Papers by Elizabeth Capezuti
Journal of Clinical Nursing, Oct 22, 2012
Journal of Gerontological Nursing, Aug 1, 2017
The Journal of nursing home research, 2016
Springer eBooks, Jun 14, 2018
International Journal of Environmental Research and Public Health, Jul 3, 2021
Innovation in Aging, Dec 1, 2020
Innovation in Aging, Jun 30, 2017
Journal of Clinical Nursing, Dec 7, 2021
Aim and objectivesTo examine the implementation (reach, dose, fidelity, adaptations, satisfaction... more Aim and objectivesTo examine the implementation (reach, dose, fidelity, adaptations, satisfaction), mechanisms of impact (attitude, subjective norm, perceived behavioural control and intention) and context of the PRITAH intervention.BackgroundInvoluntary treatment, defined as care provided against one's will, is highly prevalent in home care. The PRITAH intervention comprises policy, workshops, coaching and alternative measures for professional caregivers to prevent and reduce involuntary treatment in home care.DesignQuasi‐experimental study.MethodsEight home care teams from two care organisations participated in this study. Guided by the Theory of Planned Behavior, the mechanisms of impact were evaluated with questionnaires. Implementation and context were assessed using attendance lists, evaluation questionnaires, focus groups and logbooks. The study adhered to the TREND checklist.Results124 of 133 eligible professional caregivers participated (93%). All four components were delivered with minor deviations from protocol. Participants' subjective norms and perceived behavioural control changed over time in favour of the intervention group. No effects were seen for attitude and intention. Barriers included an unclear policy and lack of communication between stakeholders. The multidisciplinary approach and possibility to discuss involuntary treatment with the specialised nurse were described as facilitators.ConclusionsPrevention and reduction of involuntary treatment at home is feasible in home care practice and contributes to changing professional caregivers' subjective norms and perceived behavioural control, prerequisites for behavioural change in order to prevent and reduce involuntary treatment. A follow‐up study on the effectiveness of PRITAH on actual use, prevention and reduction of involuntary treatment in home care is needed. Future studies should emphasise the role of family caregivers and GPs and actively involve them in the prevention and reduction of involuntary treatment.Relevance to clinical practiceInvoluntary treatment is commonly used in dementia home care and professional and family caregivers need to be supported in prevention and reduction of involuntary treatment in people with dementia.
Nursing Ethics, Dec 6, 2021
Journal of Advanced Nursing, Oct 11, 2018
Journal of Pain and Symptom Management
Outcomes 1. Describe the most common health-illness transitions experienced by patients with panc... more Outcomes 1. Describe the most common health-illness transitions experienced by patients with pancreatic cancer 2. Describe the relationship between management of health-illness transitions and psychological distress Original Research Background Health-illness transitions (HITs) include care transitions (changes in cancer status, treatment, or goals of care) and personal transitions (physical, emotional, social, or spiritual changes). Management of HITs is an important self-management skill because unmanaged HITs can increase distress. HITs experienced during pancreatic cancer have not been previously described, and patients with pancreatic cancer may have an abbreviated opportunity to learn self-management of HITs. Research Objectives To elucidate how patients with pancreatic cancer experience and manage HITs and whether HITs are associated with distress. Methods We enrolled patients with pancreatic cancer undergoing chemotherapy at Memorial Sloan Kettering Cancer Center. We assessed extent and management of HITs via the Measurement of Transitions in Cancer Scale and evaluated psychological distress via the Distress Thermometer (DT). Open-ended questions explored transitions not captured by the existing scale and the influence of COVID-19 on experience and management of HITs. Descriptive statistics were used to summarize demographic and clinical characteristics, HIT variables, and distress scores. We calculated Spearman's correlations between distress and unmanaged transitions and used thematic analysis for examination of qualitative data. Results Among 55 participants (median age = 70;98% pancreatic adenocarcinoma;median time since diagnosis = 4 months), all experienced at least 1 HIT and managed transitions moderately well. Physical (95%) and emotional (93%) transitions were most common. Unmanaged transitions and distress were correlated;severely distressed participants (7-10 on the DT) reported more HITs and worse management. Participants suggested new transition types: financial and caregiver. COVID-19 increased distress and complicated transition management. Participants reported that HITs made self-management more difficult and identified facilitators and barriers. Conclusion Patients with pancreatic cancer experience multiple HITs, which, when unmanaged, are associated with distress. Implications for Research, Policy, or Practice Findings about HITs can inform interventions targeting self-management skill building to alleviate distress and improve quality of life among patients with pancreatic cancer. Because HITs may vary for patients with different cancers, cancer-specific examination and intervention development will be needed.
Journal Of Advanced Nursing [ISSN 0309-2402], v. 72 sup. 1, p. 10, (Septiembre 2016), 2016
Innovation in Aging, 2020
People with cognitive impairment may experience the care provided by their caregiver(s) as unnece... more People with cognitive impairment may experience the care provided by their caregiver(s) as unnecessary or undesirable, which is expressed by behaviors such as resisting the efforts of a caregiver or preventing the caregiver to perform or assist with ADL such as bathing, dressing and toileting. This can lead to stress, agitation and aggression for both the care recipient and the caregiver, and places the caregiver in a complex dilemma. Should the caregiver force hygiene or respect the person’s autonomy to refuse care? It is difficult for caregivers to find a balance between quality of care and safety, while accepting the person’s autonomy. Caregivers in long-term care often feel the necessity to provide care against the will of people with a cognitive impairment, including physical restraints, psychotropic medication, and non-consensual care. This symposium provides an international perspective with presenters from Belgium, Switzerland, Germany, and the Netherlands. The first present...
NICHE™: Nurses Improving Care for Healthsystems Elders, 2019
Principles and Practice of Geriatric Surgery, 2020
Cancer Nursing, 2020
Background Most cancer treatment is provided in the ambulatory setting; thus, it is important to ... more Background Most cancer treatment is provided in the ambulatory setting; thus, it is important to know what issues ambulatory oncology nurses identify in their practice with older cancer patients as well as resources that are helpful or are needed. Objective The aim of this study was to capture ambulatory oncology nurses’ perceptions of the unique aspects of caring for older patients and to present the development process, content validity testing, and psychometric evaluation of a survey designed to denote nurse perceptions of older adult care. Methods An expert panel and 2 focus groups informed the development of a 34-item survey scored on a 5-point Likert-type agreement scale and 2 open-ended questions. Psychometric testing and descriptive statistics summarized the quantitative responses. Using thematic analysis, we identified the themes from the open-ended responses. Results The survey demonstrated good psychometric qualities. A total of 401 participants, mostly staff from large, academic cancer centers, reported an average total score of 3.76, indicating generally positive perceptions of older adult care. The 269 (67%) open-ended responses were categorized into 4 main themes: concerns over medical issues, the need for specialized services, adequate support systems, and appropriate communication. Conclusions Although most perceived their geriatric practice environment favorably, nurses recognized the complexity of caring for older adults with cancer. They identified gaps in care, such as the need for geriatric specialists and better community resources, paid by insurance. Implications for Practice Nurses need more time in the clinic to address complex advanced care planning, symptom burden and home services of older adults with cancer. Each institution should seek feedback from nurses to guide resource allocation.
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Papers by Elizabeth Capezuti