Il coraggio di vivere

The selfish son, the idiot brother, the rude parents...not an easy family to live or die in, but then few are. I've always hated Bob Saget but have to give him credit here for showing it like it really is, warts and all. Dana Delaney is one of my all-time favorite actresses--if you've never seen "China Beach" do yourself a big favor--and the only reason I watched this. I'm glad I did...sad, but glad. What a terrible disease.

Just to clear something up, Bob Saget's point of this movie was not for it to be some fictional drama only to entertain it's viewers. His intention was to raise awareness of a very difficult and sad disease, called Scleroderma, that most people haven't even heard of but does effect more that several million people, that claimed the life of his sister. This movie is about her battle with that disease.

I was diagnosed with Scleroderma when I was 20 yrs old. It was a very difficult time in my life and everything changed. I have been living with this disease for 9 years, and it has claimed many of my organs. Now I can no longer have children. I hope people will watch this movie and have compassion for those who struggle with life-changing diseases and donate to it's research. Just maybe a cure could be found before long.

I wrote before about me and my husband watching the movie because my husband was diagnosed in January. Well, on the 19th of July he was finally called to rest by GOD. He had suffered for one short year from this disease but he suffered one year too long. I hope they find a cure from this disease even though it will not bring my husband nor my kids father back but it will at least save some other lives. To whom ever reads this, please do not take this subject lightly because this can to happen to you unexpectedly. My husband passed away at the sweet young age of 26. This disease is no joke.

My name is Mendi and I was diagnosed with Reynaud's Phenomenon and Scleroderma (CREST) at the early age of 15. I saw the movie "For Hope" after I was diagnosed. I was told that I would live approximately 5 years. That is a great deal for a 15 year old to swallow. Not only was I having a hard time coping with the idea, I felt that I needed to hide my fear for my families sake because the news was overwhelming for them as well and I didn't want them to worry more. When I watched "For Hope", I cried for days and yet it also gave me hope. Since I was was 15, I have dreamed of meeting Sharron. When I heard she passed away, I had just lost my finger. Once again I cried because her death was a great loss to all current and future Scleroderma patients. God Bless Bob Saget for continuing to fight for all of us who suffer with Scleroderma and for what his sister believed in!

I really enjoyed the movie. My husband has scleroderma and was just diagnosed with it in January. While we were watching the movie we were comparing what was going on with him at this point to what was happening to hope. We can relate very well with this movie and the details of the disease was described perfectly. This movie was very touching and goes to show that this can happen to anyone because the cause of the disease is unknown, which is very hard to grasp. But knowing that there is no cure is even more hard to swallow, because now we are at the point of no return and death is the end result.