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DigiSwitch: design and evaluation of a device for older adults to preserve privacy while monitoring health at home

Published: 11 November 2010 Publication History

Abstract

Home monitoring represents an appealing alternative for older adults considering out-of-home long term care and an avenue for informal caregivers and health care providers to gain decision-critical information about an older adults' health and well-being. However, privacy concerns about having 24/7 monitoring, especially video monitoring, in the home environment have been cited as a major barrier in the design of home monitoring systems. In this paper we describe the design and evaluation of "DigiSwitch", a health informatics technology designed to allow older adults to view information as it is collected about them and temporarily cease transmission of data for privacy reasons. Results from a series of iterative user studies suggest that control over the transmission of monitoring data from the home is helpful for maintaining user privacy. The studies demonstrate that older adults are able to use DigiSwitch to monitor and direct the collection and transmission of health information in their homes, providing these participants with a way to simultaneously maintain privacy and benefit from home monitoring technology.

References

[1]
Acquisti, A., and Gross, R. 2006. Imagined communities: awareness, information sharing, and privacy on the Facebook. In Proceedings of the 6th Privacy Enhancing Technologies Workshop (PET), Lecture Notes in Computer Science, 4258, 36--58.
[2]
Administration on Aging. Retrieved Mar 1, 2010. http://www.aoa.gov
[3]
Beach, S., Schulz, R. Bruin, W., Downs, J., Musa, D., and Matthews, J. 2008. Privacy attitudes and quality of life technology in disabled and non-disabled baby boomers and older adults. The Gerontologist, 48, 2 (Nov. 2008), 46.
[4]
Bellotti, V., Back, M., Edwards, W.K., Grinter, R.E., Henderson, A, and Lopes, C. 2002. Making sense of sensing systems: five questions for designers and researchers. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Minneapolis, MN, April 20-25, 2002).
[5]
Blanson Henkemans, O. A., Caine, K.E, Rogers, W.A., Fisk, A.D., Neerinex, M.A., and de Ruyter, B. 2007. Medical monitoring for independent living: user-centered design of smart home technologies for older adults. In Proceedings of the Med-e-Tel Conference for eHealth, Telemedicine and Health Information and Communication Technologies (Luxembourg City, Luxembourg, April 18-20, 2007).
[6]
Bishop, L.S., Holmes, B.J., and Kelley, C.M. 2005. National Consumer Health Privacy Survey. California HealthCare Foundation, Oakland, CA.
[7]
Buhr, G.T., Kuchibhatia, M., and Clipp, E.C. 2005. Caregivers' reasons for nursing home placement: clues for improving discussions with families prior to the transition. The Gerontologist, 46, 1 (Aug. 2005), 52--61.
[8]
Cahill, E., Lewis, L.M., Barg, F.K., and Bogner, H.R. 2009. "You don't want to burden them": older adults' views on family involvement in care. Journal of Family Nursing, 15, 3 (Aug. 2009), 295--317.
[9]
Caine, K.E. 2009. Visual sensing devices in home-care systems. In Proceedings of the Security and Privacy in Medical and Home Care Systems Workshop (Chicago, IL, November 13, 2009).
[10]
Caine, K.E., Fisk, A.D., and Rogers, W.A. 2006. Benefits and privacy concerns of a home equipped with a visual sensing system: a perspective from older adults. In Proceedings of the Human Factors and Ergonomics Society Annual Meeting (San Francisco, CA, October 16-20, 2006).
[11]
Caine, K.E., Fisk, A.D., and Rogers, W.A. 2007. Designing privacy conscious aware homes for older adults. In Proceedings of the Human Factors and Ergonomics Society Annual Meeting (Baltimore, MD, October 1-5, 2007).
[12]
Camp, L.J., and Connelly, K. 2007. Systematic Design for Privacy in Ubicomp. In Digital Privacy: Theory, Technologies and Practices, A. Acquisti, S. De Capitani di Vimercati, S. Gritzalis, and C. Lambrinoudakis, Taylor & Frances, New York, NY, 327--343.
[13]
