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"We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities

Published: 23 April 2020 Publication History

Abstract

Public attitudes towards learning disabilities (LDs) are generally reported as positive, inclusive and empathetic. However, these findings do not reflect the lived experiences of people with LDs. To shed light on this disparity, a team of co-researchers with LDs created the first online survey to challenge public understanding of LDs, asking questions in ways that are important to them and represent how they see themselves. Here, we describe and evaluate the process of creating an accessible survey platform and an online survey in a research team consisting of academic and non-academic professionals with and without LDs or autism. Through this inclusive research process, the co-designed survey met the expectations of the co-researchers and was well-received by the initial survey respondents. We reflect on the co-researchers' perspectives following the study completion, and consider the difficulties and advantages we encountered deploying such approaches and their potential implications on future survey data analysis.

Supplementary Material

ZIP File (paper151aux.zip)
The files in supplement 1 represent examples of paper prototyping outputs from a participatory design workshop with co-designers form the learning disabled and autism community that is detailed in the paper. There are three files that illustrate set interface suggestions for a mobile version of the survey application and one file that proposes a look and feel for the application on a tablet or desktop computer. PDF. The file in supplement 2 contains data based on the second usability test. Excel.
MP4 File (paper151pv.mp4)
Preview video
MP4 File (a151-chapko-presentation.mp4)

References

[1]
N. Akrami, B. Ekehammar, M. Claesson and K. Sonnander. 2006. Classical and Modern Prejudice: Attitudes toward People with Intellectual Disabilities. Research in Developmental Disabilities 27, 6, 12. http://dx.doi.org/10.1016/j.ridd.2005.07.003
[2]
A. Ali, A. Hassiotis, A. Strydom and M. King 2012. Self Stigma in People with Intellectual Disabilities and Courtesy Stigma in Family Carers: A Systematic Review. Research in Developmental Disabilities 33, 6, 18. https://doi.org/10.1016/j.ridd.2012.06.013
[3]
L. Anthony, S. Prasad, A. Hurst, and R. Kuber. 2012. A Participatory Design Workshop on Accessible Apps and Games with Students with Learning Differences. In Proceedings of 14th international ACM SIGACCESS conference on Computers and accessibility (ASSETS '12). New York, 253--254. https://doi.org/10.1145/2384916.2384979
[4]
R. F. Antonak. 1994. Development and Psychometric Analysis of an Indirect Measure of Attitudes toward Individuals with Mental Retardation Using the Error-Choice Method. Mental Retardation 32, 5, 8.
[5]
C. Antoun, M.P. Couper and F.G. Conrad. 2017. Effects of Mobile Versus Pc Web on Survey Response Qualitya Crossover Experiment in a Probability Web Panel. Public Opin Q 81, S1, 280--306. http://dx.doi.org/10.1093/poq/nfw088
[6]
D. Atkinson, M. Cooper and G. Ferris. 2006. Advocacy as Resistance: Speaking up as a Way of Fighting Back. In Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance, D. Mitchell Ed. Jessica Kingsley, London, 13--19.
[7]
C.M. Barnum. 2010. Usability Testing Essentials: Ready, Set...Test! Elsevier.
[8]
H. Beier and S. Schulz. 2015. A Free Audio-Casi Module for Limesurvey. Survey Methods: Insights from the Field (SMIF). http://dx.doi.org/10.13094/SMIF-2015-00011
[9]
A. M. Benomir, R. Nicolson and N. Beail. 2016. Attitudes Towards People with Intellectual Disability in the Uk and Libya: A Cross-Cultural Comparison. Research in Developmental Disabilities 51--52, 8. https://doi.org/10.1016/j.ridd.2015.12.009
[10]
L. Benton and H. Johnson. 2014. Structured Approaches to Participatory Design for Children: Can Targeting the Needs of Children with Autism Provide Benefits for a Broader Child Population? Instr Sci 42, 1, 47--65. http://dx.doi.org/10.1007/s11251-013--9297-y
[11]
L. Benton, A. Vasalou, R. Khaled, H. Johnson and D. Gooch. 2014. Diversity for Design: A Framework for Involving Neurodiverse Children in the Technology Design Process. In Proceedings of ACM, New York, NY, USA, 3747--3756. http://dx.doi.org/10.1145/2556288.2557244
[12]
