Nothing Special   »   [go: up one dir, main page]

skip to main content
10.1145/3584931.3606987acmconferencesArticle/Chapter ViewAbstractPublication PagescscwConference Proceedingsconference-collections
research-article
Open access

How to Ethically Engage Fat People in HCI Research

Published: 14 October 2023 Publication History

Abstract

How we research and represent people and communities that may be marginalized or vulnerable is a highly relevant question for our research practices. One particular group that has received some recent attention from HCI and CSCW researchers is fat people and, relatedly, anti-fatness. However, more work is needed to understand how to ethically engage in research with fat people–for example, in studying online communities or designing technology. Toward this goal, we provide a brief introduction to fat people, fat activism, and fat oppression so researchers may understand the social, political, and historical landscape in which research with and about fat people takes place. Based on empirical findings from an interview study, we then provide recommendations for researchers wishing to engage fat people in future research.

References

[1]
2021. Researchers develop world-first weight loss device. Accessed: May 10, 2023 from https://www.otago.ac.nz/news/news/releases/otago830110.html.
[2]
Caroline Anders. 2021. This weight-loss device locks your jaw nearly shut. Experts say that’s dangerous and barbaric.Accessed: May 10, 2023 from https://www.washingtonpost.com/health/2021/06/29/weight-loss-eating-disorder-dangerous/.
[3]
Virginia Braun and Victoria Clarke. 2006. Using thematic analysis in psychology. Qualitative research in psychology 3, 2 (2006), 77–101.
[4]
Virginia Braun and Victoria Clarke. 2019. Reflecting on reflexive thematic analysis. Qualitative research in sport, exercise and health 11, 4 (2019), 589–597.
[5]
Amy Bruckman. 2014. Research ethics and HCI. Ways of Knowing in HCI (2014), 449–468.
[6]
Deb Burgard. 2009. What is “health at every size”? In The fat studies reader. New York University Press New York, 41–53.
[7]
Charlotte Cooper. 2010. Fat studies: Mapping the field. Sociology Compass 4, 12 (2010), 1020–1034.
[8]
Charlotte Cooper. 2021. Fat activism: A radical social movement. Intellect Books.
[9]
Laurie Cooper Stoll and Darci L Thoune. 2020. Elevating the voices and research of fat scholars and activists: Standpoint theory in fat studies. Fat Studies 9, 2 (2020), 93–100.
[10]
Robert Crawford. 1980. Healthism and the medicalization of everyday life. International journal of health services 10, 3 (1980), 365–388.
[11]
Brianna Dym and Casey Fiesler. 2020. Ethical and Privacy Considerations for Research Using Online Fandom Data.Transformative works and cultures 33 (2020).
[12]
Jessica L. Feuston, Michael Ann DeVito, Morgan Klaus Scheuerman, Katy Weathington, Marianna Benitez, Bianca Z. Perez, Lucy Sondheim, and Jed R. Brubaker. 2022. "Do You Ladies Relate?": Experiences of Gender Diverse People in Online Eating Disorder Communities. Proc. ACM Hum.-Comput. Interact. 6, CSCW2, Article 420 (nov 2022), 32 pages. https://doi.org/10.1145/3555145
[13]
Rachel Fox. 2022. Valuing Fatness. Accessed: May 10, 2023 from https://pipewrenchmag.com/fat-studies-reading-list/.
[14]
Judy Freespirit and Aldebaran. 1973. The Fat Liberation Manifesto. Accessed May 10, 2023 from The Fat Lib Archive: https://fatlibarchive.org/fat-liberation-manifesto-1973/.
[15]
Miranda Fricker. 2007. Epistemic injustice: Power and the ethics of knowing. Oxford University Press.
[16]
Liza Gak, Seyi Olojo, and Niloufar Salehi. 2022. The Distressing Ads That Persist: Uncovering The Harms of Targeted Weight-Loss Ads Among Users with Histories of Disordered Eating. arXiv preprint arXiv:2204.03200 (2022).
[17]
Linda Gerhardt. 2021. Fategories - understanding the fat spectrum. Accessed: May 10, 2023 from https://fluffykittenparty.com/2021/06/01/fategories-understanding-smallfat-fragility-the-fat-spectrum/.
[18]
Aubrey Gordon. 2021. I’m a Fat Activist. I Don’t Use the Word ’Fatphobia.’ Here’s Why.Accessed: May 10, 2023 from https://www.self.com/story/fat-activist-fatphobia.
[19]
Da’Shaun L. Harrison. 2021. Belly of the Beast: The Politics of Anti-Fatness as Anti-Blackness. North Atlantic Books, Berkeley, California.
[20]
Dorothy Howard and Lilly Irani. 2019. Ways of Knowing When Research Subjects Care. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI ’19). Association for Computing Machinery, New York, NY, USA, 1–16. https://doi.org/10.1145/3290605.3300327
