can’t in order to operate it. And I’m getting so I can get my thumb out there myself enough to use the thumb, but my finger can’t straighten enough to touch it directly like with my index finger or whatever. And so I’ve learned to use the top of my knuckle quite a bit to touch things.
He also spoke about how using the iPad helped him gain even more movement and dexterity as he continued pushing himself to do more and more, helping his rehabilitation.
4.3.5 A hospital is a trusted place.
As part of the study, we wanted to determine how the technology in patient rooms affected feelings of privacy and security and asked about it directly. Patients were aware of the hospital’s policies and procedures regarding patient discharge and preparing the room to receive the next patient. When the staff onboard the patient, the patient is notified that the hospital-furnished iPad and Apple TV will be “digitally reset” upon discharge, clearing all personal information and data from the systems. Since patients knew how the hospital would manage their data, they seemed to be more accepting of the privacy and security implications of using the SPR. Overwhelmingly — with 14 participants stating it clearly — they had no concerns with the privacy and security of the technology in their room. However, seven participants brought up how cameras and microphones could invade their privacy, and two showed interest in how the hospital uses their data. Four expressed concern with the security of their accounts on the iPad or Apple TV. Regardless, even though they brought up these privacy and security concerns, no participant indicated it was a significant enough issue to change their behavior or the way they used the smart features of the room.
This finding was surprising. We hypothesized that introducing SHT into patient rooms would create a breadth of new privacy and security challenges for the hospital to overcome patient fears. As we examined the data, we learned that because the hospital is a trusted place, patients are less concerned about their privacy and security. For P4, it was a defeatist attitude that there is no privacy in a hospital setting, “Yeah, you gave up all of it, so there’s no privacy.” Whereas for P6, it is that privacy and security is not a priority because their life was suddenly changed forever by an injury.
P6: Oh, I suppose there are a lot of things recorded on that, that one might consider rather embarrassing, but once you’re in a situation like this, it’s like, that’s the least of your problems because nobody really wants to see that stuff.
Lastly, P19 brought up that the reason privacy and security are not a concern is that it is just part of being in a hospital.
P19: It’s a hospital like they could watch, or they can see me. [...] I’m paralyzed, and let me tell you what, I have no dignity left. It is just part of being in the hospital when you are paralyzed.
Since the patients consider the hospital a trustworthy place — because they are there for medical care — they approach privacy and security concerns with a different perspective.