C. Bigby, T. Clement, J. Mansell and J. Beadle-Brown. 2009. 'It's Pretty Hard with Our Ones, They Can't Talk, the More Able Bodied Can Participate': Staff Attitudes About the Applicability of Disability Policies to People with Severe and Profound Intellectual Disabilities. Journal of Intellectual Disability Research 53, 13. http://dx.doi.org/10.1111/j.1365--2788.2009.01154.x
[13]
C. Bigby, P. Frawley and P. Ramcharan. 2014. Conceptualising Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities 27, 9. https://doi.org/10.1111/jar.12083
[14]
R. Blundell, R. Das, H. Potts and K. Scior. 2016. The Association between Contact and Intellectual Disability Literacy, Causal Attributions and Stigma. Journal of Intellectual Disability Research 60, 9. http://dx.doi.org/10.1111/jir.12241
[15]
L. Bond, M. Kerr, F. Dunstan and A. Thapar. 1997. Attitudes of General Practitioners Towards Health Care for People with Intellectual Disability and the Factors Underlying These Attitudes. Journal of Intellectual Disability Research 41, 9. http://dx.doi.org/10.1111/j.1365--2788.1997.tb00726.x
[16]
G. S. Bonham, S. Basehart, R.L. Schalock, C.B. Marchand, N. Kirchner and J.M. Rumenap. 2004. Consumer-Based Quality of Life Assessment: The Maryland Ask Me! Project. Mental Retardation 42, 5, 17. https://doi.org/10.1352/0047--6765(2004)42%3C338:CQOLAT%3E2.0.CO;2
[17]
A. Bowling. 2005. Mode of Questionnaire Administration Can Have Serious Effects on Data Quality. J Public Health (Oxf) 27, 3, 281--291. http://dx.doi.org/10.1093/ /fdi031
[18]
K. Brady and L. Woolfson Brady. 2008. What Teacher Factors Influence Their Attributions for Children's Difficulties in Learning? British Journal of Educational Psychology 78, 17. http://dx.doi.org/10.1348/000709907X268570
[19]
T. Brown. 2008. Design Thinking. Harvard Business Review 86, 6, 84--92.
[20]
L. Buley. 2013. The User Experience Team of One: A Research and Design Survival Guide. Rosenfeld Media.
[21]
P. Burge, H. Ouellette-Kuntz and R. Lysaght. 2007. Public Views on Employment of People with Intellectual Disabilities. Journal of Vocational Rehabilitation 26, 1, 8.
[22]
Campaign to End Loneliness. Loneliness Research. Campaign to End Loneliness. https://www.campaigntoendloneliness.org/the-facts-on-loneliness/
[23]
J. Campbell, L. Gilmore and M. Cuskelly. 2003. Changing Student Teachers' Attitudes Towards Disability and Inclusion. Journal of Intellectual & Developmental Disability 28, 4, 10. http://dx.doi.org/10.1080/13668250310001616407
[24]
D. Chadwick, C. Wesson and C. Fullwood. 2013. Internet Access by People with Intellectual Disabilities: Inequalities and Opportunities. Future Internet 5, 21. https://doi.org/10.3390/fi5030376
[25]
S. Clement, A. Van Nieuwenhuizen, A. Kassam, C. Flach, A. Lazarus, M. De Castro and G. Thornicroft. 2012. Filmed V. Live Social Contact Interventions to Reduce Stigma: Randomised Controlled Trial. British Journal of Psychiatry 201, 1, 7. http://dx.doi.org/10.1192/bjp.bp.111.093120
[26]
E. and C. Cocks, J. 1995. The Participatory Research Paradigm and Intellectual Disability. Mental Handicap Research 8, 12. http://dx.doi.org/
[27]
T.M. Cumming, I. Strnadová, M. Knox and T. Parmenter. 2014. Mobile Technology in Inclusive Research: Tools of Empowerment. Disability & Society 29, 7, 13. http://dx.doi.org/10.1080/09687599.2014.886556
[28]
M. Cuskelly and L. Gilmore. 2007. Attitudes to Sexuality Questionnaire (Individuals with an Intellectual Disability): Scale Development and Community Norms. Journal of Intellectual & Developmental Disability 32, 3, 214--221. http://dx.doi.org/10.1080/13668250701549450
[29]
Nick S. Dalton. 2013. Neurodiversity HCI. Interactions 20, 2, 72. http://dx.doi.org/10.1145/2427076.2427091
[30]
M.L. Desroches, K.A. Sethares, C. Curtin and J. Chung. 2019. Nurses' Attitudes and Emotions toward Caring for Adults with Intellectual Disabilities: Results of a Cross-Sectional, Correlational-Predictive Research Study. Journal of Applied Research in Intellectual Disabilities, 13. https://doi.org/10.1111/jar.12645
[31]
C. Di Lorito, A. Bosco, L. Birt and A. Hassiotis. 2018. Co-Research with Adults with Intellectual Disability: A Systematic Review 31, 5, 669--686. http://dx.doi.org/10.1111/jar.12435
[32]
A. Docherty, E. Harkness, M. Eardley, L. Townson and R. Chapman. 2006. 'What They Want - Yes, but What We Want - Bugger Us!'. In Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance, D. Mitchell Ed. Jessica Kingsley, London.
[33]
J. Evans, R. Huising, S.S. Silbey.2016. Handbook of Qualitative Organizational Research: Innovative Pathways and Methods. Accounting for Accounts: Crafting Ethnographic Validity through Team Ethnography, 143--155.
