Papers by Karen Rothenberg
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The Journal of Law, Medicine & Ethics, 1992
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Science, 1995
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Science, 1997
The use of genetic information in the workplace poses societal risks that have an impact on emplo... more The use of genetic information in the workplace poses societal risks that have an impact on employment possibilities, health insurance, and privacy. Individuals who might otherwise believe they can benefit from genetic testing may decline it because of their fear of employment discrimination and lack of privacy in the workplace. As a consequence, the future of research on the benefits and risks of predictive genetic testing may also be compromised. Thus, policy-makers need to evaluate legislative and regulatory strategies to address these concerns. This paper analyzes state and federal legislative approaches to genetic information in the workplace and concludes with a discussion of policy considerations and recommendation.
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Science, 1999
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Genetics in Medicine, 2012
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Journal of health care law & policy, 2002
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Genetics occupies a place in the public imagination with which few areas of science can compete. ... more Genetics occupies a place in the public imagination with which few areas of science can compete. It is popularly understood to be the “science of life,” concerned with the essence of humanity: a subject that generates both awe and fear. These divergent emotions are encapsulated in the “promise versus peril” debate: the promise of an end to human disease is countered by the peril embodied in the discriminatory capacity of genetic essentialism. This debate has become ingrained in popular culture, and its dramatic potential has been effectively realized in theatre. Plays have always been written and performed as expressions of social and cultural concerns. Drama is uniquely able to address salient issues and to manipulate the way they are perceived through characters with whom the audience identifies and sympathizes. In this way, theatre engages in a dialogue with public opinion and social policy. Plays are vehicles for exploring connections and parallels between eugenics and the “new”...
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Bulletin of Science, Technology & Society, 1996
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Indiana Health Law Review, 2013
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The Georgetown law journal, 2014
The use of whole-genome sequencing in biomedical research is expected to produce dramatic advance... more The use of whole-genome sequencing in biomedical research is expected to produce dramatic advances in human health. The increasing use of this powerful, data-rich new technology in research, however, will inevitably give rise to incidental findings (IFs)-findings with individual health or reproductive significance that are beyond the aims of the particular research-and the related questions of whether and to what extent researchers have an ethical obligation to return IFs. Many have concluded that researchers have an ethical obligation to return some findings in some circumstances but have provided vague or context-dependent approaches to determining which IFs must be returned and when. As a result, researchers have started returning IFs inconsistently, giving rise to concerns about legal liability in circumstances in which notification could have potentially prevented injury. Although it is clear that ethical guidance should not be automatically codified as law and that crafting et...
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Hofstra law review, 1999
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Journal of health and human resources administration, 1989
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Specialty law digest. Health care (Monthly), 1991
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Specialty law digest. Health care (Monthly), 1990
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Journal of the American Medical Women's Association (1972)
Current public health policy encourages partner notification to protect those at risk of HIV infe... more Current public health policy encourages partner notification to protect those at risk of HIV infection. Provider experiences with partner notification, domestic violence, and women with HIV compel a reassessment of this strategy. In a survey of 136 health care providers in Baltimore, substantial numbers reported knowledge of their HIV-infected patients' experiences with domestic violence before and after partner notification. Providers believed that fear of physical abuse, emotional abuse, and abandonment are important reasons why many female patients resist partner notification. Provider opposition to partner notification was strong in cases where female patients faced a risk of domestic violence. The realization that HIV-infected women fear and experience domestic violence has broad implications for health care practice. The authors recommend changes in provider practices to insure that the risk of domestic violence is identified and addressed, and that partner notification st...
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This article, prepared for the 2011 Wiley A. Branton Symposium at Howard Law School, provides a s... more This article, prepared for the 2011 Wiley A. Branton Symposium at Howard Law School, provides a snapshot of how current law and practice generate mixed messages about prenatal genetic testing and abortion. The ability to screen and to test for genetic conditions prenatally is expanding, not only because of technological innovations but also because of increased legal and financial incentives. At the same time that prenatal genetic testing is expanding, abortion – one option pregnant women have after testing – is contracting. Federal and state legislation restricts abortion services, for example, by reducing or prohibiting funding; banning the types or limiting the timing of procedures; regulating facilities and physician conduct; and requiring patients to submit to counseling or other informed consent requirements. The first two parts of this article briefly describe the state of screening and testing today, innovations in non-invasive testing, and the obstacles to and restrictions ...
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Papers by Karen Rothenberg