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Investigation into Stress Triggers in Autistic Adults for the Development of Technological Self-Interventions

Published: 22 October 2023 Publication History

Abstract

Adults with autism spectrum disorder (ASD) face daily challenges dealing with stress, for example, at work, or in public spaces, which can be overwhelming in terms of coping with sensory overload. Technological interventions have been created in order to attempt to counter symptoms of stress, through improving cognition and functioning of target users. Mobile devices, virtual reality (VR) and augmented reality (AR) applications have demonstrated the ability to support and improve clinical practices through sensory based technologies. In this paper, we present the initial phase of research concerning an online survey conducted with over 200 autistic participants and caregivers. We report on the identification of currently used technological preferences, triggers associated with stress, issues regarding sensitivity and perception, the needs of caregivers, as well as the perceived potential for new technologies. The study has identified that sensitivity to sound and light remain key stress triggers for those on the autism spectrum.  Headphones and mobile devices were considered to be suitable methods of accessing multi-sensory stimuli to help manage stress.  Augmented Reality and VR were identified by autistic participants as technologies that might aid in the reduction of unpredictable stress-related events. The insights gained from the research will inform future research regarding the design of technological self-interventions for stress management in autistic adults.

References

[1]
Peppé S, McCann J, Gibbon F, O'Hare A, Rutherford M. Receptive and Expressive Prosodic Ability in Children With High-Functioning Autism. Journal of Speech, Language, and Hearing Research. 2007 Aug;50(4):1015–28.
[2]
Lipkin P, Law J, Marvin A, Rubenstein E, Toroney J. Auditory hypersensitivity issues in children with autism spectrum disorders (ASD): Characteristics and burden. Ann Neurol. 2016;80:S392.
[3]
Dawson G, Meltzoff AN, Osterling J, Rinaldi J, Brown E. Children with autism fail to orient to naturally occurring social stimuli. J Autism Dev Disord. 1998;28(6):479–85.
[4]
Mackay T, Ward J, Cole C, Mccutcheon M, Aitken K. GOOD AUTISM PRACTICE The Scottish Perspective. Good Autism Practice. 2013;(October).
[5]
DePape AMR, Hall GBC, Tillmann B, Trainor LJ. Auditory Processing in High-Functioning Adolescents with Autism Spectrum Disorder. Bremner A, editor. PLoS One. 2012 Sep 12;7(9):e44084.
[6]
The National Autistic Society. Sensory differences - NAS [Internet]. The National Autistic Society. 2016 [cited 2016 Jan 10]. Available from: http://www.autism.org.uk/about/behaviour/sensory-world.aspx
[7]
Morris R, Picard R. Managing Sound Sensitivity in Autism Spectrum Disorder: New Technologies for Customized Intervention by. MASSACHUSETTS INSTITUTE OF TECHNOLOGY; 2009.
[8]
Lord C, Charman T, Havdahl A, Carbone P, Anagnostou E, Boyd B, The Lancet Commission on the future of care and clinical research in autism. Vol. 399, The Lancet. 2022. p. 271–334.
[9]
Holt S, Yuill N. Facilitating Other-Awareness in Low-Functioning Children with Autism and Typically-Developing Preschoolers Using Dual-Control Technology. J Autism Dev Disord. 2014 Jan 12;44(1):236–48.
[10]
Hull L, Petrides K V., Allison C, Smith P, Baron-Cohen S, Lai MC, “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions. J Autism Dev Disord. 2017;47(8):2519–34.
[11]
Hull L, Petrides K v., Mandy W. The Female Autism Phenotype and Camouflaging: a Narrative Review. Rev J Autism Dev Disord. 2020;7(4):306–17.
[12]
Hirvikoski T, Blomqvist M. High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder. Autism. 2015;19(6):752–7.