[34]
M. Fabri and P.C. S. Andrews. 2016. Hurdles and Drivers Affecting Autistic Students' Higher Education Experience: Lessons Learnt from the Multinational Autism&Uni Research Study. In Proceedings of International Technology, Education and Development Conference (INTED).
[35]
J.A. Fails, M.L. Guha and A. Druin. 2013. Methods and Techniques for Involving Children in the Design of New Technology for Children. HCI 6, 2, 85--166. http://dx.doi.org/10.1561/1100000018
[36]
L. Findler, N. Vilchinsky, and S. Werner. 2007. The Multidimensional Attitudes Scale toward Persons with Disabilities (Mas): Construction and Validation. Rehabilitation Counseling Bulletin 50, 3, 10. https://doi.org/10.1177/00343552070500030401
[37]
S. Flynn, L. Hulbert-Williams, R. Bramwell, D. Stevens-Gill and N. Hulbert-Williams. 2015. Caring for Cancer Patients with an Intellectual Disability: Attitudes and Care Perceptions of Uk Oncology Nurses. European Journal of Oncology Nursing 19, 5, 6. https://doi.org/10.1016/j.ejon.2015.03.002
[38]
M.E. Fonteyn, B. Kuipers and S.J. Grobe. 1993. A Description of Think Aloud Method and Protocol Analysis. Qual Health Res 3, 4, 430--441. http://dx.doi.org/10.1177/104973239300300403
[39]
C. Frauenberger, J. Good and W. Keay-Bright. 2010. Phenomenology, a Framework for Participatory Design. In Proceedings of ACM International Conference Proceeding Series. http://dx.doi.org/10.1145/1900441.1900474
[40]
P. Frumiento. 2019. I have a question: are you scared of people with learning disabilities like me?. The Guardian, UK. (11 Dec 2019). Retrived 10 Jan 2020 from https://www.theguardian.com/society/2019/dec/11/i-have-a-question-are-you-scared-of-people-with-learning-disabilities-like-me
[41]
L. Gilmore and M. Cuskelly. 2014. Vulnerability to Loneliness in People with Intellectual Disability: An Explanatory Model. Journal of Policy and Practice in Intellectual Disabilities 11, 3, 192--199. http://dx.doi.org/10.1111/jppi.12089
[42]
A. Girli, H.Y. Sari, G. Kirkim and S. Narin. 2016. University Students' Attitudes Towards Disability and Their Views on Discrimination. International Journal of Developmental Disabilities 62, 2, 9. https://doi.org/10.1179/2047387715Y.0000000008
[43]
L.D. Goegan, A.I. Radil and L.M. Daniels. 2018. Accessibility in Questionnaire Research: Integrating Universal Design to Increase the Participation of Individuals with Learning Disabilities. Learning Disabilities: A Contemporary Journal 16, 2, 177--190.
[44]
C.F. Goodey. 2015. Learning Disability and Inclusion Phobia: Past, Present, Future. Routledge, London.
[45]
S.E. Green. 2007. "We're Tired, Not Sad": Benefits and Burdens of Mothering a Child with a Disability. Social Science & Medicine 64, 1, 13. https://doi.org/10.1016/j.socscimed.2006.08.025
[46]
K. Gurusamy, N. Srinivasaraghavan and S. Adikari. Year. An Integrated Framework for Design Thinking and Agile Methods for Digital Transformation. In Proceedings of Springer International Publishing, 34--42.
[47]
R.P. Hastings, A. Beck and C. Hill. 2005. Positive Contributions Made by Children with an Intellectual Disability in the Family: Mothers'and Fathers'perceptions. Journal of Intellectual Disabilities 9, 2, 10. https://doi.org/10.1177/1744629505053930
[48]
D.B. Henry, C.N. Keys and F.E. Balcazar. 1996. The Community Living Attitudes Scale, Mental Retardation Form: Development and Psychometric Properties. Mental Retardation 34, 3, 9.
[49]
P. Heslop, P. Blair, P. Fleming, M. Hoghton, A. Marriott and L. Russ. 2013. Confidential Inquiry into Premature Deaths of People with Learning Disabilities (Cipold). 2013.
