research-article

The transition of stroke survivors from hospital to home: understanding work and design opportunities

Authors:

Bernd Ploderer,

Jonathon Stuart,

Theresa L. Green,

Jennifer MullerAuthors Info & Claims

OzCHI '17: Proceedings of the 29th Australian Conference on Computer-Human Interaction

Pages 1 - 9

https://doi.org/10.1145/3152771.3152772

Published: 28 November 2017 Publication History

Abstract

A growing body of HCI research explores designs to support rehabilitation after stroke. While rehabilitation is a major part of a stroke survivor's recovery, it is not the only part that could benefit from HCI work. This paper aims to provide a rich understanding of the work required by stroke survivors and their caregivers when they leave hospital and transition back to the home environment. We conducted a thematic analysis of 318 posts in an Australian online community. The findings highlight the breadth of work on top of rehabilitation and other efforts to manage the impact of their stroke. The outcome of stroke can affect everyday life work, from household chores to transportation to managing relationships. Stroke survivors also engage in biographical work in an attempt to reconstruct their personal narrative. Based on these findings we discuss opportunities for design: managing fatigue, intimate relationships, reflection, and forming a narrative. We hope that these opportunities will encourage HCI work to support people with chronic conditions in their transition back home.

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Cited By

Houben MBrankaert RGosen Mvan Overloop VIJsselsteijn W(2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
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Afuro Egbe DBrereton MPloderer B(2023)Using Online Discussions to Understand Challenges and Design Opportunities in Dementia CareProceedings of the 35th Australian Computer-Human Interaction Conference10.1145/3638380.3638394(211-220)Online publication date: 2-Dec-2023
https://dl.acm.org/doi/10.1145/3638380.3638394
Kabir KWiese J(2023)A Meta-Synthesis of the Barriers and Facilitators for Personal Informatics SystemsProceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies10.1145/36108937:3(1-35)Online publication date: 27-Sep-2023
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Index Terms

The transition of stroke survivors from hospital to home: understanding work and design opportunities
1. Human-centered computing
  1. Human computer interaction (HCI)
    1. Empirical studies in HCI

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Published In

cover image ACM Other conferences

OzCHI '17: Proceedings of the 29th Australian Conference on Computer-Human Interaction

November 2017

678 pages

ISBN:9781450353793

DOI:10.1145/3152771

Conference Chair:
Margot Brereton
Queensland University of Technology
,
Editors:
Alessandro Soro
Queensland University of Technology
,
Dhaval Vyas
Queensland University of Technology
,
Bernd Ploderer
Queensland University of Technology
,
Ann Morrison
University of Southern Queensland
,
Jenny Waycott
University of Melbourne
,
Margot Brereton
Queensland University of Technology

Copyright © 2017 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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Published: 28 November 2017

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OzCHI '17

OzCHI '17: 29th Australian Conference on Human-Computer Interaction

November 28 - December 1, 2017

Queensland, Brisbane, Australia

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OzCHI '17 Paper Acceptance Rate 74 of 157 submissions, 47%;

Overall Acceptance Rate 362 of 729 submissions, 50%

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Cited By

Houben MBrankaert RGosen Mvan Overloop VIJsselsteijn W(2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642556
Afuro Egbe DBrereton MPloderer B(2023)Using Online Discussions to Understand Challenges and Design Opportunities in Dementia CareProceedings of the 35th Australian Computer-Human Interaction Conference10.1145/3638380.3638394(211-220)Online publication date: 2-Dec-2023
https://dl.acm.org/doi/10.1145/3638380.3638394
Kabir KWiese J(2023)A Meta-Synthesis of the Barriers and Facilitators for Personal Informatics SystemsProceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies10.1145/36108937:3(1-35)Online publication date: 27-Sep-2023
https://dl.acm.org/doi/10.1145/3610893
Karusala NG VYan SAnderson R(2023)Unsettling Care Infrastructures: From the Individual to the Structural in a Digital Maternal and Child Health InterventionProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581553(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581553
Soubutts ECzech EAyobi AEardley RCater KO'Kane A(2023)The Shifting Sands of Labour: Changes in Shared Care Work with a Smart Home Health SystemProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581546(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581546
Tadas SDickson JCoyle D(2023)Using Patient-Generated Data to Support Cardiac Rehabilitation and the Transition to Self-CareProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580822(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580822
Herne RShiratuddin MRai SBlacker D(2022)Serious Games Design Principles Using Virtual Reality to Gamify Upper Limb Stroke RehabilitationHandbook of Research on Cross-Disciplinary Uses of Gamification in Organizations10.4018/978-1-7998-9223-6.ch011(235-261)Online publication date: 2022
https://doi.org/10.4018/978-1-7998-9223-6.ch011
Ploderer BMuller JBusato MTariq AClark KGreen T(2022)Co-Design with People Who Have Had a Stroke to Better Understand the Transition from Hospital to Home: A Narrative AccountProceedings of the 34th Australian Conference on Human-Computer Interaction10.1145/3572921.3572943(111-116)Online publication date: 29-Nov-2022
https://dl.acm.org/doi/10.1145/3572921.3572943
Tadas SPretorius CFoster EGorely TLeslie SCoyle D(2021)Transitions in Technology-Mediated Cardiac Rehabilitation and Self-management: Qualitative Study Using the Theoretical Domains FrameworkJMIR Cardio10.2196/304285:2(e30428)Online publication date: 14-Oct-2021
https://doi.org/10.2196/30428
Whitman SPine KThorsteinsdottir BOrganick-Lee PThota AEspinoza Suarez NJohnston EBoehmer K(2021)Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney DiseaseProceedings of the ACM on Human-Computer Interaction10.1145/34795275:CSCW2(1-28)Online publication date: 18-Oct-2021
https://dl.acm.org/doi/10.1145/3479527
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