Consolvo, S., Smith, I.E., Matthews, T., LaMarca, A.,Tabert, J., and Powledge, P. 2005. Location disclosure to social relations: why, when, & what people want to share. In Proceedings of the Conference on Human Factors in Computing Systems (Portland, OR, April 2-7, 2005).
[14]
Crowley, J., Coutaz, J., and Berard, F. 2001. Perceptual user interfaces: things that see. Communications of the ACM, 43, 3 (Mar. 2000), 54--64.
[15]
Dawes, C., Phillips, C.D., Rose, M., Holan, S., and Sherman, M. 2002. A national survey of assisted living facilities. The Gerontologist, 43, 6 (Oct. 2003), 875--882.
[16]
Edwards,W. K., and Grinter, R. At home with ubiquitous computing: seven challenges. In Proceedings of the Conference on Ubiquitous Computing (Seoul, South Korea, September 21-24, 2008).
[17]
Ethical Technology in the Homes of Seniors. Retrieved Mar 1, 2010. http://ethos.indiana.edu
[18]
Fisk, R.D., Rogers, W.A., Charness, N., Czaja, S.J., and Sharit, J. 2009. Designing for Older Adults: Principles and Creative Human Factors Approaches. 2nd Ed. CRC Press, Boca Raton, FL.
[19]
Ganguli, M., Seaberg, E., Belle, S., Fischer, L., and Kuller, L.H. 1993. Cognitive impairment and the use of health services in an elderly rural population: the MoVIES project. Monongahela Valley elders survey. Journal of the American Geriatrics Society, 41, 10 (Oct. 1993), 1065--1070.
[20]
Guralnik, J.M., Alecxih, L., Branch, L.G., and Wiener, J.M. 2002. Medical and long-term care costs when older persons become more dependent. American Journal of Public Health, 92, 8 (Aug 2002), 1244--1245.
[21]
Kumaraguru, P., and Cranor, L. 2005. Privacy indexes: a survey of Westin's studies. Institute for Software Research International (ISRI), Carnegie Mellon University. Retrieved June 1, 2010. http://www.cs.cmu.edu/~ponguru/Carnegie Mellon University-ISRI-05-138.pdf
[22]
Lederer, S., Mankoff, J., and Dey, A.K. 2003. Who wants to know what when? Privacy preference determinants in ubiquitous computing. In Proceedings of Conference on Human Factors in Computing Systems (Ft. Lauderdale, FL, April 5-10, 2003).
[23]
Lorenzen-Huber, L., Boutain, M., Shankar, K., Camp, L.J., and Connelly, K. 2010. Privacy, independence, and relationships: older adults' perceptions of home-based ubiquitous technologies. Ageing International.
[24]
Mui, A., and Burnette, D. 1994. A comparative profile of frail elderly persons living alone and those living with others. Journal of Gerontological Social Work, 21, 3&4 (Aug. 1994), 5--26.
[25]
Mutschler, P.H. 1997. The effects of income on home modification: can they afford to stay put? In Staying Put: Adapting the Places Instead of the People, S. Lanspery, and J. Hyde, Eds. Baywood Publishing Company, Inc., Amityville, NY, 149--168.
[26]
Neustaedter, C., Greenberg, S., and Boyle, M. 2006. Blur filtration fails to preserve privacy for home-based video conferencing. ACM Transactions on Computer-Human Interactions, 13, 1 (Mar 2006), 1--36.
[27]
Olson, J.S., Grudin, J., and Horvitz, E. 2005. A study of preferences for sharing and privacy. In Proceedings of the Conference on Human Factors in Computing Systems (Portland, OR, April 2-7, 2005).
[28]
Pynoos, J. & Regnier, V. 1997. Design directives in home adaptation. In Staying Put: Adapting the Places Instead of the People, S. Lanspery, and J. Hyde, Eds. Baywood Publishing Company, Inc., Amityville, NY, 41--54.
[29]
Ross, P.E. 2004. Managing care through the air. IEEE Spectrum (Dec. 2004), 26--31.
[30]
Stead, W.W., and Lin, H.S. 2009. Computational technology for effective health care: Immediate steps and strategic directions. National Academies Press, Washington, D.C. Retrieved Mar 3, 2010. http://www.nlm.nih.gov/pubs/reports/comptech_prepub.pdf
[31]
Tsai, J.Y., Kelley, P., Drielsma, P., Cranor, L.F., Hong, J., and Sadeh, N. 2009. Who's viewed you? The impact of feedback in a mobile location-sharing application. In Proceedings of the Conference on Human Factors in Computing Systems (Boston, MA, April 4-9, 2009).
[32]
Warren, S.D., and Brandeis, L. 1890. The right to privacy. Harvard Law Review 193, 193--220.
[33]
Zarsky, T.Z. 2003. Thinking outside the box: considering transparency, anonymity, and pseudonymity as overall solutions to the problems in information privacy in the internet society. University of Miami Law Review 58, 991--1044.

