research-article

Value tensions in telecare: an explorative case study

Authors:

Jarl Kåre Reitan,

Anita DasAuthors Info & Claims

NordiCHI '18: Proceedings of the 10th Nordic Conference on Human-Computer Interaction

Pages 559 - 570

https://doi.org/10.1145/3240167.3240168

Published: 29 September 2018 Publication History

Abstract

We describe the results from a Norwegian case study of the attitudes of community-dwelling lung patients and health response center personnel toward a telecare service for such a patient group. The telecare service was intended to prevent exasperations in patients and employed a digital self-report application for remote monitoring of patients' health condition. Based on interviews conducted after a service trial of ten weeks, patient and provider-perceived benefits and concerns related to the service are described. Comparing the data from the two stakeholder groups, we highlight key tensions related to patient safety, what it constitutes as a value, and views on how it can be promoted or undermined through telecare. The way potential technology-embedded value biases can fuel patient-provider tensions are also discussed.

Our objective is to inform value-centered design of telecare technology and services by providing an in-depth empirical understanding of relevant value perspectives and tensions.

References

[1]

Stinne Aaløkke Ballegaard, Jonathan Bunde-Pedersen, and Jakob E. Bardram. 2006. Where to, Roberta?: reflecting on the role of technology in assisted living. In Proceedings of the 4th Nordic conference on Human-computer interaction: changing roles (NordiCHI '06), 373--376.

Digital Library

[2]

K. Barnett, S. W. Mercer, M Norbury, G. Watt, S. Wyke, and B. Guthrie. 2012. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. The Lancet. 380, 9836, 37--43.

[3]

Mark A. Blythe, Andrew F. Monk, and Kevin Doughty. 2005. Socially dependable design: The challenge of ageing populations for HCI. Interact. Comput. 17, 6, 672--689.

Digital Library

[4]

A. Borning and M. Muller. 2012. Next Steps for Value Sensitive Design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 1125--1134.

Digital Library

[5]

Gilbert Cockton. 2004. Value-centred HCI. In Proceedings of the third Nordic conference on Human-computer interaction (NordiCHI '03), 149--160.

Digital Library

[6]

Mario Conci and Chiara Leonardi. 2013. Exploring the Acceptance of a Monitoring-based Telecare Service. In Assisitve Technology: From Research to Practice, IOS Press.

[7]

Yngve Dahl, Babak Farshchian, Thomas Vilarinho, Jorunn L. Helbostad, Ather Nawaz, Arnhild J. Nygård, and Per Bendik Wik. 2015. Stakeholder Attitudes Toward and Values Embedded in a Sensor-Enhanced Personal Emergency Response System. Interact. Comput. 28, 5.

[8]

Yngve Dahl and Kristine Holbø. 2012. "There are no secrets here!": professional stakeholders' views on the use of GPS for tracking dementia patients. In Proceedings of the 14th international conference on Human-computer interaction with mobile devices and services (MobileHCI '12), 133--142.

Digital Library

[9]

Yngve Dahl and Kristine Holbø. 2012. Value biases of sensor-based assistive technology: case study of a GPS tracking system used in dementia care. In Proceedings of the Designing Interactive Systems Conference (DIS '12), 572--581.

Digital Library

[10]

Anita Das, Arild Faxvaag, and Dag Svanæs. 2015. The Impact of an eHealth Portal on Health Care Professionals' Interaction with Patients: Qualitative Study. Journal of Medical Internet Research. 17, 11, e267.

[11]

Anita Das and Dag Svanæs. 2013. Human-centred methods in the design of an e-health solution for patients undergoing weight loss treatment. International Journal of Medical Informatics. 82, 11, 1075--1091. http://dx.doi.org/

[12]

Anna Davies, Lorna Rixon, and Stanton Newman. 2013. Systematic review of the effects of telecare provided for a person with social care needs on outcomes for their informal carers. Health Soc Care Community. 21, 6, 582--597.