[13]
Baron MG, Groden J, Groden G, Lipsitt LP. Stress and Coping in Autism. Stress and Coping in Autism. Oxford University Press; 2016.
[14]
Bishop-Fitzpatrick L, Mazefsky CA, Minshew NJ, Eack SM. The Relationship Between Stress and Social Functioning in Adults With Autism Spectrum Disorder and Without Intellectual Disability. Autism Research. 2015 Apr;8(2):164–73.
[15]
Robertson CE, Kravitz DJ, Freyberg J, Baron-Cohen S, Baker CI. Tunnel Vision: Sharper Gradient of Spatial Attention in Autism. Journal of Neuroscience. 2013 Apr 17;33(16):6776–81.
[16]
Shah A, Frith U. AN ISLET OF ABILITY IN AUTISTIC CHILDREN: A RESEARCH NOTE. Journal of Child Psychology and Psychiatry. 1983 Oct;24(4):613–20.
[17]
Verhage A, Noppe J, Feys Y, Ledegen E. Force, Stress, and Decision-Making Within the Belgian Police: the Impact of Stressful Situations on Police Decision-Making. J Police Crim Psychol. 2018 Dec 7;33(4):345–57.
[18]
Schoeffler FJ, Honda L, Collura JA. Credible Evidence Continues to Surface Regarding a Likely “Friendly Fire” Incident Along the Sesame Street and Shrine Corridor Area on June 30, 2013. In: Advances in Intelligent Systems and Computing. 2020. p. 353–61.
[19]
Bone D, Mertens J, Zane E, Lee S, Narayanan S, Grossman R. Acoustic-prosodic and physiological response to stressful interactions in children with autism spectrum disorder. Proceedings of the Annual Conference of the International Speech Communication Association, INTERSPEECH. 2017;2017-Augus(September):147–51.
[20]
Williams ZJ, He JL, Cascio CJ, Woynaroski TG. A review of decreased sound tolerance in autism: Definitions, phenomenology, and potential mechanisms. Neurosci Biobehav Rev. 2021;121(September 2020):1–17.
[21]
Oomen D, Nijhof AD, Wiersema JR. The psychological impact of the COVID-19 pandemic on adults with autism: a survey study across three countries. Mol Autism. 2021 Dec 3;12(1):21.
[22]
Zolyomi A, Begel A, Waldern JF, Tang J, Barnett M, Cutrell E, Managing stress: The needs of autistic adults in video calling. Proc ACM Hum Comput Interact [Internet]. 2019 Nov 7;3(CSCW):1–29. Available from: https://dl.acm.org/doi/10.1145/3359236
[23]
Das M, Tang J, Ringland KE, Piper AM. Towards Accessible Remote Work. Proc ACM Hum Comput Interact. 2021 Apr 13;5(CSCW1):1–30.
[24]
Kandalaft MR, Didehbani N, Krawczyk DC, Allen TT, Chapman SB. Virtual Reality Social Cognition Training for Young Adults with High-Functioning Autism. J Autism Dev Disord. 2013 Jan;43(1):34–44.
[25]
Siever D. Audio-Visual Entrainment: A Novel Way of Boosting Grades and Socialization While Reducing Stress in the Typical College Student. Biofeedback. 2012 Sep;40(3):115–24.
[26]
McCormack GL, Holsinger L. The Significance of Comforting Touch to Children with Autism: Sensory Processing Implications for Occupational Therapy. Open J Occup Ther. 2016 Apr 1;4(2).
[27]
García-Villamisar DA, Dattilo J. Effects of a leisure programme on quality of life and stress of individuals with ASD. Journal of Intellectual Disability Research. 2010 Jul;54(7):611–9.
[28]
Burke A. Zen shiatsu: A longitudinal case study measuring stress reduction in a child with autism spectrum disorder. International Journal of Therapeutic Massage and Bodywork: Research, Education, and Practice. 2014;7(4):23–8.
[29]
Poquérusse J, Azhari A, Setoh P, Cainelli S, Ripoli C, Venuti P, Salivary α-amylase as a marker of stress reduction in individuals with intellectual disability and autism in response to occupational and music therapy. Journal of Intellectual Disability Research. 2018;62(2):156–63.
[30]
Schaaf RC, Miller LJ. Occupational therapy using a sensory integrative approach for children with developmental disabilities. Ment Retard Dev Disabil Res Rev. 2005 Apr;11(2):143–8.
[31]