[21]
Nadia Karizat and Nazanin Andalibi. 2023. "I like to See the Ups and Downs of My Own Journey": Motivations for and Impacts of Returning to Past Content About Weight Related Journeys on Social Media. Proc. ACM Hum.-Comput. Interact. 7, CSCW1, Article 61 (apr 2023), 41 pages. https://doi.org/10.1145/3579494
[22]
Shamika Klassen. 2022. Black Twitter is Gold: Why This Online Community is Worthy of Study and How to Do so Respectfully. Interactions 29, 1 (jan 2022), 96–98. https://doi.org/10.1145/3505681
[23]
Shamika Klassen and Casey Fiesler. 2022. “This Isn’t Your Data, Friend”: Black Twitter as a Case Study on Research Ethics for Public Data. Social Media + Society 8, 4 (2022), 20563051221144317. https://doi.org/10.1177/20563051221144317 arXiv:https://doi.org/10.1177/20563051221144317
[24]
Kolina Koltai, Rachel E. Moran, and Izzi Grasso. 2022. Addressing the Root of Vaccine Hesitancy during the COVID-19 Pandemic. XRDS 28, 2 (jan 2022), 34–38. https://doi.org/10.1145/3495259
[25]
Calvin A. Liang, Sean A. Munson, and Julie A. Kientz. 2021. Embracing Four Tensions in Human-Computer Interaction Research with Marginalized People. ACM Trans. Comput.-Hum. Interact. 28, 2, Article 14 (apr 2021), 47 pages. https://doi.org/10.1145/3443686
[26]
Kelly Mack, Rai Ching Ling Hsu, Andrés Monroy-Hernández, Brian A. Smith, and Fannie Liu. 2023. Towards Inclusive Avatars: Disability Representation in Avatar Platforms. In Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems (Hamburg, Germany) (CHI ’23). Association for Computing Machinery, New York, NY, USA, Article 607, 13 pages. https://doi.org/10.1145/3544548.3581481
[27]
Ratnadevi Manokaran, Cat Pausé, Mäks Roßmöller, and Tara Margrét Vilhjálmsdóttir. 2021. ‘Nothing about us without us’: Fat people speak. Qualitative Research in Psychology 18, 4 (2021), 537–549.
[28]
Cat Pausé. 2020. Ray of light: Standpoint theory, fat studies, and a new fat ethics. Fat Studies 9, 2 (2020), 175–187.
[29]
Cat Pausé and Sonya Renee Taylor. 2021. Fattening up scholarship. In The routledge international handbook of fat studies. Routledge, 1–18.
[30]
Esther D Rothblum, Sondra Solovay, and Marilyn Wann. 2009. The fat studies reader. New York Unviersity Press.
[31]
Morgan Klaus Scheuerman, Jacob M Paul, and Jed R Brubaker. 2019. How computers see gender: An evaluation of gender classification in commercial facial analysis services. Proceedings of the ACM on Human-Computer Interaction 3, CSCW (2019), 1–33.
[32]
Sondra Solovay. 2012. Tipping the scales of justice: Fighting weight based discrimination. Prometheus Books.
[33]
Katta Spiel. 2021. The bodies of tei–investigating norms and assumptions in the design of embodied interaction. In Proceedings of the Fifteenth International Conference on Tangible, Embedded, and Embodied Interaction. 1–19.
[34]
Katta Spiel, Eva Hornecker, Rua Mae Williams, and Judith Good. 2022. ADHD and Technology Research – Investigated by Neurodivergent Readers. In Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems (New Orleans, LA, USA) (CHI ’22). Association for Computing Machinery, New York, NY, USA, Article 547, 21 pages. https://doi.org/10.1145/3491102.3517592
[35]
Katta Spiel, Fares Kayali, Louise Horvath, Michael Penkler, Sabine Harrer, Miguel Sicart, and Jessica Hammer. 2018. Fitter, Happier, More Productive? The Normative Ontology of Fitness Trackers. In Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems (Montreal QC, Canada) (CHI EA ’18). Association for Computing Machinery, New York, NY, USA, 1–10. https://doi.org/10.1145/3170427.3188401
[36]
Sabrina Strings. 2019. Fearing the Black Body: The Racial Origins of Fat Phobia. New York University Press, New York, New York.
[37]
Darci L Thoune. 2021. Am I Fat? In The Routledge International Handbook of Fat Studies. Routledge, 23–25.
[38]
Marilyn Wann. 2009. Fat studies: An invitation to revolution. The fat studies reader (2009), xi.
[39]
Jacqueline Weinstock and Michelle Krehbiel. 2009. Fat youth as common targets for bullying. The fat studies reader (2009), 120–126.
[40]
Anon Ymous, Katta Spiel, Os Keyes, Rua M. Williams, Judith Good, Eva Hornecker, and Cynthia L. Bennett. 2020. "I Am Just Terrified of My Future" — Epistemic Violence in Disability Related Technology Research. In Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI EA ’20). Association for Computing Machinery, New York, NY, USA, 1–16. https://doi.org/10.1145/3334480.3381828

