Nothing Special   »   [go: up one dir, main page]

skip to main content
10.1145/3406865.3418322acmconferencesArticle/Chapter ViewAbstractPublication PagescscwConference Proceedingsconference-collections
poster

Benefits and Challenges for Social Media Users on the Autism Spectrum

Published: 17 October 2020 Publication History

Abstract

Individuals with Autism Spectrum Disorder (ASD) often face difficulties creating and maintaining social connections with others, which has been shown to negatively affect their well-being. Some researchers have investigated whether social media use can lead to social benefits, but with mixed results. To better understand how social media use can be beneficial and what challenges it poses, we conducted an interview study with eight adults on the Autism Spectrum. We report on the perceived benefits and real challenges participants faced when trying to engage with others through social media. Often the benefits users hope for are overshadowed by negative ramifications and safety risks that accompany their social media use. We conclude with recommendations for designing social media for neurodiverse users.

References

[1]
Susan Abel, Tanya Machin, and Charlotte Brownlow. 2019. Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups. Res. Autism Spectr. Disord. 61, (May 2019), 10--21.
[2]
A. E. van Asselt-Goverts, P. J. C. M. Embregts, A. H. C. Hendriks, K. M. Wegman, and J. P. Teunisse. 2015. Do Social Networks Differ? Comparison of the Social Networks of People with Intellectual Disabilities, People with Autism Spectrum Disorders and Other People Living in the Community. J. Autism Dev. Disord. 45, 5 (May 2015), 1191--1203.
[3]
Nirit Bauminger and Connie Kasari. 2000. Loneliness and Friendship in High-Functioning Children with Autism. Child Dev. 71, 2 (2000), 447--456.
[4]
Nirit Bauminger, Cory Shulman, and Galit Agam. 2003. Peer Interaction and Loneliness in High-Functioning Children with Autism. J. Autism Dev. Disord. 33, 5 (October 2003), 489--507.
[5]
Adham Beykikhoshk, Ognjen Arandjelovi?, Dinh Phung, Svetha Venkatesh, and Terry Caelli. 2015. Using Twitter to learn about the autism community. Soc. Netw. Anal. Min. 5, 1 (June 2015), 22.
[6]
Moira Burke, Robert Kraut, and Diane Williams. 2010. Social use of computer-mediated communication by adults on the autism spectrum. In Proceedings of the 2010 ACM conference on Computer supported cooperative work (CSCW '10), Association for Computing Machinery, Savannah, Georgia, USA, 425--434.
[7]
CDC. 2020. Data and Statistics on Autism Spectrum Disorder | CDC. Centers for Disease Control and Prevention. Retrieved June 20, 2020 from https://www.cdc.gov/ncbddd/autism/data.html
[8]
Nicole B. Ellison, Charles Steinfield, and Cliff Lampe. 2007. The Benefits of Facebook 'Friends:' Social Capital and College Students? Use of Online Social Network Sites. J. Comput.-Mediat. Commun. 12, 4 (July 2007), 1143--1168.
[9]
Hwajung Hong, Jennifer G. Kim, Gregory D. Abowd, and Rosa I. Arriaga. 2012. Designing a Social Network to Support the Independence of Young Adults with Autism. In Proceedings of the ACM 2012 Conference on Computer Supported Cooperative Work (CSCW '12), ACM, New York, NY, USA, 627--636.
[10]
Hwajung Hong, Svetlana Yarosh, Jennifer G. Kim, Gregory D. Abowd, and Rosa I. Arriaga. 2013. Investigating the Use of Circles in Social Networks to Support Independence of Individuals with Autism. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '13), ACM, New York, NY, USA, 3207--3216.
[11]
Jill Locke, Eric H. Ishijima, Connie Kasari, and Nancy London. 2010. Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. J. Res. Spec. Educ. Needs 10, 2 (2010), 74--81.
[12]
Micah O. Mazurek. 2013. Social media use among adults with autism spectrum disorders. Comput. Hum. Behav. 29, 4 (July 2013), 1709--1714.
[13]
J O Renty and Herbert Roeyers. 2006. Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism 10, 5 (September 2006), 511--524.
[14]
Gerrit I. van Schalkwyk, Carla E. Marin, Mayra Ortiz, Max Rolison, Zheala Qayyum, James C. McPartland, Eli R. Lebowitz, Fred R. Volkmar, and Wendy K. Silverman. 2017. Social Media Use, Friendship Quality, and the Moderating Role of Anxiety in Adolescents with Autism Spectrum Disorder. J. Autism Dev. Disord. 47, 9 (September 2017), 2805--2813.
[15]
Paul T. Shattuck, Gael I. Orsmond, Mary Wagner, and Benjamin P. Cooper. 2011. Participation in Social Activities among Adolescents with an Autism Spectrum Disorder. PLoS ONE 6, 11 (November 2011).
[16]
Anselm L. Strauss. 1987. Qualitative Analysis for Social Scientists. Cambridge University Press.
[17]
Megan C. Tobin, Kathryn D. R. Drager, and Laura F. Richardson. 2014. A systematic review of social participation for adults with autism spectrum disorders: Support, social functioning, and quality of life. Res. Autism Spectr. Disord. 8, 3 (March 2014), 214--229.
[18]
Deborah M. Ward, Karen E. Dill-Shackleford, and Micah O. Mazurek. 2018. Social Media Use and Happiness in Adults with Autism Spectrum Disorder. Cyberpsychology Behav. Soc. Netw. 21, 3 (February 2018), 205--209.
[19]
2013. Diagnostic and statistical manual of mental disorders: DSM-5TM, 5th ed. American Psychiatric Publishing, Inc., Arlington, VA, US.