[13]

Andrew Eccles. 2013. The complexities of technology-based care: telecare as perceived by care practitioners. Issues in Social Science. 1, 1, 1--20.

[14]

Batya Friedman, Peter H. Kahn, and Alan Borning. 2006. Value Sensitive Design and Information Systems. In Human-Computer Interaction in Management Information Systems: Foundations Advances in Management Information Systems, Armonk, New York: M.E. Sharpe.

[15]

Batya Friedman, Peter H. Kahn, and Alan Borning. 2002. Value sensitive design: Theory and methods. Technical Report 02-12-01. Dept. of Computer Science & Engineering, University of Washington, Washington, Seattle, WA.

[16]

Veslemøy Guise and Siri Wiig. 2017. Perceptions of telecare training needs in home healthcare services: a focus group study. BMC Health Services Research. 17, 1, 164.

[17]

Julienne Hanson, John Percival, Hazel Aldred, Simon Brownsell, and Mark Hawley. 2007. Attitudes to telecare among older people, professional care workers and informal carers: a preventative strategy or crisis management? Universal Access in the Information Society. 6, 2, 193--205.

Digital Library

[18]

Kristine Holbø, Silje Bøthun, and Yngve Dahl. 2013. Safe walking technology for people with dementia: what do they want? In Proceedings of the 15th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '13), 1--8.

Digital Library

[19]

IHME. 2013. The Global Burden of Disease: Generating Evidence, Guiding Policy. Technical Report. Institute for Health Metrics and Evaluation.

[20]

Christina Kelley, Lauren Wilcox, Wendy Ng, Jade Schiffer, and Jessica Hammer. 2017. Design Features in Games for Health: Disciplinary and Interdisciplinary Expert Perspectives. In Proceedings of the 2017 Conference on Designing Interactive Systems (DIS '17)., 69--81.

Digital Library

[21]

R. Landau, S. Werner, G. K. Auslander, N. Shoval, and J. Heinik. 2009. Attitudes of Family and Professional Care-Givers towards the Use of GPS for Tracking Patients with Dementia: An Exploratory Study. The British Journal of Social Work. 39, 4, 670--692.

[22]

Christopher A. Le Dantec, Erika Shehan Poole, and Susan P. Wyche. 2009. Values as lived experience: evolving value sensitive design in support of value discovery. . In In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '09), 1141--1150.

Digital Library

[23]

Thomas Lehnert, Dirk Heider, Hanna Leicht, Sven Heinrich, Sandro Corrieri, Melanie Luppa, Steffi Riedel-Heller, and Hans-Helmut König. 2011. Health Care Utilization and Costs of Elderly Persons With Multiple Chronic Conditions. Medical Care Research and Review. 68, 4, 387--420.

[24]

Stephen Lindsay, Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy, participatory design and people with dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), 521--530.

Digital Library

[25]

C. L. Lowery, J. M. Bronstein, T. L. Benton, and D. A. Fletcher. 2014. Distributing medical expertise: the evolution and impact of telemedicine in arkansas. Health Affairs. 33, 2, 235--243.

[26]

Noëmi Manders-Huits. 2011. What Values in Design? The Challenge of Incorporating Moral Values into Design. Science and Engineering Ethics. 17, 2, 271--287.

[27]

Maggie Mort, Carl R. May, and Tracy Williams. 2003. Remote Doctors and Absent Patients: Acting at a Distance in Telemedicine? Science, Technology, & Human Values. 28, 2, 274--295.

[28]

Maggie Mort, Celia Roberts, and Blanca Callén. 2013. Ageing with telecare: care or coercion in austerity? Sociology of Health & Illness. 35, 6, 799--812.

[29]

Ingunn Brita Moser and Hilde Thygesen. 2015. Exploring possibilities in telecare for aging societies. . In Ethics of care Critical advances in international perspective, Policy Press at the University of Bristol.

[30]

Helen Nissenbaum. 1998. Values in the design of computer systems. Computers and Society. 38--39.

