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TreatYoSelf: empathy-driven behavioral intervention for marginalized youth living with HIV

Authors:

Gabriela Marcu,

Shuvadittya Saha,

Ressa Reneth Sarreal,

Nazanin AndalibiAuthors Info & Claims

PervasiveHealth '16: Proceedings of the 10th EAI International Conference on Pervasive Computing Technologies for Healthcare

Pages 69 - 76

Published: 16 May 2016 Publication History

Abstract

Behavioral intervention technologies are well suited to addressing health behavior such as medication adherence, but only if successfully integrated into a user's daily life. Little is known about how to design such technologies to be adoptable, adaptable, useful, and feasible in everyday life. We report on the design process for TreatYoSelf, a smartphone application designed to improve medication adherence among youth living with HIV through reminders and positive reinforcement. Using participatory design, our aim was to understand factors related to adoption and acceptance of behavioral intervention technology as part of daily life. Two challenges of living with HIV led to an empathy-driven approach in our design process: (1) HIV is a stigmatized condition, which (2) disproportionately affects the marginalized populations of young African American men who have sex with men and transgender women. We discuss five empathy-driven design strategies: positive and nonjudgmental tone; minimal, avatar-based gamification; motivational and corny messages; nondisclosure through neutral signifiers; and social support through camaraderie. Our approach enabled us to identify and work through factors, often related to stigma and marginalization, which would lead to rejection of TreatYoSelf use in daily life.

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Cited By

Bezabih AGerling KAbebe WVanden Abeele V(2023)Challenges and Opportunities for Interactive Technology to Support Parents of HIV-Positive Children in Ethiopia in the Disclosure ProcessProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580756(1-17)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580756
Mequanint Bezabih AGerling KAbebe WVanden Abeele V(2022)The Challenge of (Non-)Disclosure: Exploring the Lived Experience of Ethiopian Adolescents with HIV and Their Attitudes Toward TechnologyProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3502132(1-19)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3502132
Maestre JZdziarska PMin ABaglione AChung CShih P(2021)Not Another Medication Adherence AppProceedings of the ACM on Human-Computer Interaction10.1145/34341714:CSCW3(1-28)Online publication date: 5-Jan-2021
https://dl.acm.org/doi/10.1145/3434171
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Index Terms

TreatYoSelf: empathy-driven behavioral intervention for marginalized youth living with HIV
1. Applied computing
  1. Life and medical sciences
    1. Consumer health
2. Human-centered computing
  1. Human computer interaction (HCI)
    1. HCI design and evaluation methods

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Published In

cover image Guide Proceedings

PervasiveHealth '16: Proceedings of the 10th EAI International Conference on Pervasive Computing Technologies for Healthcare

May 2016

339 pages

ISBN:9781631900518

General Chairs:
Jesus Favela
CICESE, Mexico
,
Nadir Weibel
University of California, San Diego

Publisher

ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering)

Brussels, Belgium

Publication History

Published: 16 May 2016

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Cited By

Bezabih AGerling KAbebe WVanden Abeele V(2023)Challenges and Opportunities for Interactive Technology to Support Parents of HIV-Positive Children in Ethiopia in the Disclosure ProcessProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580756(1-17)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580756
Mequanint Bezabih AGerling KAbebe WVanden Abeele V(2022)The Challenge of (Non-)Disclosure: Exploring the Lived Experience of Ethiopian Adolescents with HIV and Their Attitudes Toward TechnologyProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3502132(1-19)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3502132
Maestre JZdziarska PMin ABaglione AChung CShih P(2021)Not Another Medication Adherence AppProceedings of the ACM on Human-Computer Interaction10.1145/34341714:CSCW3(1-28)Online publication date: 5-Jan-2021
https://dl.acm.org/doi/10.1145/3434171
Haimson OGorrell DStarks DWeinger ZBernhaupt RMueller FVerweij DAndres JMcGrenere JCockburn AAvellino IGoguey ABjørn PZhao SSamson BKocielnik R(2020)Designing Trans TechnologyProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376669(1-13)Online publication date: 21-Apr-2020
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Marcu GMisra ACaro KPlank MLeader ABarsevick AMinsky NOsmani V(2018)BounceProceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare10.1145/3240925.3240927(25-34)Online publication date: 21-May-2018
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Maestre JMacLeod HConnelly CDunbar JBeck JSiek KShih PMandryk RHancock MPerry MCox A(2018)Defining Through ExpansionProceedings of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3173574.3174131(1-13)Online publication date: 21-Apr-2018
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Salib GMaestre JNimley KDowshen NMarcu GMandryk RHancock MPerry MCox A(2018)The Role of Reflection and Context in Medication Adherence Tracking for People Living with HIVExtended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3170427.3188631(1-6)Online publication date: 20-Apr-2018
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