Cited By

View all
  • (2024)Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social MediaProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642567(1-21)Online publication date: 11-May-2024
  • (2024)Exploring parental use of social media among autism spectrum disorder families in the UAE: perspectives and challenges in fostering social inclusionInternational Journal of Developmental Disabilities10.1080/20473869.2024.239298570:6(1092-1101)Online publication date: 14-Nov-2024
  • (2024)How to co-create content moderation policies: the case of the AutSPACEs projectData & Policy10.1017/dap.2024.216Online publication date: 15-May-2024
  • Show More Cited By

Recommendations

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Conferences
CSCW '20 Companion: Companion Publication of the 2020 Conference on Computer Supported Cooperative Work and Social Computing
October 2020
559 pages
ISBN:9781450380591
DOI:10.1145/3406865
Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

Sponsors

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 17 October 2020

Check for updates

Author Tags

  1. interviews
  2. social media
  3. users with autism spectrum disorder

Qualifiers

  • Poster

Funding Sources

  • Bentley Health Thought Leadership Network

Conference

CSCW '20
Sponsor:

Acceptance Rates

Overall Acceptance Rate 2,235 of 8,521 submissions, 26%

Upcoming Conference

CSCW '25

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • Downloads (Last 12 months)266
  • Downloads (Last 6 weeks)42
Reflects downloads up to 12 Nov 2024

Other Metrics

Citations

Cited By

View all
  • (2024)Towards Digital Independence: Identifying the Tensions between Autistic Young Adults and Their Support Network When Mediating Social MediaProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642567(1-21)Online publication date: 11-May-2024
  • (2024)Exploring parental use of social media among autism spectrum disorder families in the UAE: perspectives and challenges in fostering social inclusionInternational Journal of Developmental Disabilities10.1080/20473869.2024.239298570:6(1092-1101)Online publication date: 14-Nov-2024
  • (2024)How to co-create content moderation policies: the case of the AutSPACEs projectData & Policy10.1017/dap.2024.216Online publication date: 15-May-2024
  • (2023)Voices from a pandemic: Understanding how young adults on the autism spectrum use computer-mediated communicationAutism10.1177/1362361323117096328:2(381-389)Online publication date: 14-Jun-2023
  • (2023)Weaving Autistic Voices on TikTok: Utilizing Co-Hashtag Networks for NetnographyCompanion Publication of the 2023 Conference on Computer Supported Cooperative Work and Social Computing10.1145/3584931.3606995(254-258)Online publication date: 14-Oct-2023
  • (2023)Toward a Feminist Social Media Vulnerability TaxonomyProceedings of the ACM on Human-Computer Interaction10.1145/35795337:CSCW1(1-37)Online publication date: 16-Apr-2023
  • (2023)"My Perfect Platform Would Be Telepathy" - Reimagining the Design of Social Media with Autistic AdultsProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580673(1-16)Online publication date: 19-Apr-2023
  • (2023)Socialization, education and learning for the internet (SELFI): development and pilot of a social media skills program for autistic adultsAdvances in Autism10.1108/AIA-12-2022-00579:4(402-417)Online publication date: 8-Aug-2023
  • (2023)Socialization, Education, and Learning for the Internet (SELFI): A Pilot RCT of a Social Media Skills Group Program for Autistic AdultsJournal of Autism and Developmental Disorders10.1007/s10803-023-06100-954:10(3639-3656)Online publication date: 16-Aug-2023
  • (2021)Designing Sensory and Social Tools for Neurodivergent Individuals in Social Media EnvironmentsProceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3441852.3476546(1-5)Online publication date: 17-Oct-2021

View Options

Get Access

Login options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

Media

Figures

Other

Tables

Share

Share

Share this Publication link

Share on social media