Effective Communication For Health Care Providers: A Guide To Caring For People With Disabilities
Effective Communication For Health Care Providers: A Guide To Caring For People With Disabilities
Effective Communication For Health Care Providers: A Guide To Caring For People With Disabilities
Acknowledgements
Thanks to the members of the Healthy Delawareans with Disabilities
Advisory Council who contributed their experience and knowledge to
this guide.
Suggested Citation
Riddle, I., Romelczyk, S., & Sparling, E. (2011). Effective Communication
for Health Care Providers: A Guide to Caring for People with Disabilities.
Newark, DE. Center for Disabilities Studies, University of Delaware.
Alternate Formats
For additional copies or alternate formats please visit the Healthy
Delawareans with Disabilities website at www.gohdwd.org or contact
the Center for Disabilities Studies, University of Delaware at (302) 831-
6974.
Funding Source
This report was supported by Grant/Cooperative Agreement Number
5U59 DD000277-02, Centers for Disease Control and Prevention (CDC),
National Center on Birth Defects and Developmental Disabilities
(NCBDDD). The content of this report is the responsibility of the authors
and does not necessarily represent the views of CDC.
Center for disabilities studies | University of Delaware | iii
CONTENTS
Introduction . . . . . . . . . . . . . . . . . . . 1
COMMUNICATION. . . . . . . . . . . . . . . . 3
Provider Duty . . . . . . . . . . . . . . . . . 3
Limits . . . . . . . . . . . . . . . . . . . . . 5
Practical Solutions . . . . . . . . . . . . . . . 9
Respectful Language. . . . . . . . . . . . . 10
Accessible Materials. . . . . . . . . . . . . . 14
Alternate Formats. . . . . . . . . . . . . . . 17
Accessible Meetings . . . . . . . . . . . . . 20
DISABILITIES. . . . . . . . . . . . . . . . . 23
Additional Resources. . . . . . . . . . . . . 36
iv | Effective Communication for Health Care Providers
Center for disabilities studies | University of Delaware | 1
Introduction
About 50 million people in the United States have a disability. According
to the U.S. Public Health Service and the Department of Health and
Human Services, this represents more than 20% of Americans (Office of
Disability, 2008). In Delaware, there are about 179,000 individuals with a
disability.
PART 1
THE REQUIREMENT FOR
EFFECTIVE COMMUNICATION
The Americans with Disabilities Act (ADA) is civil rights legislation that
prohibits discrimination against individuals with disabilities.
This applies to state and federal agencies (Title II) and to places of
public accommodation (Title III), which includes most businesses. The
professional office of a health care provider and hospitals are specifically
mentioned in the regulation.
Provider Duty
For health care providers and facilities, there is a duty to provide
effective communication to all patients and their families or caregivers,
including people with disabilities.
The U.S. Department of Justice expects that the health care provider will
consult with the patient and carefully consider his or her self-assessed
communication needs. The ultimate decision as to what measures to
take rests with the provider, provided that the method chosen results in
effective communication.
Health care providers and their staff must decide what assistance is
appropriate, depending on the nature of the communication and the
patient’s preferred method of communication.
Limits
The ADA has limits on how far a business must
go in providing effective communication.
Businesses are not expected to provide any
services that would “fundamentally alter” the
business’s goods and services or that would
cause an “undue burden.” Many providers are
unsure about how to interpret these concepts.
Tax Credit
Tax Deduction
Businesses of all sizes may take advantage of this tax deduction. Under
Internal Revenue Code, Section 190, businesses can take a business
expense deduction of up to $15,000 per year for costs of removing
barriers in facilities or vehicles.
Center for disabilities studies | University of Delaware | 7
PART 2
COMMUNICATION BEST PRACTICES
The following suggestions will help your staff to provide the best
communication possible to people with disabilities. Suggestions for
communicating with individuals with specific types of disabilities are
found in Part 3.
Not all disabilities will impact communication. If you are not sure,
ask. Once you know, usually simple accommodations can be made to
achieve effective communication.
Center for disabilities studies | University of Delaware | 9
Practical solutions
The aim is to figure out practical solutions that allow you to
communicate with patients who have disabilities, fit with your type
of business, and comply with the ADA. Some easy solutions work
in relatively simple and straightforward situations. Other, more
sophisticated solutions may be needed if the information being
communicated is more extensive or complex.
You can speak or read information to a patient who is blind or has low
vision.
You can use facial or body gestures that express information, point to
information, or write notes to communicate with a patient who is deaf
or hard of hearing.