[50]
B. S. Hoppestad. 2013. Current Perspective Regarding Adults with Intellectual and Developmental Disabilities Accessing Computer Technology. Disability and Rehabilitation: Assistive Technology 8, 3, 4. http://dx.doi.org/10.3109/17483107.2012.723239
[51]
W. Horner-Johnson, C. Keys, D. Henry, K. Yamaki, F. Oi, K. Watanabe, H. Shimada and I. Fugjimura. 2002. Attitudes of Japanese Students toward People with Intellectual Disability. Journal of Intellectual Disability Research 46, 13. http://dx.doi.org/10.1046/j.1365--2788.2002.00406.x
[52]
T. Iacono, B. Lewis, J. Tracy, S. Hicks, P. Morgan, K. Récoché and R. McDonald. 2011. Dvd-Based Stories of People with Developmental Disabilities as Resources for Inter-Professional Education. Disability and Rehabilitation 33, 12, 11. http://dx.doi.org/10.3109/09638288.2010.520802
[53]
K. Johnson. 2009. No Longer Researching About Us without Us: A Researcher's Reflection on Rights and Inclusive Research in Ireland. British Journal of Learning Disabilities 37, 6. http://dx.doi.org/
[54]
E. Kaasinen, V. Roto, J. Hakulinen, T. Heimonen, J.P.P. Jokinen, H. Karvonen, T. Keskinen, H. Koskinen, Y. Lu, P. Saariluoma, H. Tokkonen and M. Turunen. 2015. Defining User Experience Goals to Guide the Design of Industrial Systems. Behaviour & Information Technology 34, 10, 976--991. http://dx.doi.org/10.1080/0144929X.2015.1035335
[55]
J.M. Keith, L. Bennetto and R.D. Rogge. 2015. The Relationship between Contact and Attitudes: Reducing Prejudice toward Individuals with Intellectual and Developmental Disabilities. Research in Developmental Disabilities 47, 12. https://doi.org/10.1016/j.ridd.2015.07.032
[56]
T. Keskinen, T. Heimonen, M. Turunen, J. Rajaniemi and Kauppinen, S. 2012. Symbolchat: A Flexible Picture-Based Communication Platform for Users with Intellectual Disabilities. Interacting with Computers 24, 5, 12. https://doi.org/10.1016/j.intcom.2012.06.003
[57]
C. Kiernan. 1999. Participation in Research by People with Learning Disability: Origins and Issues. British Journal of Learning Disabilities 27, 4. http://dx.doi.org/
[58]
R. Kitchin. 2014. Big Data, New Epistemologies and Paradigm Shifts 1, 1, 2053951714528481. http://dx.doi.org/10.1177/2053951714528481
[59]
A. Kittur, E.H. Chi and B. Suh. 2008. Crowdsourcing User Studies with Mechanical Turk. In Proceedings of SIGCHI Conference on Human Factors in Computing Systems (CHI '08). New York, 453--456. https://doi.org/10.1145/1357054.1357127
[60]
L.F. Langhaug, Y.B. Cheung, S.J.S. Pascoe, P. Chirawu, G. Woelk, R.J. Hayes and F.M. Cowan. 2011. How You Ask Really Matters: Randomised Comparison of Four Sexual Behaviour Questionnaire Delivery Modes in Zimbabwean Youth. Sexually Transmitted Infections 87, 2, 165--173. http://dx.doi.org/10.1136/sti.2009.037374
[61]
V. Leiter, M.W. Krauss, B. Anderson and N. Wells. 2004. The Consequences of Caring: Effects of Mothering a Child with Special Needs. Journal of Family Issues 25, 3, 24. https://doi.org/10.1177/0192513X03257415
[62]
S. Lewis and B. Stenfert-Kroese. 2010. An Investigation of Nursing Staff Attitudes and Emotional Reactions Towards Patients with Intellectual Disability in a General Hospital Setting. Journal of Applied Research in Intellectual Disabilities 23, 10. http://dx.doi.org/10.1111/j.1468--3148.2009.00542.x
[63]
A. Lovell and T. Mason. 2012. Caring for a Child with a Learning Disability Born into the Family Unit: Women's Recollections over Time. Scandinavian Journal of Disability Research 14, 1, 14. http://dx.doi.org/10.1080/15017419.2010.540827
[64]
A.C. Lyons, B. Cude, F.C. Lawrence and M. Gutter. 2005. Conducting Research Online: Challenges Facing Researchers in Family and Consumer Sciences. Family and Consumer Sciences Research Journal 33, 15. http://dx.doi.org/10.1177/1077727X04274116
[65]
M.J. Maboe, M. Eloff and Schoeman. 2018. The Role of Accessibility and Usability in Bridging the Digital Divide for Students with Disabilities in an E-Learning Environment. In Proceedings of Annual Conference of the South African Institute of Computer Scientists and Information Technologists (SAICSIT '18). New York, 222--228. https://doi.org/10.1145/3278681.3278708
[66]
W. Mason and S. Suri. 2012. Conducting Behavioral Research on Amazon'smechanical Turk. Behaviour Research Methods 44, 22. https://doi.org/10.3758/s13428-011-0124--6
[67]
R. McConkey and M. Truesdale. 2000. Reactions of Nurses and Therapists in Mainstream Health Services to Contact with People Who Have Learning Disabilities. Journal of Advanced Nursing 32, 5. http://dx.doi.org/10.1046/j.1365--2648.2000.01413.x
[68]
K.R. McVilly, R.J. Stancliffe, T.R. Parmenter and R.M. Burton-Smith. 2006. Self-Advocates Have the Last Say on Friendship. Disability & Society 21, 7, 15. http://dx.doi.org/10.1080/09687590600995287
[69]
MENCAP. 2007. Bullying wrecks lives: The experiences of children and young people with a learning disability Mencap Publications, London, https://www.mencap.org.uk/sites/default/files/2016-07/Bullying%20wrecks%20lives.pdf
[70]
D.E.M. Milton, B. Heasman and E. Sheppard. 2018. Double Empathy. In Encyclopedia of Autism Spectrum Disorders, Fred R. Volkmar Ed. Springer New York, New York, NY, 1--8.
