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”The Dementia Diva Strikes Again!”: A Thematic Analysis of How Informal Carers of Persons with Dementia Use TikTok

Authors:

Shiroq Al-Megren,

Khalid Majrashi,

Ragad Mohammad AllwihanAuthors Info & Claims

MobileHCI '21: Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction

Article No.: 11, Pages 1 - 6

https://doi.org/10.1145/3447527.3474857

Published: 27 September 2021 Publication History

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Abstract

Informal carers of persons with dementia often resort to social media to alleviate their sense of social isolation and cultivate their platform to share their experience in care. The present study performed a preliminary analysis on how TikTok creators share their personal experience caring for a loved one with dementia through content shared under the hashtag #dementiacaregiver. We performed a systemic review and inductive thematic analysis of 447 TikTok posts. The content under #dementiacaregiver was interpreted to form five primary themes: (1) realities of caregiving, (2) a little levity, (3) advice for caring, (4) engagement with viewers, and (5) sensory stimulation. TikTok seems to have provided carers with a tool for artistic and social expression that fostered a sense of community and a place for remote belonging.

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Cited By

Borna SManiaci MHaider CGomez-Cabello CPressman SHaider SDemaerschalk BCowart JForte A(2024)Artificial Intelligence Support for Informal Patient Caregivers: A Systematic ReviewBioengineering10.3390/bioengineering1105048311:5(483)Online publication date: 12-May-2024
https://doi.org/10.3390/bioengineering11050483
Smriti DWang LHuh-Yoo J(2024)Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With DementiaProceedings of the ACM on Human-Computer Interaction10.1145/36373258:CSCW1(1-34)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637325
Warr RRuggiano NDaquin JAnderson Herzog MJiang ZGray J(2024)Health Information Seeking Using Tech and Non-Tech Sources Among a Diverse Sample of Caregivers in the Deep SouthJournal of Gerontological Social Work10.1080/01634372.2024.233996067:5(605-620)Online publication date: 25-Apr-2024
https://doi.org/10.1080/01634372.2024.2339960
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Published In

cover image ACM Conferences

MobileHCI '21: Adjunct Publication of the 23rd International Conference on Mobile Human-Computer Interaction

September 2021

150 pages

ISBN:9781450383295

DOI:10.1145/3447527

Copyright © 2021 Owner/Author.

This work is licensed under a Creative Commons Attribution International 4.0 License.

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SIGCHI: ACM Special Interest Group on Computer-Human Interaction

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 27 September 2021

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MobileHCI '21

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MobileHCI '21: 23rd International Conference on Mobile Human-Computer Interaction

September 27 - October 1, 2021

Toulouse & Virtual, France

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Cited By

Borna SManiaci MHaider CGomez-Cabello CPressman SHaider SDemaerschalk BCowart JForte A(2024)Artificial Intelligence Support for Informal Patient Caregivers: A Systematic ReviewBioengineering10.3390/bioengineering1105048311:5(483)Online publication date: 12-May-2024
https://doi.org/10.3390/bioengineering11050483
Smriti DWang LHuh-Yoo J(2024)Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With DementiaProceedings of the ACM on Human-Computer Interaction10.1145/36373258:CSCW1(1-34)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637325
Warr RRuggiano NDaquin JAnderson Herzog MJiang ZGray J(2024)Health Information Seeking Using Tech and Non-Tech Sources Among a Diverse Sample of Caregivers in the Deep SouthJournal of Gerontological Social Work10.1080/01634372.2024.233996067:5(605-620)Online publication date: 25-Apr-2024
https://doi.org/10.1080/01634372.2024.2339960
Ma SBala PNisi VZimmerman JNunes N(2023)Uncovering Gig Worker-Centered Design Opportunities in Food Delivery WorkProceedings of the 2023 ACM Designing Interactive Systems Conference10.1145/3563657.3596123(688-701)Online publication date: 10-Jul-2023
https://dl.acm.org/doi/10.1145/3563657.3596123
Houben Mvan Berlo MAntonissen FWouters EBrankaert R(2023)Switch2Move: Designing a Tangible Interface with People Living with Dementia for Initiating and Engaging in Music-Supported Exercises at HomeProceedings of the 2023 ACM Designing Interactive Systems Conference10.1145/3563657.3596017(1457-1471)Online publication date: 10-Jul-2023
https://dl.acm.org/doi/10.1145/3563657.3596017
Rodríguez ICajamarca GHerskovic V(2022)When does self-report of pain occur?: A study of older adultsPeerJ10.7717/peerj.1371610(e13716)Online publication date: 19-Jul-2022
https://doi.org/10.7717/peerj.13716

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