Article

Participatory design with proxies: developing a desktop-PDA system to support people with aphasia

Authors:

Jordan L. Boyd-Graber,

Sonya S. Nikolova,

Karyn A. Moffatt,

Kenrick C. Kin,

Lester W. Mackey,

Marilyn M. Tremaine,

Maria M. KlaweAuthors Info & Claims

CHI '06: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Pages 151 - 160

https://doi.org/10.1145/1124772.1124797

Published: 22 April 2006 Publication History

Abstract

In this paper, we describe the design and preliminary evaluation of a hybrid desktop-handheld system developed to support individuals with aphasia, a disorder which impairs the ability to speak, read, write, or understand language. The system allows its users to develop speech communication through images and sound on a desktop computer and download this speech to a mobile device that can then support communication outside the home. Using a desktop computer for input addresses some of this population's difficulties interacting with handheld devices, while the mobile device addresses stigma and portability issues. A modified participatory design approach was used in which proxies, that is, speech-language pathologists who work with aphasic individuals, assumed the role normally filled by users. This was done because of the difficulties in communicating with the target population and the high variability in aphasic disorders. In addition, the paper presents a case study of the proxy-use participatory design process that illustrates how different interview techniques resulted in different user feedback.

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Nevsky ABircanin FCruice MWilson SSimperl ENeate T(2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
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Cheng LChouldechova A(2023)Overcoming Algorithm Aversion: A Comparison between Process and Outcome ControlProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581253(1-27)Online publication date: 19-Apr-2023
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Index Terms

Participatory design with proxies: developing a desktop-PDA system to support people with aphasia
1. Human-centered computing
  1. Human computer interaction (HCI)
2. Social and professional topics

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The participatory design of a sound and image enhanced daily planner for people with aphasia
CHI '04: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Aphasia is a cognitive disorder that impairs speech and language. From interviews with aphasic individuals, their caregivers, and speech-language pathologists, the need was identified for a daily planner that allows aphasic users to independently manage ...
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Aphasia is an acquired communication deficit that impacts the different language modalities. PDAs have a form factor and feature set that suggest they could be effective communication tools for people with aphasia. An ethnographic study was conducted ...
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Aphasia is an acquired communication deficit that impacts the different language modalities. PDAs have a form factor and feature set that suggest they could be effective communication tools for people with aphasia. An ethnographic study was conducted ...

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cover image ACM Conferences

CHI '06: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

April 2006

1353 pages

ISBN:1595933727

DOI:10.1145/1124772

Editors:
Rebecca Grinter
Georgia Institute of Technology, USA
,
Thomas Rodden
University of Nottingham, UK
,
Paul Aoki
Intel, USA
,
Ed Cutrell
Microsoft, USA
,
Robin Jeffries
Google, USA
,
Gary Olson
University of Michigan, USA

Copyright © 2006 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Published: 22 April 2006

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April 22 - 27, 2006

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Cited By

Nevsky ABircanin FCruice MWilson SSimperl ENeate T(2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675598
Cochrane KNguyen CCao YRoestel NJones LGirouard A(2023)Adaptive Soft Switches: Co-Designing Fabric Adaptive Switches with Occupational Therapists for Children and Adolescents with Acquired Brain InjuryProceedings of the Seventeenth International Conference on Tangible, Embedded, and Embodied Interaction10.1145/3569009.3572734(1-14)Online publication date: 26-Feb-2023
https://dl.acm.org/doi/10.1145/3569009.3572734
Cheng LChouldechova A(2023)Overcoming Algorithm Aversion: A Comparison between Process and Outcome ControlProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581253(1-27)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581253
Ahmadpour NLoke LGray CCao YMacdonald CHart R(2023)Understanding how technology can support social-emotional learning of children: a dyadic trauma-informed participatory design with proxiesProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581032(1-17)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581032
Curtis HYou ZDeary WTudoreanu MNeate T(2023)Envisioning the (In)Visibility of Discreet and Wearable AAC DevicesProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580936(1-19)Online publication date: 19-Apr-2023
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Woodward KKanjo EBrown DMcGinnity THarold G(2023)In the hands of users with intellectual disabilities: co-designing tangible user interfaces for mental wellbeingPersonal and Ubiquitous Computing10.1007/s00779-023-01752-x27:6(2171-2191)Online publication date: 3-Oct-2023
https://doi.org/10.1007/s00779-023-01752-x
Dirks S(2022)Ethical challenges in inclusive software development projects with people with cognitive disabilitiesProceedings of Mensch und Computer 202210.1145/3543758.3547575(556-560)Online publication date: 4-Sep-2022
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Curtis HNeate TVazquez Gonzalez C(2022)State of the Art in AAC: A Systematic Review and TaxonomyProceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3517428.3544810(1-22)Online publication date: 23-Oct-2022
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Tamburro CNeate TRoper AWilson S(2022)Comic Spin: A Comic Creation Tool Enabling Self-expression for People with AphasiaACM Transactions on Accessible Computing10.1145/350850015:2(1-27)Online publication date: 19-May-2022
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Neate TKladouchou VWilson SShams S(2022)“Just Not Together”: The Experience of Videoconferencing for People with Aphasia during the Covid-19 PandemicProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3502017(1-16)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3502017
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