[71]
D. Mitchell. 2006. Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance. Jessica Kingsley, London.
[72]
N. Mitter, A. Ali, and K. Scior. 2019. Stigma Experienced by Families of Individuals with Intellectual Disabilities and Autism: A Systematic Review. Research in Developmental Disabilities 89, 11. http://dx.doi.org/10.1016/j.ridd.2019.03.001
[73]
D. Morin, M. Rivard, C.P. Boursier, A.G. Crocker and J. Caron. 2015. Norms of the Attitudes toward Intellectual Disability Questionnaire. Journal of Intellectual Disability Research 59, 5. http://dx.doi.org/10.1111/jir.12146
[74]
D. Morin, M. Rivard, A.G. Crocker, C. Parent Boursier and J. Caron. 2013. Public Attitudes Towards Intellectual Disability: A Multidimensional Perspective Journal of Intellectual Disability Research 57, 13. https://doi.org/10.1111/jir.12008
[75]
D. Morin, P. Valois, A.G. Crocker, C. Robitaille, and T. Lopes. 2018. Attitudes of Health Care Professionals toward People with Intellectual Disability: A Comparison with the General Population. Journal of Intellectual Disability Research 62, 12. https://doi.org/10.1111/jir.12510
[76]
V.G. Motti and A. Evmenova. 2019. Designing Technologies for Neurodiverse Users: Considerations from Research Practice. In Proceedings of Springer International Publishing, 268--274.
[77]
R. Näslund and A. Gardelli. 2013. 'I Know, I Can, I Will Try': Youths and Adults with Intellectual Disabilities in Sweden Using Information and Communication Technology in Their Everyday Life. Disability & Society 28, 1, 12. http://dx.doi.org/10.1080/09687599.2012.695528
[78]
C.J. Nierse and T.A. Abma. 2011. Developing Voice and Empowerment: The First Step Towards a Broad Consultation in Research Agenda Setting. Journal of Intellectual Disability Research 55, 10. http://dx.doi.org/
[79]
M. Nind. 2014. What Is Inclusive Research? Bloomsbury, London.
[80]
M. Nind. 2016. Towards a Second Generation of Inclusive Research. In Inklusive Forschung. Gemeinsam Mit Menschen Mit Lernschwierigkeiten Forschen, Klinkhardt, Bad Heilbrunn, 186--198. http://nbn-resolving.org/urn:nbn:de:0111-pedocs-127665
[81]
M. Nind. 2017. The Practical Wisdom of Inclusive Research. Qualitative Research 17, 3, 278--288. http://dx.doi.org/10.1177/1468794117708123
[82]
H. Nissen and M. Janneck. 2019. Usability Evaluation of Online Questionnaires on Mobile Devices. In Proceedings of Mensch und Computer 2019 (MuC'19). New York, 521--526. https://doi.org/10.1145/3340764.3344450
[83]
P. O'Brien, R. McConkey and E. GarcíaIriarte. 2014. Co-Researching with People Who Have Intellectual Disabilities: Insights from a National Survey. Journal of Applied Research in Intellectual Disabilities 27, 10. http://dx.doi.org/
[84]
P. O'Brien, R. McConkey and E. Garcia-Iriarte. 2014. Co-Researching with People Who Have Intellectual Disabilities: Insights from a National Survey. Journal of Applied Research in Intellectual Disabilities 27, 1, 65--75. http://dx.doi.org/10.1111/jar.12074
[85]
C.A. Okoro, N.D. Hollis, A.C. Cyrus and S. Griffin-Blake. 2018. Prevalence of Disabilities and Health Care Access by Disability Status and Type among Adults - United States, 2016. MMWR Morb Mortal Wkly Rep 67, 32, 882--887. http://dx.doi.org/10.15585/mmwr.mm6732a3
[86]
M. Oliver. 1997. Emancipatory Research: Realistic Goal or Impossible Dream? C. and Mercer Barnes, G. Ed. The Disability Press, Leeds, 15--31.