Geretsegger M, Elefant C, Mössler KA, Gold C. Music therapy for people with autism spectrum disorder. Vol. 2016, Cochrane Database of Systematic Reviews. 2014.
[32]
Alonso-Esteban Y, Alcantud-Marín F. Autism spectrum disorders and anxiety: measurement and treatment. In: Neural Engineering Techniques for Autism Spectrum Disorder. Elsevier; 2021. p. 315–32.
[33]
Deng L, Rattadilok P, Saputra Hadian G, Liu H. Effect of Sensory-based Technologies on Atypical Sensory Responses of Children with Autism Spectrum Disorder: A Systematic Review. In: 2021 5th International Conference on E-Society, E-Education and E-Technology. New York, NY, USA: ACM; 2021. p. 208–18.
[34]
Plasencia R, Herrera G, Navas-Moya P, López-Chico X. Virtualization of a Multisensory Environment for the Treatment of Stress in Children with Autism Through Interactive Simulation. In: Communications in Computer and Information Science. 2021. p. 417–29.
[35]
Bauer V, Bouchara T, Bourdot P. Extended Reality Guidelines for Supporting Autism Interventions Based on Stakeholders’ Needs. J Autism Dev Disord. 2022 Mar 4;(0123456789).
[36]
Carlier S, Van der Paelt S, Ongenae F, De Backere F, De Turck F. Empowering children with ASD and their parents: Design of a serious game for anxiety and stress reduction. Sensors (Switzerland). 2020;20(4).
[37]
Mpofu E, Cagle R, Chiu CY, Li Q, Holloway L. Digital Tools Applications to Occupational Health and Safety for People with Autism. In: Agile Coping in the Digital Workplace. Cham: Springer International Publishing; 2021. p. 147–65.
[38]
Gillespie-Lynch K, Kapp SK, Shane-Simpson C, Smith DS, Hutman T. Intersections between the autism spectrum and the internet: Perceived benefits and preferred functions of computer-mediated communication. Intellect Dev Disabil. 2014;52(6):456–69.
[39]
Alper M. Inclusive sensory ethnography: Studying new media and neurodiversity in everyday life. New Media Soc. 2018 Oct 18;20(10):3560–79.
[40]
Autistica. Home - Autism | Autistica [Internet]. Autistica. 2022 [cited 2022 Apr 6]. Available from: https://www.autistica.org.uk/
[41]
Sense Scotland. Sense Scotland [Internet]. 2022 [cited 2022 Apr 6]. Available from: http://www.sensescotland.org.uk/
[42]
LinkedIn. LinkedIn India: Log In or Sign Up [Internet]. [cited 2022 Apr 6]. Available from: https://uk.linkedin.com/
[43]
Twitter. Twitter. It's what's happening / Twitter [Internet]. Twitter.com. 2022 [cited 2022 Apr 6]. Available from: https://twitter.com/
[44]
McGowan J, Grégory Leplâtre N, Iain McGregor N. CymaSense: A Novel Audio-Visual Therapeutic Tool for People on the Autism Spectrum. 2017;62–71.
[45]
McGowan J. SMART Survey Questions [Internet]. 2020. Available from: https://drive.google.com/file/d/1lMw2c0d-ycHvEVsIm_MorGlE4Sq69Vjw/view?usp=share_link
[46]
McGowan JJ, McGregor I, Leplatre G. Evaluation of the Use of Real-time 3D Graphics to Augment Therapeutic Music Sessions for Young People on the Autism Spectrum. ACM Trans Access Comput. 2021;14(1).
[47]
Hess KL, Morrier MJ, Heflin LJ, Ivey ML. Autism Treatment Survey: Services Received by Children with Autism Spectrum Disorders in Public School Classrooms. J Autism Dev Disord. 2008 May 11;38(5):961–71.
[48]
Dawes J. Do data characteristics change according to the number of scale points used? An experiment using 5-point, 7-point and 10-point scales. Vol. 50, International Journal of Market Research. 2008.
[49]
novisurvey.net. Login [Internet]. [cited 2022 Apr 6]. Available from: https://survey.napier.ac.uk/Login.aspx
[50]
Buy Spreadsheet Software - Try Excel, Free | Microsoft Excel [Internet]. [cited 2022 Sep 27]. Available from: https://www.microsoft.com/en-gb/microsoft-365/excel
[51]
QSR International Pty Ltd. QSR - NVivo Data Analysis Software | QSR International. 2022.
[52]
Wagner HR, Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. Glaser B, Strauss AN, editors. Social Forces. 1968 Jun;46(4):555.