You can read notes written by a patient who has a speech disability,
or read or listen to the words the patient selects on a “communication
board.”
Patients who are blind may also need assistance in finding an item or in
manuevering through your office.
For people who are blind or have low vision, printed information can
be provided in large print, in Braille, on a computer disk, or in an audio
format (such as an audio CD or MP3 player), depending on what is
usable for the particular patient. A magnifying glass can also help a
person with low vision to read printed materials.
For people who are deaf or hard of hearing, spoken information can be
provided using a sign language interpreter, an oral interpreter, a printed
transcript of the words that are usually spoken, or a service called “real-
time captioning.”
Many people who have been deaf since birth have limited literacy skills.
Keep that in mind if the communication method you consider using
relies on reading and/or writing.
10 | Effective Communication for Health Care Providers
Respectful Language
People First Language
Our spoken language often conveys more than the words themselves.
It is important to speak appropriately and respectfully with and
about an individual with a disability. When addressing people with
disabilities, it is important to refer to the person first rather than their
disability. People’s disabilities are only one part of them; they are not
their defining characteristic. Therefore, when speaking to people with
disabilities consider using what is called People First Language. Table 1
offers suggestions on how to communicate with and about people with
disabilities.
Only refer to the disability if it is relevant to the conversation. Avoid
using words such as “victim,” “unfortunate,” and “afflicted.” In addition,
when referring to people without disabilities use “people without
disabilities” as opposed to “normal” or “able-bodied.”
Center for disabilities studies | University of Delaware | 11
Source: “Communicating With and About People with Disabilities,” National Center on Birth Defects and
Developmental Disabilities, http://www.cdc.gov/ncbddd/disabilityandhealth/pdf/DisabilityPoster_Photos.
pdf
12 | Effective Communication for Health Care Providers
RELAY SERVICES
Delaware Relay
Delaware Relay is a free service that
provides full telephone accessibility
to people who are deaf, hard of
hearing, deaf-blind, or have speech
or communication difficulties. Relay
service is available 24 hours a day,
seven days a week and 365 days a
year. Using this service, the operator voices everything you type and
types everything you say. Free equipment is available for eligible
parties. The operator is available by dialing 7-1-1 on any phone or
cellphone.
TTY
A person who is deaf, hard of hearing, deaf-blind or has a speech
disorder uses a text telephone, or TTY, to type his/her conversation to an
operator. The operator then reads the typed conversation to a hearing
person. Then the operator relays the hearing person’s spoken words by
typing them back to the TTY user. Dial 711 or 800-232-5460.
Sprint IP Relay
You can place a relay call from any internet connection with a computer
or wireless device that has AOL Instant Messenger (AIM) access. Visit
www.sprintip.com for more information.
Spanish Relay
TTY users can type in Spanish and the conversation will be relayed in
Spanish. TTY users can also request Spanish to English or English to
Spanish translation via relay. To make a Spanish relay call, dial 877-335-
7595 and instruct the operator how you want your call translated.
For more information on any of these services, visit the Delaware Relay
Services website at: http://www.delawarerelay.com/about/what.php.
To locate a certified sign language interpreter, you can ask the patient
if they have a suggestion for an interpreter they have used before, or
you can visit the Registry for Interpreters for the Deaf at www.rid.org.
This website hosts a searchable database for finding a certified sign
language interpreter in your area.
14 | Effective Communication for Health Care Providers
Accessible Materials
When not speaking face to face with patients, providers often rely on
printed materials, voice recordings and websites to
convey critical information about practice procedures
or guidelines for seeking emergency treatment. These
messages should be accessible and take into account
the needs of people with disabilities. Although it is
nearly impossible to create documents that consider
each person’s unique abilities, you can increase access
to education and information by designing materials
with the broadest range of user abilities in mind. Try to
present the same content in multiple formats.
PRINT
The following guidelines will increase usability of your
print materials for many patients.
• Use simple and direct language. Keep the
reading level at an elementary level. There are
simple ways to check reading level, including a
feature in Microsoft Word.
• Use large font, at least 12-point with extra space between the
lines.
• Use clean, simple fonts. Avoid fancy fonts and italics LIKE THIS
or LIKE THIS.
• Do not clutter text with shading, overlays, or use pictures
behind text in documents.
• Avoid glossy white paper; instead use matte, off-white paper.
• Make sure there is sufficient contrast between text and
background colors. It is generally better when there is a dark
font on a light background, as opposed to the alternative.
• Include photos of individuals with disabilities in your
publications.
