research-article

Data Contribution Summaries for Patient Engagement in Multi-Device Health Monitoring Research

Authors:

Johanna Graeber,

Farzaneh Farhadi,

Christopher N Bull,

Jan David SmeddinckAuthors Info & Claims

UbiComp/ISWC '21 Adjunct: Adjunct Proceedings of the 2021 ACM International Joint Conference on Pervasive and Ubiquitous Computing and Proceedings of the 2021 ACM International Symposium on Wearable Computers

Pages 536 - 541

https://doi.org/10.1145/3460418.3479371

Published: 24 September 2021 Publication History

Abstract

The rapid growth in the range of data measures from wearable and stationary sensing devices has led to the adoption of multiple devices in health research. Such multi-device setups present challenges in sustaining patient engagement to capture continuous and high-quality datasets. One approach is to present health data to patients throughout the study but often occurs upon study completion. We report on preliminary insights from a feasibility study (IDEA-FAST) where multiple devices were used by 141 patients in their free-living environments. Interviews with a subset of patients and clinicians highlight challenges and opportunities around participation, data use and interpretation, including understanding compliance and data explainability with patients. We propose that summarising metadata from device usage could foster engagement and scale across a range of technologies regardless of the specific measures or post-processing algorithms provided by devices.

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Cited By

Komalasari R(2024)In Pursuit of ExcellenceMulti-Sector Analysis of the Digital Healthcare Industry10.4018/979-8-3693-0928-5.ch005(133-163)Online publication date: 29-Mar-2024
https://doi.org/10.4018/979-8-3693-0928-5.ch005
Hinchliffe CRehman RPinaud CBranco DJackson DAhmaniemi TGuerreiro TChatterjee MManyakov NPandis IDavies KMacrae VAufenberg SPaulides EHildesheim HKudelka JEmmert KVan Gassen GRochester Lvan der Woude CReilmann RMaetzler WNg WDel Din S(2024)Evaluation of walking activity and gait to identify physical and mental fatigue in neurodegenerative and immune disorders: preliminary insights from the IDEA-FAST feasibility studyJournal of NeuroEngineering and Rehabilitation10.1186/s12984-024-01390-121:1Online publication date: 5-Jun-2024
https://doi.org/10.1186/s12984-024-01390-1
Krämer SKottwitz GWoźniak MMeyer JKoelle M(2024)Stepping on the scale? Only in the morning, of course! - Exploring the Lived Experience of Consumer Self-Tracking Technology in the Context of Citizen ScienceProceedings of the 13th Nordic Conference on Human-Computer Interaction10.1145/3679318.3685372(1-17)Online publication date: 13-Oct-2024
https://dl.acm.org/doi/10.1145/3679318.3685372
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cover image ACM Conferences

UbiComp/ISWC '21 Adjunct: Adjunct Proceedings of the 2021 ACM International Joint Conference on Pervasive and Ubiquitous Computing and Proceedings of the 2021 ACM International Symposium on Wearable Computers

September 2021

711 pages

ISBN:9781450384612

DOI:10.1145/3460418

Copyright © 2021 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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Published: 24 September 2021

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Innovative Medicines Initiative

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UbiComp '21

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UbiComp '21: The 2021 ACM International Joint Conference on Pervasive and Ubiquitous Computing

September 21 - 26, 2021

Virtual, USA

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Cited By

Komalasari R(2024)In Pursuit of ExcellenceMulti-Sector Analysis of the Digital Healthcare Industry10.4018/979-8-3693-0928-5.ch005(133-163)Online publication date: 29-Mar-2024
https://doi.org/10.4018/979-8-3693-0928-5.ch005
Hinchliffe CRehman RPinaud CBranco DJackson DAhmaniemi TGuerreiro TChatterjee MManyakov NPandis IDavies KMacrae VAufenberg SPaulides EHildesheim HKudelka JEmmert KVan Gassen GRochester Lvan der Woude CReilmann RMaetzler WNg WDel Din S(2024)Evaluation of walking activity and gait to identify physical and mental fatigue in neurodegenerative and immune disorders: preliminary insights from the IDEA-FAST feasibility studyJournal of NeuroEngineering and Rehabilitation10.1186/s12984-024-01390-121:1Online publication date: 5-Jun-2024
https://doi.org/10.1186/s12984-024-01390-1
Krämer SKottwitz GWoźniak MMeyer JKoelle M(2024)Stepping on the scale? Only in the morning, of course! - Exploring the Lived Experience of Consumer Self-Tracking Technology in the Context of Citizen ScienceProceedings of the 13th Nordic Conference on Human-Computer Interaction10.1145/3679318.3685372(1-17)Online publication date: 13-Oct-2024
https://dl.acm.org/doi/10.1145/3679318.3685372
Aryal SBlankenship JBachman SHwang SZhai YRichards JClay ILyden K(2024)Patient-centricity in digital measure development: co-evolution of best practice and regulatory guidancenpj Digital Medicine10.1038/s41746-024-01110-y7:1Online publication date: 16-May-2024
https://doi.org/10.1038/s41746-024-01110-y
Durango IR. Penichet VGallud J(2024)Exploring human-data interaction: an AI-enhanced systematic mappingUniversal Access in the Information Society10.1007/s10209-024-01179-yOnline publication date: 22-Nov-2024
https://doi.org/10.1007/s10209-024-01179-y
Graeber JWarmerdam EAufenberg SBull CDavies KDixon JEmmert KJudd CMaetzler CReilmann RNg WMacrae VMaetzler WKaduszkiewicz H(2023)Technology acceptance of digital devices for home use: Qualitative results of a mixed methods studyDIGITAL HEALTH10.1177/205520762311812399Online publication date: 13-Jun-2023
https://doi.org/10.1177/20552076231181239

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