[53]
Kasprzak C. ACTA PHYSICA POLONICA A 6-A Influence of Binaural Beats on EEG Signal. Vol. 119. 2011.
[54]
Melchior M, Barry K, Cohen D, Plancoulaine S, Bernard JY, Milcent K, TV, computer, tablet and smartphone use and autism spectrum disorder risk in early childhood: a nationally-representative study. BMC Public Health. 2022 Dec 1;22(1).
[55]
Lu M, Pang F, Wang R, Liu Y, Peng T. The association between autistic traits and excessive smartphone use in Chinese college students: The chain mediating roles of social interaction anxiety and loneliness. Res Dev Disabil [Internet]. 2022 Dec;131:104369. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0891422222001998
[56]
O'Neill SJ, Smyth S, Smeaton A, O'Connor NE. Assistive technology: Understanding the needs and experiences of individuals with autism spectrum disorder and/or intellectual disability in Ireland and the UK. Assistive Technology. 2020 Sep 2;32(5):251–9.
[57]
Lian X, Sunar MS. Mobile augmented reality technologies for autism spectrum disorder interventions: A systematic literature review. Vol. 11, Applied Sciences (Switzerland). MDPI AG; 2021.
[58]
Nolan J, McBride M. Embodied Semiosis: Autistic ‘Stimming’ as Sensory Praxis. In: International Handbook of Semiotics. Dordrecht: Springer Netherlands; 2015. p. 1069–78.
[59]
Kapp SK, Steward R, Crane L, Elliott D, Elphick C, Pellicano E, ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming. Autism. 2019 Oct 28;23(7):1782–92.
[60]
Seizeyourautism. Seize your Autism — Guide to Meditation with ASD [Internet]. 2022 [cited 2022 Apr 8]. Available from: https://seizeyourautism.tumblr.com/post/139625059069/guide-for-meditation-with-asd
[61]
Lane R, Radesky J. Digital Media and Autism Spectrum Disorders: Review of Evidence, Theoretical Concerns, and Opportunities for Intervention. Journal of Developmental & Behavioral Pediatrics. 2019 Jun;40(5):364–8.
[62]
Ragone G, Good J, Howland K. OSMoSIS: Interactive sound generation system for children with autism. In: Extended Abstracts - Proceedings of the 2020 ACM Interaction Design and Children Conference, IDC 2020. Association for Computing Machinery; 2020. p. 151–6.
[63]
Rieffe C, Meerum Terwogt M, Kotronopoulou K. Awareness of Single and Multiple Emotions in High-functioning Children with Autism. J Autism Dev Disord. 2007 Mar 1;37(3):455–65.
[64]
Lopata C, Volker MA, Putnam SK, Thomeer ML, Nida RE. Effect of Social Familiarity on Salivary Cortisol and Self-Reports of Social Anxiety and Stress in Children with High Functioning Autism Spectrum Disorders. J Autism Dev Disord. 2008 Nov 16;38(10):1866–77.
[65]
Kuiper MWM, Verhoeven EWM, Geurts HM. Stop Making Noise! Auditory Sensitivity in Adults with an Autism Spectrum Disorder Diagnosis: Physiological Habituation and Subjective Detection Thresholds. J Autism Dev Disord. 2019;49(5):2116–28.
[66]
Elwin M, Ek L, Schröder A, Kjellin L. Autobiographical Accounts of Sensing in Asperger Syndrome and High-Functioning Autism. Arch Psychiatr Nurs. 2012 Oct;26(5):420–9.
[67]
Ambeth Kumar VD, Malathi S, Kumar A, M P, Veluvolu KC. Active Volume Control in Smart Phones Based on User Activity and Ambient Noise. Sensors. 2020 Jul 24;20(15):4117.
[68]
Apple Inc. AirPods Pro and AirPods Max Active Noise Cancellation and Transparency mode – Apple Support (UK) [Internet]. 2022 [cited 2022 Nov 15]. Available from: https://support.apple.com/en-gb/HT210643
[69]
Google. Automatically adjust your sound with Adaptive Sound - Google Pixel Buds Help [Internet]. 2022 [cited 2022 Nov 15]. Available from: https://support.google.com/googlepixelbuds/answer/9642077
[70]
NPR. Army's Smart Earplug Damps Explosive Noise, But Can Enhance Whispers: Shots - Health News: NPR [Internet]. Morning Edition. 2016 [cited 2022 Nov 15]. Available from: https://www.npr.org/sections/health-shots/2016/06/03/480173016/armys-smart-earplug-damps-explosive-noise-but-can-enhance-whispers