WebAim has an online tool to assist with assessing if your color choices
provide sufficient contrast. Try it at
http://webaim.org/resources/contrastchecker.
Center for disabilities studies | University of Delaware | 15
WEBSITES
Perceivable
• Provide text alternatives for non-text content.
• Provide captions and other alternatives for multimedia.
• Create content that can be presented in different ways, including
by assistive technologies, without losing meaning.
• Make it easier for users to see and hear content.
Operable
• Make all functionality available from a keyboard.
• Give users enough time to read and use content.
• Do not use visual features that could trigger seizures.
• Help users navigate and find content.
Understandable
• Make text readable and understandable.
• Make content appear and operate in predictable ways.
• Help users avoid and correct mistakes.
Robust
• Maximize compatibility with current and future user tools.
For more information on how to evaluate your website, you can visit:
www.webaim.org and use the WAVE evaluation tool at http://wave.
webaim.org/.
The ADA Best Practices Tool Kit for State and Local Governments
provides an easy to understand overview of the elements of
accessibility. See the section titled, “Website Accessibility” Under Title II
of the ADA at http://www.ada.gov/pcatoolkit/chap5toolkit.htm.
16 | Effective Communication for Health Care Providers
POSTERS
SLIDE PRESENTATIONS
Text content
Keep the text on your slides clear and simple.
Graphic content
Note that graphics often cannot be read with screen readers and other
text-based devices.
Avoid:
• Slide transitions
• Busy slide backgrounds and chart filler patterns
• Over-crowding text
• Color schemes providing low contrast
• Charts without text descriptions
• Videos that are not captioned.
Alternate formats
Even when print materials are designed for maximum usability, not
everyone will be able to access information in the same way. Providers
need to be prepared to provide information in alternative formats.
Examples of alternate formats include: Braille, audio recording, and
electronic pdf or text file.
18 | Effective Communication for Health Care Providers
LARGE PRINT
Individuals who have low vision may not be able to read standard sized
print on your handouts.
Use a bold serif font (such as Times New Roman) for body text and
a bold simple sans-serif font (such as Arial) for headings and other
information that is set apart from body text. Do not use any compressed
or condensed fonts.
Use a minimum of 1.5 line spacing; use double spacing when possible.
Do not use small caps, italics, or all caps for text. Use initial caps and
lower case for titles and text.
ELECTRONIC FILES
Note that PDF files are often not readable by screen reader technology.
When posting documents on the web, it is a good idea to make them
available in more than one format, such as PDF, HTML and a text version.
AUDIO RECORDING
Accessible Meetings
Any person hosting a meeting should consider the needs of all
meeting participants. It is important to host meetings in a usable and
comfortable environment for everyone. When planning a meeting,
there are some basic considerations to ensure
that the meeting is accessible to people with
disabilities.
PART 3
WORKING WITH PEOPLE WITH
DISABILITIES
There are many types of disabilities, such as those that affect a
person’s hearing, vision, movement, thinking, remembering, learning,
communicating, mental health, and social relationships.
Disability can impact communication. Providers and their staff can learn
about each patient and the impact of their disability and make simple
accommodations to ensure effective communication.
1
U.S. Legal. Retrieved from www.definitions.uslegal.com
2
Erickson, W., Lee, C., von Schrader, S. (2010, March 17). Disability Statistics from the 2008 Ameri-
can Community Survey (ACS). Ithaca, NY: Cornell University Rehabilitation Research and Training
Center on Disability Demographics and Statistics (StatsRRTC). Retrieved from www.disabilitysta-
tistics.org
Center for disabilities studies | University of Delaware | 25
Relay Delaware
Free telecommunication services for
communication between people who are
deaf, hard of hearing, deaf-blind, have a
speech disorder and hearing.
Call 7-1-1
800-232-5470 Toll Free
800-232-5460 TTY
877-335-7590 Voice Carry Over
800-232-5460 Hearing Carry Over
877-335-7274 Speech To Speech
877-335-7595 Spanish
http://www.delawarerelay.com
Ask persons with vision loss what kinds of accommodations they will
need when scheduling an appointment.
Good lighting is essential. Avoid any type of glare that can disturb
people’s vision.
3
U.S. Legal. Retrieved from www.definitions.uslegal.com
4
Erickson, W., Lee, C., von Schrader, S. (2010, March 17). Disability Statistics from the 2008 Ameri-
can Community Survey (ACS). Ithaca, NY: Cornell University Rehabilitation Research and Training
Center on Disability Demographics and Statistics (StatsRRTC). Retrieved from www.disabilitysta-
tistics.org
5
Partially excerpted from Disability Etiquette, Tips On Interacting With People With Disabilities,
United Spinal Association (2008). New York.