[31]

Helen Nissenbaum. 2001. How Computer Systems Embody Values. IEEE Computer. 120, 118--119.

Digital Library

[32]

Jeannette Pols and Dick Willems. 2011. Innovation and evaluation: taming and unleashing telecare technology. Sociol Health Illn. 33, 3, 484--498.

[33]

L. Robinson, D. Hutchings, L. Corner, T. Finch, J. Hughes, K. Brittain, and J. Bond. 2007. Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia. Health, Risk & Society. 9, 4, 389--406.

[34]

Milton Rokeach. 1973. The nature of human values. New York: The Free Press.

[35]

Andrea Taylor, Angus Aitken, David Godden, and Judith Colligan. 2011. Group pulmonary rehabilitation delivered to the home via the internet: feasibility and patient perception. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11), 3083--3092.

Digital Library

[36]

Peter-Paul Verbeek. 2005. What Things Do: Philosophical Reflections on Technology, Agency, and Design. The Pennsylvania State University Press.

[37]

Peter-Paul Verbeek. 2015. COVER STORY: Beyond interaction: a short introduction to mediation theory. interactions. 22, 3, 26--31.

Digital Library

[38]

Joseph Wherton, Paul Sugarhood, Rob Procter, Sue Hinder, and Trisha Greenhalgh. 2015. Co-production in practice: how people with assisted living needs can help design and evolve technologies and services. Implementation Science. 10, 75, 1--10.

Cited By

Harrington CMartin-Hammond ABray K(2022)Examining Identity as a Variable of Health Technology Research for Older Adults: A Systematic ReviewProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517621(1-24)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3517621

Recommendations

Automated detection of medication administration errors in neonatal intensive care

Display Omitted We developed computerized algorithms to detect medication administration errors.We defined administration error rates for high-risk medications using the algorithms.Compared to incident reporting, the algorithms had better sensitivity ...
Identifying barriers to the effective use of clinical reminders: bootstrapping multiple methods
Special issue: Human-centered computing in health information systems. Part 2: Evaluation

Advances in electronic medical record capabilities enable clinical reminders to inform providers when recommended actions are "due" for a patient. Despite evidence that they improve adherence to guidelines, the Veteran's Health Administration (VHA) has ...
Surveillance of methadone-related adverse drug events using multiple public health data sources

Healthcare safety and quality surveillance is increasingly conducted by public health agencies. We describe a biomedical informatics method that uses multiple public health data sources to perform surveillance of methadone-related adverse drug events. ...

Comments

Please enable JavaScript to view thecomments powered by Disqus.

Information & Contributors

Information

Published In

cover image ACM Other conferences

NordiCHI '18: Proceedings of the 10th Nordic Conference on Human-Computer Interaction

September 2018

1002 pages

ISBN:9781450364379

DOI:10.1145/3240167

General Chairs:
Tone Bratteteig
University of Oslo
,
Frode Eika Sandnes
Oslo Metropolitan University
,
Publications Chair:
Gerd Berget
Oslo Metropolitan University

Copyright © 2018 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 29 September 2018

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Author Tags

Qualifiers

Research-article

Funding Sources

The Research Council of Norway

Conference

NordiCHI'18

NordiCHI'18: Nordic Conference on Human-Computer Interaction

September 29 - October 3, 2018

Oslo, Norway

Acceptance Rates

NordiCHI '18 Paper Acceptance Rate 59 of 240 submissions, 25%;

Overall Acceptance Rate 379 of 1,572 submissions, 24%

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

1
Total Citations
View Citations
230
Total Downloads

Downloads (Last 12 months)12
Downloads (Last 6 weeks)1

Reflects downloads up to 21 Nov 2024

Other Metrics

View Author Metrics

Citations

Cited By

Harrington CMartin-Hammond ABray K(2022)Examining Identity as a Variable of Health Technology Research for Older Adults: A Systematic ReviewProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517621(1-24)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3517621

View Options

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Media

Figures

Other

Tables

View Table of Contents