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  • (2022)Privacy Lessons Learnt from Deploying an IoT Ecosystem in the HomeProceedings of the 2022 European Symposium on Usable Security10.1145/3549015.3554205(98-110)Online publication date: 29-Sep-2022
  • (2022)Examining Identity as a Variable of Health Technology Research for Older Adults: A Systematic ReviewProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517621(1-24)Online publication date: 29-Apr-2022
  • (2021)Towards Building Community Collective Efficacy for Managing Digital Privacy and Security within Older Adult CommunitiesProceedings of the ACM on Human-Computer Interaction10.1145/34329544:CSCW3(1-27)Online publication date: 5-Jan-2021
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cover image ACM Other conferences
IHI '10: Proceedings of the 1st ACM International Health Informatics Symposium
November 2010
886 pages
ISBN:9781450300308
DOI:10.1145/1882992
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Published: 11 November 2010

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Author Tags

  1. aging in place
  2. health monitoring
  3. home
  4. older adult
  5. privacy

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IHI '10
IHI '10: ACM International Health Informatics Symposium
November 11 - 12, 2010
Virginia, Arlington, USA

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Cited By

View all
  • (2022)Privacy Lessons Learnt from Deploying an IoT Ecosystem in the HomeProceedings of the 2022 European Symposium on Usable Security10.1145/3549015.3554205(98-110)Online publication date: 29-Sep-2022
  • (2022)Examining Identity as a Variable of Health Technology Research for Older Adults: A Systematic ReviewProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517621(1-24)Online publication date: 29-Apr-2022
  • (2021)Towards Building Community Collective Efficacy for Managing Digital Privacy and Security within Older Adult CommunitiesProceedings of the ACM on Human-Computer Interaction10.1145/34329544:CSCW3(1-27)Online publication date: 5-Jan-2021
  • (2020)Tangible PrivacyProceedings of the ACM on Human-Computer Interaction10.1145/34151874:CSCW2(1-28)Online publication date: 15-Oct-2020
  • (2020)Understanding Older Adults' Participation in Design WorkshopsProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376299(1-15)Online publication date: 21-Apr-2020
  • (2019)Local Standards for Anonymization Practices in Health, Wellness, Accessibility, and Aging Research at CHIProceedings of the 2019 CHI Conference on Human Factors in Computing Systems10.1145/3290605.3300692(1-14)Online publication date: 2-May-2019
  • (2019)Acceptability of notifications delivered to older adults by technology-based assisted living servicesUniversal Access in the Information Society10.1007/s10209-019-00665-yOnline publication date: 6-Jul-2019
  • (2018)"You don't want to be the next meme"Proceedings of the Fourteenth USENIX Conference on Usable Privacy and Security10.5555/3291228.3291241(143-157)Online publication date: 12-Aug-2018
  • (2017)Designing Augmented, Domestic Environments to Support Ageing in PlaceAssistive Augmentation10.1007/978-981-10-6404-3_7(117-129)Online publication date: 12-Nov-2017
  • (2016)Addressing physical safety, security, and privacy for People with visual impairmentsProceedings of the Twelfth USENIX Conference on Usable Privacy and Security10.5555/3235895.3235923(341-354)Online publication date: 22-Jun-2016
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