Center for disabilities studies | University of Delaware | 27
Resources
6
Kennedy Krieger Institute. Communication/Speech/Language Disorder. Retrieved from http://
www.kennedykrieger.org/kki_diag.jsp?pid=1079
7
American Speech-Language-Hearing Association. Retrieved from http://www.asha.org/re-
search/reports/speech_voice_language.htm
Center for disabilities studies | University of Delaware | 29
Resources
Delaware Speech-Language-Hearing
Association
P.O. Box 7383
Newark, DE 19711
For information, email dsha@dsha.org.
American Speech-Language-Hearing
Association
2200 Research Boulevard
Rockville, MD 20850
301-296-5700 Phone
301-296-5650 TTY
301-296-8580 Fax
http://www.asha.org
8
American Association on Intellectual and Developmental Disabilities. FAQ on Intellectual Disability.
Retrieved from http://www.aaidd.org/content_104.cfm
9
Centers for Disease Control and Prevention. Healthy Brain Initiative. Retrieved from http://www.cdc.gov/
aging/healthybrain/
10
Abbreviated from the definition of developmental disability as outlined in the Americans with Disabili-
ties Act (ADA), Section 102 (8)
11
American Association on Intellectual and Developmental Disabilities, FAQ on Intellectual Disability.
Retrieved from http://www.aaidd.org/content_104.cfm
12
Erickson, W., Lee, C., von Schrader, S. (2010, March 17). Disability Statistics from the 2008 American
Community Survey (ACS). Ithaca, NY: Cornell University Rehabilitation Research and Training Center on
Disability Demographics and Statistics (StatsRRTC). Retrieved from www.disabilitystatistics.org
Center for disabilities studies | University of Delaware | 31
ABOUT PHYSICAL
AND MOBILITY DISABILITIES
A physical or mobility disability means that a person has limited fine
or gross motor ability function of a limb that necessitates the use
of adaptive equipment such as a cane, crutches, walker, wheelchair,
scooter or other assistive device. Mobility impairments may result
from a number of different medical conditions, such as multiple
sclerosis, cerebral palsy, spina bifida, diabetes, muscular dystrophy, and
paraplegia13 or from injuries sustained in motor vehicle crashes or falls.
Mobility limitations can be temporary or permanent and vary greatly in
their extent. It is important to assess each individual’s abilities on a case-
by-case basis.
Resources
13
Adapted from Those of Us DisLabeled: A Guide to Awareness and Understanding. University of Kentucky Human Develop-
ment Institute, Cooperative Extension Service. Retrieved from http://ada.ky.gov/mobility_imp_def.htm
14
Erickson, W., Lee, C., von Schrader, S. (2010, March 17). Disability Statistics from the 2008 American Community Survey (ACS).
Ithaca, NY: Cornell University Rehabilitation Research and Training Center on Disability Demographics and Statistics (StatsRRTC).
Retrieved from www.disabilitystatistics.org
34 | Effective Communication for Health Care Providers
According to the 2008 National Survey on Drug Use and Health, which
is administered by the Substance Abuse and Mental Health Services
Administration (SAMHSA), 13.4% of adults in the U.S. received treatment
for a mental health problem in either inpatient or outpatient settings.16
15
National Alliance on Mental Illness. What is Mental Illness: Mental Illness Facts. Retrieved from http://www.nami.org/
template.cfm?section=about_mental_illness
16
National Institute of Mental Health. Use of Mental Health Services and Treatment Among Adults. Retrieved from http://
www.nimh.nih.gov/statistics/3USE_MT_ADULT.shtml
17
Partially adapted from United Spinal Association, Disability Etiquette: Tips on Interacting with People with Disabilities (2008). Jackson
Heights, NY.
36 | Effective Communication for Health Care Providers
Additional Resources
Below are resources to strengthen accessibility and effective
communication in your practice.
ACCESSIBILITY
BUSINESS
ADA Best Practices Tool Kit for State and Local Governments
Website Accessibility Under Title II of the ADA
Although designed for municapalities, this document provides an
overview of basic accessibility issues.
http://www.ada.gov/pcatoolkit/chap5toolkit.htm
DISABILITY ETIQUETTE
PROVIDER TRAINING
Notice of Non-Discrimination,
Equal Opportunity and Affirmative Action