[87]
H. Ouellette-Kuntz, P. Burge, D.B. Henry, E.A. Bradley and Leichner, P. 2003. Attitudes of Senior Psychiatry Residents toward Persons with Intellectual Disabilities. The Canadian Journal of Psychiatry 48, 8, 7. https://doi.org/10.1177/070674370304800805
[88]
H. Ouellette-Kuntz, P. Burge, H.K. Brown and E. Arsenault. 2010. Public Attitudes Towards Individuals with Intellectual Disabilities as Measured by the Concept of Social Distance 23, 2, 132--142. http://dx.doi.org/10.1111/j.1468--3148.2009.00514.x
[89]
H. Ouellette-Kuntz, P. Burge, H.K. Brown and E. Arsenault. 2010. Public Attitudes Towards Individuals with Intellectual Disabilities as Measured by the Concept of Social Distance. Journal of Applied Research in Intellectual Disabilities 23, 10. http://dx.doi.org/10.1111/j.1468--3148.2009.00514.x
[90]
S.L. Page and M.R. Islam. 2015. The Role of Personality Variables in Predicting Attitudes toward People with Intellectual Disability: An Australian Perspective. Journal of Intellectual Disability Research 59, 4. http://dx.doi.org/10.1111/jir.12180
[91]
S. Parsons, H. Daniels, J. Porter and C. Robertson. 2006. The Use of ICT by Adults with Learning Disabilities in Day and Residential Services. British Journal of Educational Technology 37, 13. http://dx.doi.org/10.1111/j.1467--8535.2005.00516.x
[92]
M. Patka, C.B. Keys, D.B. Henry and K.E. McDonald. 2013. Attitudes of Pakistani Community Members and Staff toward People with Intellectual Disability. American Journal on Intellectual and Developmental Disabilities 118, 1, 11. https://doi.org/10.1352/1944--7558--118.1.32
[93]
T.F. Pettigrew and L.R. Tropp. 2006. A Meta-Analytic Test of Intergroup Contact Theory. Journal of Personality and Social Psychology 90, 5, 32. http://dx.doi.org/10.1037/0022--3514.90.5.751
[94]
B.A. Phillips, S. Fortney and L. Swafford. 2019. College Students' Social Perceptions toward Individuals with Intellectual Disability. Journal of Disability Policy Studies 30, 1, 7. https://doi.org/10.1177/1044207318788891
[95]
K. Povee, B.J. Bishop and Roberts, L. D. 2014. The Use of Photovoice with People with Intellectual Disabilities: Reflections, Challenges and Opportunities. Disability & Society 29, 6, 14. http://dx.doi.org/10.1080/09687599.2013.874331
[96]
England Public Health. 2015. People with Learning Disabilities in England 2015: Main Report, 97.
[97]
H. Rae, K. McKenzie and G. Murray. 2011. The Impact of Training on Teacher Knowledge About Children with an Intellectual Disability. Journal of Intellectual Disabilities 15, 1, 9. http://dx.doi.org/10.1177/1744629511401168
[98]
D.M. Raymaker, S.K. Kapp, K.E. McDonald, M. Weiner, E. Ashkenazy and C. Nicolaidis. 2019. Development of the Aaspire Web Accessibility Guidelines for Autistic Web Users. Autism in Adulthood 1, 2, 146--157. http://dx.doi.org/10.1089/aut.2018.0020
[99]
D. Robinson and C. Goodey. 2018. Agency in the Darkness: 'Fear of the Unknown', Learning Disability and Teacher Education for Inclusion. International Journal of Inclusive Education 22, 4, 14. http://dx.doi.org/10.1080/13603116.2017.1370738
[100]
T. Rocha, M. Bessa, L. Magalhães and L. Cabral. 2015. Performing Universal Tasks on the Web: Interaction with Digital Content by People with Intellectual Disabilities. In Proceedings of XVI International Conference on Human Computer Interaction (Interacción '15). New York. https://doi.org/10.1145/2829875.2829897
[101]
D. Sankhla and K. Theodore. 2015. British Attitudes Towards Sexuality in Men and Women with Intellectual Disabilities: A Comparison between White Westerners and South Asians. Sexuality and Disability 33, 4, 16. https://doi.org/10.1007/s11195-015--9423--7
[102]
P. Savage, T. Wilkinson and C. Worth. 2006. My Life, My Choices. In Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance, D. Mitchell Ed. Jessica Kingsley, London.
[103]
C. Schauer, T. Floyd, J. Chin, A. Vandal and Alex L.S. 2019. Video or Verbal? A Randomised Trial of the Informed Consent Process Prior to Endoscopy. N. Z. Med. J. 132, 1489, 57--68.