Cited By

View all
  • (2024)Weight Bias in Design: Unpacking Implicit Researcher Beliefs for Building EmpathyProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661799(40-45)Online publication date: 11-May-2024
  • (2024)The Harmful Fetishisation of Reductive Personal Tracking Metrics in Digital SystemsProceedings of the 2024 ACM Conference on Fairness, Accountability, and Transparency10.1145/3630106.3658943(899-908)Online publication date: 3-Jun-2024
  • (2024)Supporting Experiential Learning in People with Gestational Diabetes MellitusProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642674(1-16)Online publication date: 11-May-2024
  • Show More Cited By

Recommendations

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Conferences
CSCW '23 Companion: Companion Publication of the 2023 Conference on Computer Supported Cooperative Work and Social Computing
October 2023
596 pages
ISBN:9798400701290
DOI:10.1145/3584931
This work is licensed under a Creative Commons Attribution International 4.0 License.

Sponsors

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 14 October 2023

Check for updates

Author Tags

  1. Fat
  2. Fat Liberation
  3. Fat People
  4. Marginalized Communities
  5. Research Ethics

Qualifiers

  • Research-article
  • Research
  • Refereed limited

Funding Sources

Conference

CSCW '23
Sponsor:

Acceptance Rates

Overall Acceptance Rate 2,235 of 8,521 submissions, 26%

Upcoming Conference

CSCW '25

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • Downloads (Last 12 months)712
  • Downloads (Last 6 weeks)85
Reflects downloads up to 12 Nov 2024

Other Metrics

Citations

Cited By

View all
  • (2024)Weight Bias in Design: Unpacking Implicit Researcher Beliefs for Building EmpathyProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661799(40-45)Online publication date: 11-May-2024
  • (2024)The Harmful Fetishisation of Reductive Personal Tracking Metrics in Digital SystemsProceedings of the 2024 ACM Conference on Fairness, Accountability, and Transparency10.1145/3630106.3658943(899-908)Online publication date: 3-Jun-2024
  • (2024)Supporting Experiential Learning in People with Gestational Diabetes MellitusProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642674(1-16)Online publication date: 11-May-2024
  • (2024)Unpacking Norms, Narratives, and Nourishment: A Feminist HCI Critique on Food Tracking TechnologiesProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642600(1-20)Online publication date: 11-May-2024
  • (2024)"We happen to be different and different is not bad": Designing for Intersectional Fat-Positive Information-SeekingProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642599(1-17)Online publication date: 11-May-2024
  • (2024)Conceptualising Fatness within HCI: A Call for Fat LiberationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642199(1-14)Online publication date: 11-May-2024
  • (2024)VISHnuInternational Journal of Human-Computer Studies10.1016/j.ijhcs.2024.103243185:COnline publication date: 25-Jun-2024

View Options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

HTML Format

View this article in HTML Format.

HTML Format

Get Access

Login options

Media

Figures

Other

Tables

Share

Share

Share this Publication link

Share on social media