[71]
Twoy R, Connolly PM, Novak JM. Coping strategies used by parents of children with autism. J Am Acad Nurse Pract. 2007 May;19(5):251–60.
[72]
Li D, Larsen L, Yang Y, Wang L, Zhai Y, Sullivan WC. Exposure to nature for children with autism spectrum disorder: Benefits, caveats, and barriers. Health Place. 2019 Jan;55:71–9.
[73]
Dhoest A, Antunes D. The Digital as Prosthesis: The Role of Social Media in Autistic People ’ s Lives. The Journal of Social Media in Society. 2021;10(2):202–20.
[74]
Gee BM, Thompson K, St John H. Efficacy of a Sound-based Intervention with a Child with an Autism Spectrum Disorder and Auditory Sensory Over-responsivity. Occup Ther Int. 2014 Mar;21(1):12–20.
[75]
Sinha Y, Silove N, Wheeler D, Williams K. Auditory integration training and other sound therapies for autism spectrum disorders: a systematic review. Arch Dis Child. 2006 Jul 28;91(12):1018–22.
[76]
Papagiannopoulou EA. Auditory Processing in ASD & Sound-Based Interventions. Music Percept. 2015 Jun 1;32(5):515–29.
[77]
Pino O. A randomized controlled trial (RCT) to explore the effect of audio-visual entrainment among psychological disorders. Acta Biomedica. 2021;92(6).
[78]
Johnston D, Egermann H, Kearney G. SoundFields: A virtual reality game designed to address auditory hypersensitivity in individuals with autism spectrum disorder. Applied Sciences (Switzerland). 2020;10(9).
[79]
Johnston D, Egermann H, Kearney G. The Use of Binaural Based Spatial Audio in the Reduction of Auditory Hypersensitivity in Autistic Young People. Int J Environ Res Public Health. 2022;19(19).
[80]
Deng L, Rattadilok P, Saputra Hadian G, Liu H. Effect of Sensory-based Technologies on Atypical Sensory Responses of Children with Autism Spectrum Disorder: A Systematic Review. In: 2021 5th International Conference on E-Society, E-Education and E-Technology. New York, NY, USA: ACM; 2021. p. 208–18.
[81]
Saleh MA, Hanapiah FA, Hashim H. Robot applications for autism: a comprehensive review. Vol. 16, Disability and Rehabilitation: Assistive Technology. 2021. p. 580–602.
[82]
Carlisle GK, Johnson RA, Wang Z, Bibbo J, Cheak-Zamora N, Lyons LA. Exploratory Study of Cat Adoption in Families of Children with Autism: Impact on Children's Social Skills and Anxiety. J Pediatr Nurs. 2021 May;58:28–35.
[83]
Khullar V, Singh HP, Bala M. IoT based assistive companion for hypersensitive individuals (ACHI) with autism spectrum disorder. Asian J Psychiatr. 2019 Dec;46:92–102.
[84]
Li X, Zhong H, Zhang B, Zhang J. A General Chinese Chatbot Based on Deep Learning and Its’ Application for Children with ASD. Int J Mach Learn Comput. 2020;10(4):519–26.
[85]
Gagan ITM, Matias MAME, Tan I, Vinco CM, Ong E, Resurreccion R. Designing A Virtual Talking Companion to Support the Social-Emotional Learning of Children with ASD. In: Proceedings of Interaction Design and Children, IDC 2022. Association for Computing Machinery, Inc; 2022. p. 464–71.
[86]
Espinosa M, Escobedo L. SATORI: A support tool for young adults with autism to self-manage stress and anxiety. ACM International Conference Proceeding Series. 2021;

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    cover image ACM Conferences
    ASSETS '23: Proceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility
    October 2023
    1163 pages
    ISBN:9798400702204
    DOI:10.1145/3597638
    This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives International 4.0 License.

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    Published: 22 October 2023

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    1. Autism
    2. Stress Management
    3. Stress Triggers

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