[104]
S. Schmutz, A. Sonderegger and J. Sauer. 2019. Easy-to-Read Language in Disability-Friendly Web Sites: Effects on Nondisabled Users. Applied Ergonomics 74, 97--106. http://dx.doi.org/10.1016/j.apergo.2018.08.013
[105]
S. Schwab. 2017. The Impact of Contact on Students' Attitudes Towards Peers with Disabilities. Research in Developmental Disabilities 62, 5. https://doi.org/10.1016/j.ridd.2017.01.015
[106]
C. Schwartz and R. Armony-Sivan. 2001. Students' Attitudes to the Inclusion of People with Disabilities in the Community. Disability & Society 16, 3, 10. https://doi.org/10.1080/09687590120045978
[107]
K. Scior. 2011. Public Awareness, Attitudes and Beliefs Regarding Intellectual Disability: A Systematic Review 32, 6, 18. https://doi.org/10.1016/j.ridd.2011.07.005
[108]
K. Scior, J. Addai-Davis, M. Kenyon and J.C. Sheridan. 2013. Stigma, Public Awareness About Intellectual Disability and Attitudes to Inclusion among Different Ethnic Groups 57, 11, 1014--1026. http://dx.doi.org/10.1111/j.1365--2788.2012.01597.x
[109]
K. Scior, J. Addai-Davis, M. Kenyon and J.C. Sheridan. 2013. Stigma, Public Awareness About Intellectual Disability and Attitudes to Inclusion among Different Ethnic Groups. Journal of Intellectual Disability Research 57, 12. http://dx.doi.org/10.1111/j.1365--2788.2012.01597.x
[110]
K. Scior and A. Furnham. 2011. Development and Validation Of the Intellectual Disability Literacy Scale for Assessment of Knowledge, Beliefs and Attitudes to Intellectual Disability Research in Developmental Disabilities 32, 11. https://doi.org/10.1016/j.ridd.2011.01.044
[111]
K. Scior and A. Furnham. 2016. Causal Beliefs About Intellectual Disability and Schizophrenia and Their Relationship with Awareness of the Condition and Social Distance. Psychiatry Research 243, 8. https://doi.org/10.1016/j.psychres.2016.06.019
[112]
K. Scior and S. Werner. 2015. Changing Attitudes to Learning Disability: A review of the evidence Mencap, London, https://www.mencap.org.uk/sites/default/files/2016-08/Attitudes_Changing_Report.pdf
[113]
K. Scior. 2011. Public Awareness, Attitudes and Beliefs Regarding Intellectual Disability: A Systematic Review. Research in Developmental Disabilities 32, 6, 2164--2182. https://doi.org/10.1016/j.ridd.2011.07.005
[114]
K. Scior and L. Seewooruttun. 2014. Interventions Aimed at Increasing Knowledge and Improving Attitudes Towards People with Intellectual Disabilities among Lay People. Research in Developmental Disabilities 35, 12, 13. https://doi.org/10.1016/j.ridd.2014.07.028
[115]
E. Sen and S. Yurtsever. 2007. Difficulties Experienced by Families with Disabled Children. Journal for Specialists in Pediatric Nursing 12, 14. http://dx.doi.org/10.1111/j.1744--6155.2007.00119.x
[116]
A. Sinai, A. Strydom and A. Hassiotis. 2013. Evaluation of Medical Students' Attitudes Towards People with Intellectual Disabilities: A Naturalistic Study in One Medical School. Advances in Mental Health and Intellectual Disabilities 7, 1, 8. https://doi.org/10.1108/20441281311294666
[117]
L. Sitbon, M. Hoogstrate, J. Yule, S. Koplick, F. Bircanin and M. Brereton. 2018. A Non-Clinical Approach to Describing Participants with Intellectual Disability. In Proceedings of Proceedings of the 30th Australian Conference on Computer-Human Interaction (OzCHI '18). New York, 4. https://doi.org/10.1145/3292147.3292206
[118]
B.G. Skotko, S.P. Levine and R. Goldstein. 2011. Having a Brother or Sister with Down Syndrome: Perspectives from Siblings. American Journal of Medical Genetics 155, 11. http://dx.doi.org/10.1002/ajmg.a.34228
[119]
B.G. Skotko, S.P. Levine and R. Goldstein. 2011. Having a Son or Daughter with Down Syndrome: Perspectives from Mothers and Fathers. American Journal of Medical Genetics 155, 12. http://dx.doi.org/10.1002/ajmg.a.34293
[120]
R. Sterling and N. Rangaswamy. 2010. Constructing Informed Consent in ICT4D Research. ACM International Conference Proceeding Series. http://dx.doi.org/10.1145/2369220.2369264
[121]
I. Strnadová and J. Walmsley. 2018. Peer-Reviewed Articles on Inclusive Research: Do Co-Researchers with Intellectual Disabilities Have a Voice? Journal of Applied Research in Intellectual Disabilities 31, 9. https://doi.org/10.1111/jar.12378
[122]
I. Strnadová and J. Walmsley. 2018. Peer-Reviewed Articles on Inclusive Research: Do Co-Researchers with Intellectual Disabilities Have a Voice? Journal of Applied Research in Intellectual Disabilities 31, 1, 132--141. http://dx.doi.org/10.1111/jar.12378
[123]
D. Tamas, N. Brkic Jovanovic, M. Rajic, V.B. Ignjatovic and B.P. Prkosovacki. 2019. Professionals, Parents and the General Public: Attitudes Towards the Sexuality of Persons with Intellectual Disability. Sexuality and Disability 37, 2, 13. https://doi.org/10.1007/s11195-018-09555--2
[124]
E. Tartakovsky, A. Gafter-Shor and M. Perelman-Hayim. 2013. Staff Members of Community Services for People with Intellectual Disability and Severe Mental Illness: Values, Attitudes, and Burnout. Research in Developmental Disabilities 34, 11, 14. https://doi.org/10.1016/j.ridd.2013.08.026
[125]
J.D. Thornton, C. Sullivan, J.M. Albert, M. Cedeño, B. Patrick, J. Pencak, K.A. Wong, M.D. Allen, L. Kimble, H. Mekesa, G. Bowen and A.R. Sehgal. 2016. Effects of a Video on Organ Donation Consent among Primary Care Patients: A Randomized Controlled Trial. J GEN INTERN MED 31, 8, 832--839. http://dx.doi.org/10.1007/s11606-016--3630--5
[126]
M. Tonkin, J. Vitale, S. Herse, M. Williams, W. Judge and X. Wang. 2018. Design Methodology for the UX of HRI: A Field Study of a Commercial Social Robot at an Airport. In Proceedings of ACM, New York, NY, USA, 407--415. http://dx.doi.org/10.1145/3171221.3171270
[127]
L. Townson, S. Macauley, E. Harkness, R. Chapman, A. Docherty, J. Dias, M. Eardley and N. McNulty. 2004. We Are All in the Same Boat: Doing "People-Led Research'. British Journal of Learning Disabilities 32, 5. http://dx.doi.org/
[128]
R. Traustadottir. 1991. Mothers Who Care: Gender, Disability, and Family Life. Journal of Family Issues 12, 2, 17. https://doi.org/10.1177/019251391012002005
[129]
M. Ugur, D. Shastri, P. Tsiamyrtzis, M. Dcosta, A. Kalpakci, C. Sharp and I. Pavlidis. 2015. Evaluating Smartphone-Based User Interface Designs for a 2D Psychological Questionnaire. In Proceedings of 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp '15). New York, 275--282. https://doi.org/10.1145/2750858.2805851
[130]
C. Vignes, E. Godeau, M. Sentenac, N. Coley, F. Navarro, H. Grandjean and C. Arnaud. 2009. Determinants of Students' Attitudes Towards Peers with Disabilities. Developmental Medicine & Child Neurology 51, 6. http://dx.doi.org/10.1111/j.1469--8749.2009.03283.x
[131]
J. Walker and K. Scior. 2013. Tackling Stigma Associated with Intellectual Disability among the General Public: A Study of Two Indirect Contact Interventions. Research in Developmental Disabilities 34, 7, 10. https://doi.org/10.1016/j.ridd.2013.03.024
[132]
J. Walmsley. 2001. Normalisation, Emancipatory Research and Inclusive Research in Learning Disability. Disability & Society 16, 2, 8. https://doi.org/10.1080/09687590120035807
[133]
J. Walmsley, I. Strnadová and K. Johnson. 2018. The Added Value of Inclusive Research. Journal of Applied Research in Intellectual Disabilities 31, 8. https://doi.org/10.1111/jar.12431
[134]
J. Walmsley, I. Strnadová and K. Johnson. 2018. The Added Value of Inclusive Research. Journal of Applied Research in Intellectual Disabilities 31, 5, 751--759. http://dx.doi.org/10.1111/jar.12431
[135]
S. Werner and T. Araten-Bergman. 2017. Social Workers' Stigmatic Perceptions of Individuals with Disabilities: A Focus on Three Disabilities Journal of Mental Health Research in Intellectual Disabilities 10, 2, 14. https://doi.org/10.1080/19315864.2017.1284288
[136]
S. Werner and K. Scior. 2016. Interventions Aimed at Tackling Intellectual Disability Stigma: What Works and What Still Needs to Be Done. In Intellectual Disability and Stigma, K. and Werner Scior, S. Ed. Palgrave Macmillan, London, 129--147. https://doi.org/10.1057/978--1--137--52499--7_9
[137]
P. Williams. 2013. Web Site Usability Testing Involving People with Learning Disabilities Using Only Images and Audio to Access Information. Journal of Research in Special Educational Needs 13, 9. https://doi.org/10.1111/j.1471--3802.2012.01235.x
[138]
P. Williams and C. Hennig. 2015. Optimising Web Site Designs for People with Learning Disabilities. Journal of Research in Special Educational Needs 15, 1, 25--36. http://dx.doi.org/10.1111/1471--3802.12034
[139]
M. Yazbeck, K. McVilly and T.R. Parmenter. 2004. Attitudes toward People with Intellectual Disabilities: An Australian Perspective. Journal of Disability Policy Studies 15, 2, 14. https://doi.org/10.1177/10442073040150020401
[140]
G. Zarb. 1992. On the Road to Damascus: First Steps Towards Changing the Relations of Disability Research Production. Disability, Handicap & Society 7, 2, 13. http://dx.doi.org/10.1080/02674649266780161

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  1. "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities

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    CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
    April 2020
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